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Re: Happy UPDATE!!! Isaac

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,

How long did the spots stay red? If just for 1/2 hour or so, I wouldn't

be too worried. In fact, Lily had red areas that lasted even a full

hour but never turned into sores or blisters. You're right to keep an

eye on the spots and it probably is telling you something about the

fit of the shoes. From what I understand, the consensus around here

is that sores/blisters are generally caused by shoes that aren't tight

enough or a lack of correction (or atypical cf that need the s).

Don't have much to offer re. slipping out of the shoes & the open heel

Markells since I don't have experience with either. Others will chime

in I'm sure.

Hang in there. It'll all get worked out.

Kim

Lily, 3/28/05, lcf, P/Ms 16/7

lotsolove4my2babes wrote:

Celebration halted for the moment. When I took him out of the shoes

to get him dressed this morning, he had a red spot on the upper part

of each heel. I just checked again, and the spots are not worse,

and seem to have faded for now. They were red, not purple, not

raised like a blister yet.

I have scanned through a few of the tips files, but some it seems

contradictory...tight shoes can cause blisters, but too loose can

cause friction causing blisters??

On to 2nd problem. He has now started slipping out(twice today so

far only in his clubfoot). I moved the tongue down a little, and

checked his positioning several times. I don't understand how the

reascal is doing it.

I have some moleskin from our 1st(non- DBB/FAB brace) brace

experience left. Can I cut and glue a part of that at the top of

the ankle part of the shoe where the plastizote would be put at?

Would that work the same?

I also read on the Ponsetti file that the open heel shoes are only

made up to size 1? Is that still true bc that it what size Isaac(7

months is in now) and though he is in the regular ones right now, I

did and am still requesting the open heel ones. Ironically, I still

have open heeled ones from the other brace system we had, but they

are too small now.

>

> Day 6 is rising, and I got 8.25 hr of sleep only interrupted twice

> briefly. Yippee!

>

> Isaac nursed right to sleep no problems(wearing FAB).

> He woke, and fussed when laid down on our bed next to me, so my

> wonderful(at the moment,lol) husband rocked him to sleep.

> He woke an hr later. Dh took that duty also. I must look like

death

> for him to do night help. ;-)

> He woke once and kicked around about 2 am, but fell back asleep

with

> us patting and soothing.

>

> At 7am, we woke up to realize he was still asleep AND we had not

taken

> the bar off. I drew back the covers thinking he must have kicked

it

> off to be sleeping so long so good, but NOPE!! The bar and shoes

were

> still in place. Albeit he is sleeping in our bed, but u know

what, I

> don't care. My ped. can lecture all he wants.

>

> I did tighten the hole/notch one more hole, and he didn't move his

> foot at all. :-)

>

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Okay, back to work. Size 1 shoes could be a little big for a 7 month

old, but it varies so much it is hard to say. Where do his toes come

to in the shoe when you are first applying them and you feel his heel

is really down in there? If his toes are more than 1/2 " from the edge

I would say that they are too big. What size were the old shoes you

had? What other brace system did you have before, just curious? I

believe that is correct about the open heeled shoes only being made up

to a size 1 - but you can always cut a hole in the back of the shoe if

you want to. I just put little peek holes in Sammy's 1st shoes so I

could see if his heels were down, but with each subsequent pair I

never really needed it.

I would say that tight shoes improperly applied will cause pressure

sores, loose shoes cause slipping which is the biggest culprit of

blisters. I would put a bandaid over each red spot before you

re-apply the shoes. Then re-check in a few hours. As for the

molefoam, I'm not sure it is necessary, but you should use your

judgement on how bad the red spots are looking. It should help pad

the back of the shoe appropriately if needed. My son has red marks on

his insteps regularly, the skin does not break down and the marks are

not causing him discomfort so we don't put anything on it. If you

want to send over pics of his boo-boos to CFPics, Kori already

approved your membership (just don't forget to send back the survey -

she's the survey Nazi! JK Kori :) ). We can look at the red marks

and at least give you some helpful opinions.

HTH,

> >

> > Day 6 is rising, and I got 8.25 hr of sleep only interrupted twice

> > briefly. Yippee!

> >

> > Isaac nursed right to sleep no problems(wearing FAB).

> > He woke, and fussed when laid down on our bed next to me, so my

> > wonderful(at the moment,lol) husband rocked him to sleep.

> > He woke an hr later. Dh took that duty also. I must look like

> death

> > for him to do night help. ;-)

> > He woke once and kicked around about 2 am, but fell back asleep

> with

> > us patting and soothing.

