Re: Spiritual re: relax from this disease

[Guest guest]

Rach,Once again I am going from new to old on emails, and just want you to know that a day comes when you do relax. There are many things you can do, I don't have a list of them.  I've had many times when I wondered if i would ever

relax, been through drugs, remission, and when it comes back been through huge denial.  There was even a time, I knew it was back, but thought if I ignored it, it wouldn't come back.  I have those days why me, and many other episodes of trying to deal with or not deal with this disease.  I did counseling for awhile and found that to be very

helpful, I've had speech therapy, occupational therapy, and even Physical Therapy, and yes they were all helpful, but then turned out too much work to go 2-3 times a week.  Now what I'm about to say, is not a medical thing, it's spiritual, so if you chose to stop reading for what ever reason

now, and delete this, that too is OK .  About 5 years ago I tried a Spiritual healing, where they lay there hands on you and pray over you, I could feel the Holy Spirit come within me.  Now was I healed completely, NO, I came away with More energy, and a calmness I never had, I was able to look at

life different, in as I took it ONE DAY AT A TIME, as I truly felt that was the message I received, to deal with today,not that we should not prepare for the future, as in get treatments, meds, appts. etc.   But I just found such a peace

in that what ever came to me today, I can now deal with it.  Please don't in any way think that I am saying its easy, or even that everyone can do this. But I'm just sharing what works for me.  I have since had another spiritual healing, and it just reminds me how wonderful life can be, yes I did

say that. I'm also not saying you have to run and do this, for I know many people do not believe this, and that's OK too. But for me, it's the difference between night and day.  I don't get as tired as I use to, I feel hope even in the bad days, I try to live for today. 

Do I still have pain, yes lots of it, do I still complain, yes, and many other things.  But I have found that taking it one day at a time, makes living with it doable.  Do I have slide back days for sure, nothing is perfect.

I recently attend my Aunts funeral, she dealt with Sarcoidosis for years, and for as long as I can remember she was sick, and when then mentioned in her eulogy that she had this disease for many years and had succumb to it. I felt a moment of panic.  But then again, I also remembered she was 82.  and that gave me hope.

Please know I am not preaching, or saying this is for everyone, or that you need to get a spiritual healing. But live for today, because tomorrow never comes. and I have days I need to remind myself of that. There are better days, and then there are not so better days.

I am hoping that you have many more better days, then not. Blessings, Marla

 

The cellcept is kind of working - KIND OF... the opthal is happier with my eyes, my symptoms appear somewhat reduced...

BUT i've got pain in my knee (new), and my heart has not stopped racing since I started and so tired... but according to the doctors its kind of working.

But I can't relax, will it return? when will the next attack be? I was on imuran and it was KIND OF working. I stopped it and ended up in hospital for days in just a few weeks.

When can you relax?

[Guest guest]

Bill, That is awesome, and yes I do believe our kids and others worry enough, besides I find if I start worrying, it just brings me down, so I try not to:) Thanks for sharing this. Marla

 

Great attitude Marla:

 

I do yoga 2x week as well as swim, OT & PT.  My yoga teacher has a friend who practices eastern medicine and spiritual healing.  It's been working.  At night I play " new age " music, drink herbal tea,and take a cinammon or turmeric capsule (spices that reduce inflammation).  So far so good.  I do not sleep more than 4.5 hours at once but it's an improvement from six months ago.  I try to live and not worry because my children are worried enough. 

 

The cellcept is kind of working - KIND OF... the opthal is happier with my eyes, my symptoms appear somewhat reduced...BUT i've got pain in my knee (new), and my heart has not stopped racing since I started and so tired... but according to the doctors its kind of working.

But I can't relax, will it return? when will the next attack be? I was on imuran and it was KIND OF working. I stopped it and ended up in hospital for days in just a few weeks.When can you relax?

[Guest guest]

You said it! Keep it up, Marla. You too, Bill!melanieTo: Neurosarcoidosis Sent: Sat, March 6, 2010 12:31:16 PMSubject: Re: Spiritual re: relax from this disease

Bill, That is awesome, and yes I do believe our kids and others worry enough, besides I find if I start worrying, it just brings me down, so I try not to:) Thanks for sharing this. Marla

On Fri, Mar 5, 2010 at 9:58 PM, bill cumbers <dmhs1666 (AT) yahoo (DOT) com> wrote:

Great attitude Marla:

I do yoga 2x week as well as swim, OT & PT. My yoga teacher has a friend who practices eastern medicine and spiritual healing. It's been working. At night I play "new age" music, drink herbal tea,and take a cinammon or turmeric capsule (spices that reduce inflammation) . So far so good. I do not sleep more than 4.5 hours at once but it's an improvement from six months ago. I try to live and not worry because my children are worried enough.

The cellcept is kind of working - KIND OF... the opthal is happier with my eyes, my symptoms appear somewhat reduced...BUT i've got pain in my knee (new), and my heart has not stopped racing since I started and so tired... but according to the doctors its kind of working.

But I can't relax, will it return? when will the next attack be? I was on imuran and it was KIND OF working. I stopped it and ended up in hospital for days in just a few weeks.When can you relax?