Re: Re: About me and the family

[Guest guest]

she has sent out the papers for me to fill out and ther release forms for his

other doctors. ( a doc that wants to see his records ) She said it could take

up to 8 weeks, but she said that she can put me on the hurry list so it might be

sooner.

Bri

wrote:

SO HAPPY FOR YOU GUYS Bri!! When will you be able to get Noah in to

see Dr. Dobbs, who from what I hear is one of the top Ponseti doctors

around!

& Grace

> Geeze Girl, you seriously need a group-hug. I'm so sorry to hear

all that is inflicting your family right now.

>

> If no one said it already, I'd be in touch with either Ponseti or

Dobbs. Dobbs works at a Shriner's and would be free for you to see.

The child obviously needs experienced help to remidy his situation

and the doc you have there sounds like a real oaf.

>

> God bless you now,

> shawnee

> About me and the family

>

>

> Hi my name is Bronson. I have a 4 year old son who was

born

> with left club foot.

> Let me start from the begging so that you can understand more

about

> him. I went through premature labor with him many times and was

> flown to another city twice. From there on the 2 doctors had 2

> different due dates. By the time he was born (had to be induced

due

> to preaclampsia) (sp) there were signs he had been in there to

long.

> ( over cooked ) is what they called it. The first day of his life

> the doctors started taking care of the more important problems

that

> he had. On day 2 they slapped a cast on his foot and told me what

> doctor to see about his foot. I have never heard of clubfoot

before

> my son was born. While dealing with all his other problems we

would

> go to this new doctor and have him take change the cast, then he

> would send us on our way. On my son's 13th day of life we found

out

> that my husband had Hodgkins lymphoma. So that was more doctors

to

> get and more on my plate. After about 3 months of my son seeing

this

> doctor my mommy notions kicked in and told me that for 600

dollars a

> visit my son's foot was not getting anybetter. I looked into

another

> doctor and found one 3 hours out of town. We soon had Noah's

records

> sent to him and he called us to get in right away. We found out

that

> his old doctor did not do anything ( like I thought ) but take

our

> money. So we were back to square one. We had to start all over

> again. His new doctor said he worked under Dr.P before he moved

> here and that we were in good hands. Noah was also sent to a

nerou

> doctor to check out his muscles. He had to see this doctor for a

> month. He also had to therapists he saw. Mike would come to the

> house once a week and Noah would see Sherry in the next town over

2

> times a month. Therapy was hard on him. It got to the point if he

> saw them the tears would start. He didn't roll over, or sit up on

> his own till he was about 7 months old. I think that was due to

the

> casts and the dbb. He didn't walk till he was almost 3. He had

> surgery on his foot when he was almost 2. ( I think ) He didn't

wear

> the dbb as long as other kids I have read about and his afo's

were

> takin from him 2 months after he got them.My husbands cancer was

> gettin worse and the doctors said there was no more they could do

> for him and my son's doctor moved out of state. So we packed up

the

> house and moved to Kansas City ks. ( where the in-laws are ) I

found

> another doctor for Noah and already am not likeing him. He told

me

> not to bother with getting his records from his other doctors,

and

> he has only seen my son twice since we moved here. I am not sure

if

> he dose the ponseti method yet. I am not even sure if his old

doctor

> did. I am confussed about all that. My son's foot is starting to

> turn in agin so bad that he is walking on his toenails. He is

always

> in pain and screams for hours if his foot get's bumped. I am

looking

> for a new doctor right now. He dose go see a therapist on the

19th.

> I will let ya'll know how that gose. So that is my story, and

that

> is why I am here. I do not know anyone here in this big city and

> don't have the time to go out and make friends. My life for now

is

> work and taking care of my husband and 2 sons. Like I said

before I

> am really confussed about the methods the doctor used on my son (

> from what I have read here ) and don't think it was the ponseti

> method, or maybe he did use it but did not follow through. I

looked

> online for other cf people and found this group. I am so glad I

did.

> I hope I can learn more for my son and make some friends as well.

> All I want is for my son to run with the other boys, without any

> problems!!

>

> Kansas City mom

> Bri son Noah lcf.

>

> P.s sorry it took so long. Been pretty busy here.

>

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