Re: new to group 1 month ago

[Guest guest]

Hello Chris. I am the caregiver for my wife who suffers with NS. She was on Methotrexate for about two years. First as a pill dose 10 pills weekly @ 2,5 mg each. Then on shots for awhile. I forget now how much in shot form. The docs thought the shot might work better. Finally back to pills before the methotrexate stopped working and now we use cellcept. The prednisone for started at 60 mg a day and then weaned its way down to now a dose of 5mg per day. It seems that as time goes on the NS seems to grow resistant to the med. We were doing very well with the Methotrexate and then it seemed to fail. The NS reared its ugly self for another round. Take care & I hope you are able to find the medical assistance you need.MattSubject: new to group 1 month agoTo: Neurosarcoidosis Date: Tuesday, October 20, 2009, 6:10 PM

Hi everyone! I first signed up for Group about 1 month ago and was

looking for NS Dr in St. Louis MO area. No luck in this area so far.

But have spent hours on this website. You are all great including co-owners-moderator s. You help improve our life's daily, not expecting any return. THANK YOU!! Marla, when you have time, I would like to talk to you about Remicaide. Did ins have a list of different RX to try first? I may need to travel to Indinia for a Dr knowledgable of NS. Pred helped a firsted in April. Added MXT about 2 months ago with not much change. As with most of us, I have a love-hate relationship with Pred. Take care and would like to communicate our shared info with all you regarding our experinces living with NS.

H

New Member

[Guest guest]

Welcome I hope you find kindness and help in every manner needed.Again welcome and be blessed.HELENSubject: new to group 1 month agoTo: Neurosarcoidosis Date: Tuesday, October 20, 2009, 5:10 PM

Hi everyone! I first signed up for Group about 1 month ago and was

looking for NS Dr in St. Louis MO area. No luck in this area so far.

But have spent hours on this website. You are all great including co-owners-moderator s. You help improve our life's daily, not expecting any return. THANK YOU!! Marla, when you have time, I would like to talk to you about Remicaide. Did ins have a list of different RX to try first? I may need to travel to Indinia for a Dr knowledgable of NS. Pred helped a firsted in April. Added MXT about 2 months ago with not much change. As with most of us, I have a love-hate relationship with Pred. Take care and would like to communicate our shared info with all you regarding our experinces living with NS.

H

New Member