Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Yeah, sorry about that, I am still new to all these clubfoot terms. Up until all these mistakes started happening I just trusted the doctors..........You know the " Ok shes a doctor, she knows what shes doing " But I totally regret this know....I have done lots of thinking and I never really spoke up about na's treatment, I just let the docs do their thing...boy was I ever wrong. There is no point in dwelling on the past however-just tryin to move on and find somethin better. Ok so it I found out na's treatment is a modified Ponseti version, so they say, with Botox. If I could go back in time, there are many things I would have changed....na would never have received a botox--let alone 3. The doctor also used K wires (threaded pins) along with the surgery. These k wires went in the back of the ankle where the tenotomy is done and came out the bottom of her foot-An L shape. She also know has 2 huge pressure sores on the top of her foot because of casts being put on too tight which are still here and those casts were applied 7 weeks ago now-kinda wonderin if they are ever gonna go away. Anyways, I am just sort of wondering exactly what the Ponseti method is and still trying to figure out the difference between this and na's doctors method-besides the botox part- I am slowly doin the research-if anyone can make the long story short, that would be great Thanks, > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: Re: Just Joining >Date: Sat, 21 Jan 2006 22:23:12 -0600 > >I'm glad you're here; I'd heard about your story from others recently and >was just totally aghast. I'm so sorry your daughter has gone through so >much. > >You say she had " Ponseti casting " . Um, are you sure? None of this >describes anything like the Ponseti Method except the use of casts. The >method of casting used in the P-method is very different though. Obviously >not all serial casting is created equal. > > There's no use of botox either, or pins... For this doctor to even >pretend to use the Ponseti Method is right up there with blasphamy. It >really makes me angry - like buying a genuine artificial fake fur coat. > >How can we help you and your daughter from here aside from finding that >doctor and kicking his butt with botox and pins for you? Seriously, let us >know, ask your questions - what ever we can do to get you all past this and >on to happier days just say the word. My heart breaks for your little >girl. > >shawnee > Just Joining > > > My daughter is 6 and a half months old. She > has bilateral clubfoot. She has already had an Achilles Tendon > lengthening on both feet. Her left foot is looking amazing but her > right foot still needs a little work. However, it was a really long > haul to get here. na's had treatment (casting Ponseti > method) since she was 6 days old. nas doctor is researching > the use of botox with these babies. So na had 3 injections > while most babies only have one. In my opinion it did not work at > all for na. na has also been placed under general > anaesthetic 6 times-half of those times being mistakes the doctors > made. After nas surgery(Achilles Tendon and they put pins to > hold her in her casts)-Dec 1, 2005-they put her casts on too tight, > so they had to put her back to sleep again to change her casts. > After 3 weeks of the cast, they started to smell, so we had to go > again-they put her to sleep and once again put her casts on too > tight. So when we got home, I took her to another hospital, and > they split her casts in the front to give a few millimetres leway. > Anyways, they also did that once before her surgery as well. To add > to this, they cut her feet both times they had to use the saw so she > has 2 huge scars going all the way up her feet because of more > mistakes. > By the way, thanks everyone for letting me know about this site > But now, na has custom made Ankle Foot Orthoses (AFO) and we > are gonna start trying the Dennis Browne boots and bars at night. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2006 Report Share Posted January 22, 2006 Hi - welcome to the group! I am so glad that you are here and will look forward to seeing you when you come to town! candi_744 wrote: My daughter is 6 and a half months old. She has bilateral clubfoot. She has already had an Achilles Tendon lengthening on both feet. Her left foot is looking amazing but her right foot still needs a little work. However, it was a really long haul to get here. na's had treatment (casting Ponseti method) since she was 6 days old. nas doctor is researching the use of botox with these babies. So na had 3 injections while most babies only have one. In my opinion it did not work at all for na. na has also been placed under general anaesthetic 6 times-half of those times being mistakes the doctors made. After nas surgery(Achilles Tendon and they put pins to hold her in her casts)-Dec 1, 2005-they put her casts on too tight, so they had to put her back to sleep again to change her casts. After 3 weeks of the cast, they started to smell, so we had to go again-they put her to sleep and once again put her casts on too tight. So when we got home, I took her to another hospital, and they split her casts in the front to give a few millimetres leway. Anyways, they also did that once before her surgery as well. To add to this, they cut her feet both times they had to use the saw so she has 2 huge scars going all the way up her feet because of more mistakes. By the way, thanks everyone for letting me know about this site But now, na has custom made Ankle Foot Orthoses (AFO) and we are gonna start trying the Dennis Browne boots and bars at night. Quote Link to comment Share on other sites More sharing options...
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