Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Barbara i am glad that will get the help you need.take care and hang in there.HELEN From: BarbaraW <beautybarnweber@ yahoo.com>Subject: UPDATE ON ME !To: Neurosarcoidosis@ yahoogroups. comDate: Thursday, February 18, 2010, 11:18 AM UPDATE :went to new doctor yesterday and i had one of those episodes there and was told it is seizure activity. so she wants to run a slew of tests . mri, ct scans, 15vials of blood, eeg, new meds, and spinal tap ! oddly enough i am ok with this because she saw what i was going through ! so will let you all know what is up with all these tests ! i went and had the blood work done , and i was giving blood my dr. from cleveland called dr. parambil, he said he was thinking about my case and wants me to come to cleveland to get a skin biopsy cause sarc HIDES in the nerves. so two doctors in two different states on the same day told me "YOU ARE NOT CRAZY, THIS IS NOT ANYTHING THAT YOU CAN CONTROL !!!!!" ALL I CAN SAY IS THANK YOU GOD FOR ANSWERED PRAYER AND PUTTING ME ON THE RIGHT PATH !!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 BArb, so glad that they are finally taking you seriously. This is great! tracie To: Neurosarcoidosis Sent: Thu, February 18, 2010 9:18:14 AMSubject: UPDATE ON ME ! UPDATE :went to new doctor yesterday and i had one of those episodes there and was told it is seizure activity. so she wants to run a slew of tests . mri, ct scans, 15vials of blood, eeg, new meds, and spinal tap ! oddly enough i am ok with this because she saw what i was going through ! so will let you all know what is up with all these tests ! i went and had the blood work done , and i was giving blood my dr. from cleveland called dr. parambil, he said he was thinking about my case and wants me to come to cleveland to get a skin biopsy cause sarc HIDES in the nerves. so two doctors in two different states on the same day told me "YOU ARE NOT CRAZY, THIS IS NOT ANYTHING THAT YOU CAN CONTROL !!!!!" ALL I CAN SAY IS THANK YOU GOD FOR ANSWERED PRAYER AND PUTTING ME ON THE RIGHT PATH !!!!!!! Quote Link to comment Share on other sites More sharing options...
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