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been away for months...

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Just wanted to reconnect. I joined late August when I finally was dx'd after

nearly dying from a torn artery in my brain. So many emotions run through your

body throughout the day it can be exhausting. Not even counting the physical

aspects.

Somehow, I guess I thought that after finally getting a correct diagnosis, I

would finally get help, be cured and go back to my life. Or at least be stable.

Life has been anything but and I feel like I have failed.

I lost my marriage, career, my house, and am raising children alone with no

other living family. Friendships fell too.

I did finally get my brain sort of back on track but.... the rest of my body

has now fallen apart. This started for me as a sudden stroke 2 years ago. I

never realized what was in store for me after that.

Suddenly, my body is in unbearable pain and my lungs look like swiss cheese. Oh

god, my vision! I lost my drivers license too.

I am so sorry for complaining, I guess I just finally accepted that this disease

has consumed me and I need help. First, I am on blood thinners so NSAIDS are

contraindicated. Narcotics make me vomit!

Can anyone make a suggestion on what to take for pain? It is excrutiating right

now. So bad at night I cannot sleep. I have never experienced this before and

this acute flare is going on over 1 month now.

I spend all the energy I have these days on just surviving financially, taking

care of my children and keeping a roof over our heads.

Thank you all for listening and I look froward to participating more.

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