Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Tim, Order some MSM Powder from puremsm.com. This is a natural mineral that has been depleted from our enviroment- land, soil, food (by processing any way) and is essential for muscle, ligament and collagen health. I use a tbsp in 1/4 c of water-- drink it down, and within minutes the pain and nerve issues subside. It is like Vit C, water soluble, so you can't take too much, you'd just piss it out. The other really good diuretic is to add lemon to your water-- the natural C helps get the toxins out. Milk Thistle is the other "gotta have it." IT is a natural liver detoxifier-- and since we're on such nasty meds, our liver needs the break. In the MESSAGE ARCHIVES-- I've done a huge amount of research and you can look up the info there.. In the direction of Suzanne Somers-- there is an excellant book that is written by one of her advisors-- THE SCHWARZBEIN PROTOCOL. It is written by an MD that is an endocrinologist. Her last name is Schwarzbein. She explains in detail the challenges of autoimmune diseases and approaches healing from dietary idea. She covers adrenal insufficiency, which become an issue for us that have been on pred for years; as well as the variations of hormonal imbalances. IT is not only a great read but she gives us the diet to heal. My family has been using it (the guys do better than I do) and we've all benefited. We truly have to be careful when it comes to "enhancing" our immune systems-- we don't need to bolster a system that is already so powerful it is attacking our own healthy body. So do be cautious and learn as much as you can about this disease. Someone stated that they realized they had to teach their MD-- and that is the sad truth! You will find that the more proactive you are in your treatment, the better off you will be. If your docs won't listen or read the info you have for them-- find ones that will. On the issue of nerve pain-- if you have changed to make sure you're not dehyrdated, and you've cut the sugars out of your diet-- and still have the pain-- you may find that the MSM helps calm the nerve ends. Another really helpful practice has been to tell myself that "Ok, Tracie, you know this pain, and it's at it's peak right now- it hurts, but it's not going to kill you." Then I practice deep breathing techniques that help to clear my lungs of any carbon dioxide buildup, and then by fully inhaling-- I visualize all that new oxygen getting out to my extremities. Remember that if you are anemic, you have fewer red blood cells. Fewer red blood cells makes for less cells to carry oxygen to your extremities. So that issue needs to be looked at. It seems like alot of small issues-- add up to huge problems for us. So we really need to look closely at what is happening and not let the docs say "well, you're 'slightly' anemic, or you're 'slightly' dehydrated-- but I don't think it's serious." For us, it is serious, and if we get the small stuff addressed then the big picture gets more managable. Hope this helps, Tracie NS Co-owner/moderator ----- Forwarded Message ----To: tiodaat2001@...Sent: Thu, February 18, 2010 8:45:30 PMSubject: Re Dehydration mailto:tiodaat2001@...?subject=Re: Fw: Re Dehydrationthanks for the help , on your post my dr had no idea , but we are both in a holding mode now, they have stopped my prednisone , and my plaquinel , i am not responding to it or other meds . so i will be slowly coming off this stuff and looking for another out , so i am in a holding pattern now , by the time night time comes now and i sit down i have a problem with my legs and joints hurting like you know what ,but they have a problem now because my veins in my arms and legs are almost on top of my skin and stand out and hurt , the skin sarc you can feel in a lot of places under my skin now like lumps, but i can,t afford to gain any weight due to my heart can,t take weight stress , but have to self monitor my fluid intake unitil something they find out or i find out by looking online, its a 87 mile trip one way to my dr so i have to spread appontments out, ,,,i take pm meds to help me sleep but have to sit up till 12mid at times or 1 am some nights in a recliner because i have to wait till it kicks in before i lay down or i will not sleep at all, or my brains will wake me or my muscles start jumping or having spasms from taking the hydrochlorothiazide so i am in a catch 22 p. s i contacted Suzzane Summers people Life exstension foundation , you know they do research and are into the hormone therapy and treat and have good results with people from cancer on and get cured and have a good track record and treat so many diseases and have cured many people with terminal cancer. , guess what the one thing they have not worked on or heard of is Neousarcoidosis/ or sarcoidosis it was not even on there list i must admit it bothered me ???people just don,t don,t know i guess tim in north fl Hotmail: Trusted email with powerful SPAM protection. 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