Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 In a message dated 11/15/2005 4:08:24 PM Pacific Standard Time, novemberfable@... writes: > It's nice that they are close > in age and treatment stages so that we can kind of compare notes. Yes, that would be nice. I have a real close up of both feet, right after birth, I can send that if you'd like. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 DeeDee, I just took a look at Isabella's feet at the first casting, and even though it's hard to tell exactly from the photos, her feet look a lot like Marcus's left foot. It's just hard to tell for sure because the photo angles are a bit different. It's nice that they are close in age and treatment stages so that we can kind of compare notes. > > > > > > > > > > She got her first set of casts on today. She was NOT happy about > it. My son & > > > dil did better with it then I thought they would. I think they > really > > > prepared themself well. Isabella fussed most of the way home, > they told us to > > > prepare for a fussy few days. > > > > > > > DeeDee > > California > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 I would love to see them if you don't mind. > > In a message dated 11/15/2005 4:08:24 PM Pacific Standard Time, > novemberfable@y... writes: > > It's nice that they are close > > in age and treatment stages so that we can kind of compare notes. > Yes, that would be nice. I have a real close up of both feet, right after > birth, I can send that if you'd like. > > DeeDee > California > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Your son and your family are in our prayers. Michele Frye wrote: Please know that you have our prayers. - Michele 5/18/02 and Maddie 9/6/05 bcf dee15mom@... wrote: Gets her 3rd casting tomorrow. I can't wait to see her feet ! I will let you know how it all goes. My 21 yr old son who has spina bifida is at UCD med center and is very sick. He had surgery yesterday and will have another on Thursday. We could really use some prayers. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 In a message dated 11/30/2005 5:58:05 AM Pacific Standard Time, mdfrye1@... writes: > > Please know that you have our prayers. Thank you DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 In a message dated 11/30/2005 8:54:24 AM Pacific Standard Time, jenhundley@... writes: > > > Your son and your family are in our prayers. Thank you so much DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 In a message dated 11/30/2005 2:51:01 PM Pacific Standard Time, bruinbelle29@... writes: > > > I will keep your son and your entire family in our prayers. Thank you DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 In a message dated 12/23/2005 10:21:14 AM Pacific Standard Time, mlnelson76@... writes: > > > What kind of surgery? Hope she's doing well! Tenotomy DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 What kind of surgery? Hope she's doing well! Marcia Isabella She had her surgery yesterday. They were suppose to do it on the 29th, but called and said they could do it, so we went for it. She was really fussy after. I haven't talked to the kids today yet, so not sure how she did in the night. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 In a message dated 12/23/2005 1:39:52 PM Pacific Standard Time, mlnelson76@... writes: > Guess that means she'll be cast free in a few weeks! Woohoo! Yes and we can't wait !! DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Oh, o.k., that's what I thought, but wanted to make sure it wasn't anything more, for her sake Guess that means she'll be cast free in a few weeks! Woohoo! Marcia Re: Isabella In a message dated 12/23/2005 10:21:14 AM Pacific Standard Time, mlnelson76@... writes: > > > What kind of surgery? Hope she's doing well! Tenotomy DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 She has done really well since the surgery. Just that first day was hard. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 I'm sorry to hear that she was uncomfortable. It could have been the discomfort of having her feet turned out so much. Hopefully some Tylenol helped to settle her down a bit. The good news is that since she had the tenotomy a week early, she will be out of the casts a week sooner. > > She had her surgery yesterday. They were suppose to do it on the 29th, but > called and said they could do it, so we went for it. She was really fussy after. > I haven't talked to the kids today yet, so not sure how she did in the night. > > > DeeDee > California > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 She got her casts off today, and her new brace ! She is NOT liking it much. She has cried most of the day since. I will send pictures in a minute to the other list. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 In a message dated 1/14/2006 10:40:29 AM Pacific Standard Time, novemberfable@... writes: > But I'm sure she'll get used to them > soon. I am sure she will. It is just so hard to see her so upset. DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 In a message dated 1/17/2006 3:57:29 PM Pacific Standard Time, mj_remington@... writes: > > Those sores look so nasty, I would take her in to see her doc asap and Her appt is tomorrow morning at 8:30am. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 In a message dated 1/17/2006 3:57:29 PM Pacific Standard Time, mj_remington@... writes: > > Really hope that she is feelin better soon! Thank you. We gave her motrin once we realized how they looked. so she much better now. