Re: Update from the deliriously tired house

[Guest guest]

Ohh...I know it's sad once we start thinking about certain things our clubfoot

kids miss out on (or we miss out on) . Sleep deprivation certainly adds to the

whole drama of this outlook. My first son used to dig his little toes in my

belly when he was sleeping with us and the crazy thing is that I actually felt

comforted when he did this. It made me aware of him being next to me. I realized

my little guy won't be able to do this since he will be in a brace at night for

his entire young life (well, til 4 anyway). And the crazy thing is, there's no

saying he would have even done this even without the brace, but in my mind I see

it as a loss because of the brace. We do the best we can under the

circumstances. I am so sorry for what you're going through. I wish I could help.

Hang in there as best as you can. Sleep during the day as often as you get a

chance. Don't forget that you can always come on here and vent.

lotsolove4my2babes wrote: Well, this is day 5.

Once I changed the bar to the 8 setting, he has still be fussy, but

nothing like he was, DURING THE DAYTIME.

Night has been horrible.

He has woken up every 10-15 min no exaggeration for the past 4

nights. I have only been getting 2 hr of sleep per night(after I

take the brace off at 5am for 2 hr of his off time). I have 2 other

young children to take care of, a house, a traveling husband, no

family or close friends here. How I am suppose to function?

What can I do to make him more comfortable?

He doesn't fuss during the day like this, so I don't think it is a

pain issue or improper correction or fit(even though we have checked

many times). He used to fall asleep on his side, legs curled up,

holding his toes(that was his comfort thing-he won't take pacy,

blankie, thumb, etc). I have tried pillows, laying him on my chest,

across my lap, nothing is working.

This totally sucks.

And I jsut realized last night that I am never going to see my baby,

my youngest toddle around in footed sleepers. I realized when I

went to get him some pjs from his drawer, and ALL of them are

footed. *crying* I know that is silly, but it makes me so sad.

[Guest guest]

i'm so glad you guys have posted about your feelings. i've been

driving myself mad thinking i was getting post-natal depression

again(had it for 18months after my first before it was treated).

i think everyone has had a valid point. this group is for support and

advice, physically and emotionally. if i hadn't have found it and if

you guys didn't post what you have, i'd be back down the quack shop.

so i would like to take the oppertunity to say a big THANK YOU to

everyone on here for being you, for not being the only person going

through this, for sharing your feelings over boots, pj's, etc, for

giving advice when needed. and most of all for being on the end of a

computer screen.

my health visitor said to me yesterday, after i confessed starting

weining at 3 1/2 months not 6 as recommended, there/we are only here

for advice. it's my/your life and we can choose to take or dismiss the

advice given.

i read and cryed. i've got to change my jumper now but i feel alot

better and stronger.

my recommendation: have a daily/weekly cry and find someone to talk

to(eg nosurgery4clubfoot).

well thats my 50pence worth.

haz of lincoln, uk

[Guest guest]

I often feel guilty about the things that make me sad too. I was

going through clothes from my first son for my second son and I found

shoes and booties and sleepers and it made me very sad. You don't

have to feel guilty that you are feeling sad that his first four

years aren't going to be " normal " .

I had to take my son to the ortho the other day and another woman was

there with her 10 month old son for a different sort of issue. When

she came out after seeing the Dr. she said to her Mother " It's all

good, no more doctors. We don't have to come back again. " and I got

incredibly jealous, I don't even know where it came from. I think I

was mostly sad.

I've always found great support here and felt that I could find

individuals who could relate to what I was going through. I can

relate to you and being sad over footed pajamas. The same thing made

me sad too.

Hang in there.

Well, this is day 5.

> >

> > Once I changed the bar to the 8 setting, he has still be fussy,

> but

> > nothing like he was, DURING THE DAYTIME.

> > Night has been horrible.

> > He has woken up every 10-15 min no exaggeration for the past 4

> > nights. I have only been getting 2 hr of sleep per night(after

> I

> > take the brace off at 5am for 2 hr of his off time). I have 2

> other

> > young children to take care of, a house, a traveling husband,

no

> > family or close friends here. How I am suppose to function?

> >

> > What can I do to make him more comfortable?