> >

> > At 7am, we woke up to realize he was still asleep AND we had not

> taken

> > the bar off. I drew back the covers thinking he must have kicked

> it

> > off to be sleeping so long so good, but NOPE!! The bar and shoes

> were

> > still in place. Albeit he is sleeping in our bed, but u know

> what, I

> > don't care. My ped. can lecture all he wants.

> >

> > I did tighten the hole/notch one more hole, and he didn't move his

> > foot at all. :-)

> >

>

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My dh and I both said these shoes were too big, but the nurse

basically implied we didn't know what we were talking about, and

that they have treated 100s of cf cases, blah, blah, blah. This

comes from the same office that gave me minimal actual

info/instruction(nothing written), so all we know is from here and

our past ortho's office.

Isaac was in a size 00 M after 4 casts, and size 0 W after 5 more.

They seem too small, but the 1 seems way too big. Not that I can

use the other's anyway bc of the appartus attached. If I can ever

get my 3 monkeys occupied, I will take a new pic of Isaac's brace,

and one of his heels next off time.

His normal foot is about 1/4 " from the edge of the inner brown sole.

His clubfoot is about 3/4 " from the edge.

I was asking about the moleskin for helping with not slipping, not

the red spots. Any thoughts?

Already filled out the survey.

I will send a pic of his 1st brace also. It was a stupid

customisized by the local brace specialist deal with a Markell shoe,

a metal brace up the side, and around under the knee. A torture

device since he wasn't fully corrected(couldn't stand flat, needed a

tenotomy), and hard to maneuver it on.

Now that I think about it, I posted my intro on the clubfoot yahoo

group in Dec, not here.

> > >

> > > Day 6 is rising, and I got 8.25 hr of sleep only interrupted

twice

> > > briefly. Yippee!

> > >

> > > Isaac nursed right to sleep no problems(wearing FAB).

> > > He woke, and fussed when laid down on our bed next to me, so

my

> > > wonderful(at the moment,lol) husband rocked him to sleep.

> > > He woke an hr later. Dh took that duty also. I must look like

> > death

> > > for him to do night help. ;-)

> > > He woke once and kicked around about 2 am, but fell back

asleep

> > with

> > > us patting and soothing.

> > >

> > > At 7am, we woke up to realize he was still asleep AND we had

not

> > taken

> > > the bar off. I drew back the covers thinking he must have

kicked

> > it

> > > off to be sleeping so long so good, but NOPE!! The bar and

shoes

> > were

> > > still in place. Albeit he is sleeping in our bed, but u know

> > what, I

> > > don't care. My ped. can lecture all he wants.

> > >

> > > I did tighten the hole/notch one more hole, and he didn't move

his

> > > foot at all. :-)

> > >

> >

>

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If you go to the markell website-you can print out a shoe chart,

next time Isaac is out of his shoes, stand him up and measure him to

see which size shoe he should be in. If it ends up that he should be

in a smaller size-i would take him and the chart back to the

office!!!

The moleskin should help with the slippage-however, if the shoes are

too big, that means the strap that should hold his heel down and his

foot in place isn't hitting the right part of his foot and explains

how he is able to get his little feet out.

can't wait for the pictures-make sure to send one of Isaac's face-

LOL.

take care,

kathleen

> > > >

> > > > Day 6 is rising, and I got 8.25 hr of sleep only interrupted

> twice

> > > > briefly. Yippee!

> > > >

> > > > Isaac nursed right to sleep no problems(wearing FAB).

> > > > He woke, and fussed when laid down on our bed next to me, so

> my

> > > > wonderful(at the moment,lol) husband rocked him to sleep.

> > > > He woke an hr later. Dh took that duty also. I must look

like

> > > death

> > > > for him to do night help. ;-)

> > > > He woke once and kicked around about 2 am, but fell back

> asleep

> > > with

> > > > us patting and soothing.

> > > >

> > > > At 7am, we woke up to realize he was still asleep AND we had

> not

> > > taken

> > > > the bar off. I drew back the covers thinking he must have

> kicked

> > > it

> > > > off to be sleeping so long so good, but NOPE!! The bar and

> shoes

> > > were

> > > > still in place. Albeit he is sleeping in our bed, but u

know

> > > what, I

> > > > don't care. My ped. can lecture all he wants.

> > > >

> > > > I did tighten the hole/notch one more hole, and he didn't

move

> his

> > > > foot at all. :-)

> > > >

> > >

> >

>

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