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 In a message dated 1/17/2006 4:10:29 PM Pacific Standard Time, mdfrye1@... writes: > > It sure looks infected to me I asked a wound nurse who was her seeing Trevor, and she said they looked like pressure sores, and one might be infected. She will see the doctor in the morning. We did try calling our peds doc, but he was not in today. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Hi Dee, Saw those pics and wow, poor lil Isabella! When Grace got a couple of sores from outgrowing her last set of casts she was already on a mild daily anitiotic (for her kidney issues) so her doc didn't perscribe her one but if she wasn't on that anitibiotic, he probably would have just to be sure there was no infection. Those sores look so nasty, I would take her in to see her doc asap and also ask him about pain meds. Dr. Pirani told us to give Grace a dose of Tylenol after she developed sores (when I gave him the frantic call on his cell)- her doc also oked it (she was just 2 mos old but was also a big baby as Isabella looks to be) and it calmed her right down. Really hope that she is feelin better soon! & Grace > > I think he heals are infected. Can someone look at the pictures ? > > DeeDee > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 It sure looks infected to me. Maddie had the same problem with the Markells. Does she have a temp? Is the area around it hot? Maddie's sore deveolped into a staph infection. You might want to have her see her ortho or pediatrician tomorrow to treat the infection early. While you wait, cushion it with gauze and put some bacitracin on it. It looks so sore. Poor baby. On a side note, maddie moved into the s last week, and she's had no problems, no pressure sores, not even red marks. Hope she feels better soon. Keep us posted. You are such a great grandmother to keep on top of the cf. She's very lucky to have you. - michele emily 5/18/02 and maddie bcf mitchells 23/7 dee15mom@... wrote: I think he heals are infected. Can someone look at the pictures ? DeeDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 DeeDee, I'm coming in a little late on this, I know you've already gotten lots of posts, and I haven't read what everyone has said yet, but I saw the pictures of Isabella's heels and wanted to get this to you quickly. These sores are bad, my son Sammy's were just like this so this is from my experience; first, I doubt that the sore is infected, I'm no doctor but usually an infection would take a bit of time to show up. Sammy had one sore that was really pussy looking like that, Dr. Dobbs told me that that is just the skin trying to heal itself. Although I would certainly look for signs of fever or redness spreading from around the wound, skin around it would feel hot. You should definitely ask the doc about this tomorrow but I am not one to do antibiotics unless really needed. In our case, his sores were quite deep, as Isabella's looked to be, especially in the first picture. Dr. Dobbs chose to let the heels heal for 10 days open - he would have re-cast if necessary (we were extremely lucky in that Sammy never lost correction during this time). We put neosporin on the sores and covered them with bandaids and put on socks at night, this helped cover and pad just a little since he was sleeping on his back with his heels resting on the mattress. During the day we tried to keep them open to the air as much as possible, kept the house extra warm so he wouldn't freeze his tootsies. When we needed to put something on during the day we used gauze, taped loosely to allow air to still get to the wound, and used loose knit booties or big socks. The next thing, which I'm sure Kori is already helping you with is figuring out what caused this and how to make sure she will be okay when she is healed and it is time to try again. You said you thought it was the shoes slipping, do you think it was user error or do you think the shoes don't fit her correctly? Let me know if you haven't already gone through all of this part with Kori and I'll be glad to help. I hope this helps a bit and if there's anything I can do, or if you have any questions I hope I can help. > > In a message dated 1/17/2006 4:10:29 PM Pacific Standard Time, > mdfrye1@y... writes: > > > > It sure looks infected to me > I asked a wound nurse who was her seeing Trevor, and she said they looked > like pressure sores, and one might be infected. She will see the doctor in the > morning. We did try calling our peds doc, but he was not in today. > > > DeeDee > California > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 In a message dated 1/18/2006 9:08:11 AM Pacific Standard Time, novemberfable@... writes: > do you remember the sore Marcus got on the top of his foot > from the first cast? I Yes, I do remember that. I sure hope these heal fast for Isabella. DeeDee California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 You are such a wonderful Grandma, DeeDee. I know your son and DIL are so blessed to have you in their lives. All the best to little Isabella, Carol and Re: Re: Isabella Thank you so much for thre reply. I believe it was caused by not putting them on properly. My son & dil are at Shriners right now seeing the doctor. I am waiting sooo patiently for a call. I did print off the info on the website for my dil, and she read it last night. I will post as soon as I hear what happen at the clinic. DeeDee California Quote Link to comment Share on other sites More sharing options...
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