Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 n writes: For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different. n, Since I have these symptoms all the time anyway, how can I tell if I'm having die off?? Debbie Dysbiosis, fatigue, lots of aches and pains 17 yr old Son ASD, OCD. ADD, tics, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Stacey, First of all, it is awesome that your colonoscopy was free of disease. If you were having inflammation from UC every month, it is doubtful that your colonoscopy would be so normal. The " flares " could be residual IBS, or hormones, or anything, but thankfully you did not have signs of IBD. I wish I could advise you, but I am so glad to hear your colonoscopy is good. That alone is encouraging. PJ > > > I'm wondering how each of you tell if something is " die-off " or ifyou're > > doing or eating something that your body just can't deal with and > > shouldn't have? I think part of the reason I ask is that I've been SCD > > for at least 4 years now. I make all my own stuff, I don't eat anything > > illegal. Ever. But I do have a mini flare every month, no matter what > > (hormone related?). And this past year I've had 3 major flares. We > > haven't been able to figure out what caused them (no infection, no sign > > of disease, no new foods). The starter diet isn't enough to get my > > symptoms under control anymore but, fortunately, I've found that my body > > responds really quickly to a juice fast (heh...pre-starter diet for me > > ) and then I can start adding one food at a time from the starterdiet. > > During my last colonoscopy (a couple weeks ago) my doc said thatthere > > was no sign of disease and to keep doing what I'm doing. Afterdoing this > > for four years it seems unlikely that these are episodes ofdie-off but > > I'm really not sure how to tell if flare symptoms anddie-off symptoms > > seem to be the same (I say this because I've notexperienced the > > achiness/headache/fever etc symptoms - it's alwaysflare). So I'd like to > > hear how you can tell whether you're actuallyflaring or having to deal > > with die-off? > > Stacey > > > > What symptoms do you get when you experience what you're calling a flare? > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to be > able to tell the difference, since depending on the cause, they feel > subtlely different. > > n > > > ______________________________ > > A funny, touching gift book for cat lovers. Signed copies, free shipping > (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the > 10 Cats Who Caused My Addiction by n Van Til > www.wordpowerpublishing.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Debbie,Those same symptoms can be from low thyroid and adrenal fatigue (aches, fatigue, nausea, brain fog, muscle weakness are just a few). Sky, in this group, pointed me to a website www.stopthethyroidmadness.com and there is also a book by the same name. In the book there are several things that can get out of balance and cascade down through the body systems. Thyroid controls the metabolism, but if the adrenals are fatigued and not producing well, the thyroid chemicals can't get into the cells. You have the chemicals, just can't use them, and you will have hypothyroid symptoms. The adrenals control the steroids and if you have been stressed for a long time (as in the case of a prolonged illness) they can get tired and not produce these steriods consistently or as much as required. I find it interesting because one the first things a dr. gives a crohns or UC patient is synthetic steriods (prednisone). The above also usually comes along with low ferritin (again fatigue and brain fog) and low stomach acid. If the stomach acid is low, you won't digest your food (or suppements) well. You will have indigestion and bloating among other things. Just some things to consider.AmeliaHusband UC 9 years, SCD 19 monthsLDN 3 mgTo: BTVC-SCD Sent: Mon, February 15, 2010 9:32:50 PMSubject: Re: How do you tell? n writes:For me, a flare involves, first and foremost a resurgence of abdominal pain (in a very specific location) and renewed gas and diarrhea. Die-off makes my joints ache, creates some fatigue or at least tiredness, mental fog, irritability and nausea at some level. True, all of those can also accompany Crohn's itself. But over the years I've pretty much gotten to be able to tell the difference, since depending on the cause, they feel subtlely different.n,Since I have these symptoms all the time anyway, how can I tell if I'm having die off??DebbieDysbiosis, fatigue, lots of aches and pains17 yr old Son ASD, OCD. ADD, tics, etc. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 I was also thinking adrenals/thyroid, but I think your symptoms might be more consistent throughout the month if it was solely that. It sounds like hormones are influencing your flares. I know right before TTOTM I have my worst symptoms because my candida flares. > > Debbie, > > Those same symptoms can be from low thyroid and adrenal fatigue (aches, fatigue, nausea, brain fog, muscle weakness are just a few). Sky, in this group, pointed me to a website www.stopthethyroidmadness.com and there is also a book by the same name. In the book there are several things that can get out of balance and cascade down through the body systems. Thyroid controls the metabolism, but if the adrenals are fatigued and not producing well, the thyroid chemicals can't get into the cells. You have the chemicals, just can't use them, and you will have hypothyroid symptoms. The adrenals control the steroids and if you have been stressed for a long time (as in the case of a prolonged illness) they can get tired and not produce these steriods consistently or as much as required. I find it interesting because one the first things a dr. gives a crohns or UC patient is synthetic steriods (prednisone). The above also usually comes along with low > ferritin (again fatigue and brain fog) and low stomach acid. If the stomach acid is low, you won't digest your food (or suppements) well. You will have indigestion and bloating among other things. > > Just some things to consider. > > Amelia > Husband UC 9 years, SCD 19 months > LDN 3 mg > > > > > > ________________________________ > > To: BTVC-SCD > Sent: Mon, February 15, 2010 9:32:50 PM > Subject: Re: How do you tell? > > n writes: > > For me, a flare involves, first and foremost a resurgence of abdominal > pain (in a very specific location) and renewed gas and diarrhea. Die-off > makes my joints ache, creates some fatigue or at least tiredness, mental > fog, irritability and nausea at some level. True, all of those can also > accompany Crohn's itself. But over the years I've pretty much gotten to > be able to tell the difference, since depending on the cause, they feel > subtlely different. > > n, > > Since I have these symptoms all the time anyway, how can I tell if I'm > having die off?? > > Debbie > Dysbiosis, fatigue, lots of aches and pains > 17 yr old Son ASD, OCD. ADD, tics, etc. > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 Sky, no I did not feel any different when my TSH was 0.01 than when it was high. Always have felt low thyroid symptoms. Debbie > > Hi Debbie > > Did you feel good when your tsh was really low? > Also there is no point in taking thyroid medication if your ferritin is low that could explain the tightness in the chest. > > Sky > > > > > > > > _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I am way past periods now but I always had an IBS flare before and during the heavy part of my periods. Always. I really think this is hormone-related though I can't tell you how. I don't know what you could do about it, alas. I hope your new GYN will have some ideas. The mini flares that I have each month have something to do with my period. My colitis acts up the week before and during. It's extraordinarily miserable but I've never found anything that would help with the symptoms. The suspicion is that it's hormone related. Quote Link to comment Share on other sites More sharing options...
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