> > He doesn't fuss during the day like this, so I don't think it

is

> a

> > pain issue or improper correction or fit(even though we have

> checked

> > many times). He used to fall asleep on his side, legs curled

> up,

> > holding his toes(that was his comfort thing-he won't take pacy,

> > blankie, thumb, etc). I have tried pillows, laying him on my

> chest,

> > across my lap, nothing is working.

> >

> > This totally sucks.

> >

> > And I jsut realized last night that I am never going to see my

> baby,

> > my youngest toddle around in footed sleepers. I realized when

I

> > went to get him some pjs from his drawer, and ALL of them are

> > footed. *crying* I know that is silly, but it makes me so sad.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thank you for your encouragement, Halley. We are still adjusting here and not

getting much sleep.

Carol

Re: Update from the deliriously tired house

Oh girl! We're going thru the same ordeal right now! Nick used to

go to sleep fairly easily, cast and all. Now it's fussy and crying

at nighttime and he wakes A LOT more than he used to. We're not

getting any sleep here, either. Only my husbands' parents to help a

little, but no other family or friends. We live in NJ where I

relocated from Michigan, so my fam/friends are there. You're right,

this part is the hardest! I just keep saying " It will soon be

over " . And I hate to wish his little life away, but I need him to

be able to sleep again! We have a 3 1/2 yr old to care for, as

well. I know we will make it through - soon! Hang in there,

nothing is forever!

PS Nick wears the one piece jumpsuits (snaps from head to toe) from

s. They're on sale right now (fall line) for $5 each and I

think I must have gotten about 15 of them!

>

> Well, this is day 5.

>

> Once I changed the bar to the 8 setting, he has still be fussy,

but

> nothing like he was, DURING THE DAYTIME.

> Night has been horrible.

> He has woken up every 10-15 min no exaggeration for the past 4

> nights. I have only been getting 2 hr of sleep per night(after I

> take the brace off at 5am for 2 hr of his off time). I have 2

other

> young children to take care of, a house, a traveling husband, no

> family or close friends here. How I am suppose to function?

>

> What can I do to make him more comfortable?

> He doesn't fuss during the day like this, so I don't think it is a

> pain issue or improper correction or fit(even though we have

checked

> many times). He used to fall asleep on his side, legs curled up,

> holding his toes(that was his comfort thing-he won't take pacy,

> blankie, thumb, etc). I have tried pillows, laying him on my

chest,

> across my lap, nothing is working.

>

> This totally sucks.

>

> And I jsut realized last night that I am never going to see my

baby,

> my youngest toddle around in footed sleepers. I realized when I

> went to get him some pjs from his drawer, and ALL of them are

> footed. *crying* I know that is silly, but it makes me so sad.

>

[Guest guest]

Hang in there!! I know what you mean about not being able to use

the footed pajamas. It's those little things that you miss,

especially when you've had such a trying time. It will get better.

I was browsing the replies to your post and one recommended looking

into a different kind of shoe. Perhaps the brace. The

straps are soft and flexible, and not as unforgiving as the Markell

or other hard leather shoes. It's always a possibility. I had a

prooblem with the Markells because my son was pulling his foot out

of them so I ordered the s as a back up. I paid out of

pocket for them. Very worth it. Look into that. Try all

alternatives. You need some sleep!!

I'm sending good thoughts your way. Let us know how it's going.

>

> Well, this is day 5.

>

> Once I changed the bar to the 8 setting, he has still be fussy,

but

> nothing like he was, DURING THE DAYTIME.

> Night has been horrible.

> He has woken up every 10-15 min no exaggeration for the past 4

> nights. I have only been getting 2 hr of sleep per night(after I

> take the brace off at 5am for 2 hr of his off time). I have 2

other

> young children to take care of, a house, a traveling husband, no

> family or close friends here. How I am suppose to function?

>

> What can I do to make him more comfortable?

> He doesn't fuss during the day like this, so I don't think it is a

> pain issue or improper correction or fit(even though we have

checked

> many times). He used to fall asleep on his side, legs curled up,

> holding his toes(that was his comfort thing-he won't take pacy,

> blankie, thumb, etc). I have tried pillows, laying him on my

chest,

> across my lap, nothing is working.

>

> This totally sucks.

>

> And I jsut realized last night that I am never going to see my

baby,

> my youngest toddle around in footed sleepers. I realized when I

> went to get him some pjs from his drawer, and ALL of them are

> footed. *crying* I know that is silly, but it makes me so sad.

>