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Loren,

Each child is different, but my son didn't show ANY withdrawals either.

I removed casein first and then slowly the gluten and this was over 17

months ago and in that time he has come so far. The diet has become easy

to me now and my son LOVES all I cook for him. If your little one is so

use to the taste of a certain food, once you take that food away wait

awhile before you offer the replacement for that particular food so as

they are not comparing.

(LJs mom) in New York

*

On Mon, 10 Sep 2001 09:24:08 -0400 Loren Van De Griek

writes:

> over a

> week. I have not noticed any changes yet, no withdrawals, nothing.

). My question : Will

> he

> ever eat anything new? We definitely put it in front of him, but he

> pushes

> it away. Since he hasn't had withdrawals yet, will he? Is it a bad

> sign

> that he hasn't had the withdrawals?

> I would love to hear any suggestions, any ideas, anything.

> Loren

>

> Loren Van De Griek

> mommy to - 6yrs, Ross - 4 yrs(ASD), Seth - 22 months

> Hickory, NC

> " the harder the struggle, the greater the victory "

>

> Shop for great Kay products with me online

> at: www.marykay.com/lvandegriek

>

>

>

>

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  • 8 years later...

HI DARRIN,WELCOME TO OUR SITE.IF YOU ARE DIAGNOSIS WITH NEUROSARCOIDSIS YOU ARE IN A GOOD PLACE TO FIND KNOWLEDGABLE PEOPLE,FRIENDLY PEOPLE AND CARING PEOPLE.IF YOU ARE A STRANGER SITTING AT OUR CAMPFIRE OR YOU WHETHER YOU WILL INDEED BUILD A FIRE A REMAIN A WHILE YOU ARE IN A GOOD PLACE.HELENSubject: New to listTo: "neurosarcoidosis " <neurosarcoidosis >Date: Friday, February 19, 2010, 12:42

AM

Hi,

I'm Darrin, new to the list, and thought I should introduce myself.

For many years I've been experiencing a worsening neuro condition

I felt was ms with tremors, twitches, spasms, a myoclonic jerk, and

a contracture plus visual and other sensory problems. I finally got

to see an ms neuro recently who prescribed a battery of tests that

included comprehensive bloodwork and not yet done potentials tests.

I haven't been to the follow up yet but the blood tests were negative

for just about everything except an ACE level in the 90s when it should

be 60 or below. A search on this got me to neurosarcoidosis and info on

it seems to cover my symptoms well plus it explains the ACE.

I don't know yet if I'm just a stranger sitting at the campfire for a night

or if I'll be building a cabin here but in any event it is nice to see a

thriving community.

Cheers,

Darrin

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