Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 Rach, I know that when I first started this journey I wanted so much to return to what was "normal." I put myself through hell thinking that I had to get back to work, get back to doing all that my "type A" personality (bet ya all didn't know I was a "type a" LOL!) had been able to do prior to sarcoidosis. And I was able to muscle my way through life for a very long time. The problem was that by pushing that hard- I was making myself even more unhealthy. Right now, you are living in fear of the unknown. Chronic illness puts us into the Five Stages of Grieving-- and Fear is the top of the list. The good news is that you don't have to stay there. To: Neurosarcoidosis Sent: Mon, March 1, 2010 11:00:25 PMSubject: Can you ever relax... The cellcept is kind of working - KIND OF... the opthal is happier with my eyes, my symptoms appear somewhat reduced...BUT i've got pain in my knee (new), and my heart has not stopped racing since I started and so tired... but according to the doctors its kind of working.But I can't relax, will it return? when will the next attack be? I was on imuran and it was KIND OF working. I stopped it and ended up in hospital for days in just a few weeks.When can you relax? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Tracie Thank You for yet another lesson. I have been struggling with the whole work thing and getting back to maybe 75 percent of the old me. However, that may not help me last longer. You changed my mind, and Im going to listen to my body. Subject: Re: Can you ever relax...To: Neurosarcoidosis Date: Monday, March 8, 2010, 7:58 PM Rach, I know that when I first started this journey I wanted so much to return to what was "normal." I put myself through hell thinking that I had to get back to work, get back to doing all that my "type A" personality (bet ya all didn't know I was a "type a" LOL!) had been able to do prior to sarcoidosis. And I was able to muscle my way through life for a very long time. The problem was that by pushing that hard- I was making myself even more unhealthy. Right now, you are living in fear of the unknown. Chronic illness puts us into the Five Stages of Grieving-- and Fear is the top of the list. The good news is that you don't have to stay there. From: rachyanne <stiks11 (AT) hotmail (DOT) com>To: Neurosarcoidosis@ yahoogroups. comSent: Mon, March 1, 2010 11:00:25 PMSubject: Can you ever relax... The cellcept is kind of working - KIND OF... the opthal is happier with my eyes, my symptoms appear somewhat reduced...BUT i've got pain in my knee (new), and my heart has not stopped racing since I started and so tired... but according to the doctors its kind of working.But I can't relax, will it return? when will the next attack be? I was on imuran and it was KIND OF working. I stopped it and ended up in hospital for days in just a few weeks.When can you relax? Quote Link to comment Share on other sites More sharing options...
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