How many kids have significantly recovered...

[Guest guest]

I am just curious as to how many in this group have children who have

significantly recovered after implementing a gfcf diet, as my son has??

How many have had a diagnoses of PDD or whatever, and have been told their child

no longer fits the original diagnosis??..I am just curious......Thanks

[Guest guest]

no longer meets the criteria. In all fairness, we do other

interventions. However, if he eats dairy or gluten, those interventions are

worthless.

Wendi

How many kids have significantly recovered...

> I am just curious as to how many in this group have children who have

significantly recovered after implementing a gfcf diet, as my son

has?? How many have had a diagnoses of PDD or whatever, and have been told

their child no longer fits the original diagnosis??..I am just

curious......Thanks

>

>

>

>

>

[Guest guest]

Since implementing the diet we cured our sleeping problems and my son was

much calmer and focused but far from recovered.

Leslee

[Guest guest]

Just putting my two sense in. My son was diagnoised two years ago

PDD/NOS(meets dsm4 criterea for autistic like symptoms), prior

diagnosis were adhd, odd, and anxiety. He was hospitalzized three

times, the last two times were 5 then six weeks at a childrens

psychiatric hospital who agreed with the school and myself that his

severe rage attacks were endangering himself and others and beyond

control. I met with the school two years ago and gave the cse

chairman permission to begin looking for and permanent " placement "

away from home. DSS said if he hurt his older sister one more time

they would remove her- he used to screach in her ear temporarily

damaging it or impulsively throw things at her. I insisted dss stay

in the picture scince he was four to protect our family from

misconceptions reguarding his behaviors. When I read about this diet

in parents magazine, like that mom I really had nothing left to lose

and everything to gain, though skeptical, we started with replacing

milk with rice dream, and cereal with rice crispies! (We've come a

long way on the diet scince then, neither of those products are gfcf,

but significantly reduced the gfcf in his diet) On day three I woke

up terrified because I didnt hear the ritual hoots and howls during

the pre-ritilin wee-hours of the morning! My goal for my son the last

7 years of his eight year life have been to keep him alive- not

crawling out 2nd story window, not diving over snow banks into

trafic, not wandering away at our local state lake, not operating the

fork lift at the local grocery store, not cracking open the batteries

to get the energy out, not tasting the plugged in ac adapter to see

what energy taste like(appparently it brings tears to ones eyes!!)Not

diving out of his crib or high chair or over two baby gates on top of

each other or tap dancing on top of a five draw dresser in the first

year of his life. Okay, so you get a sense of the terror I might

feel when waking up at almost 9 to silence instead of 5! I flew out

of my room and found him quietly playing with legos he had previously

banished to shelves after assembling them just ONCE as/per

INSTRUCTIONS 'cause " your not supposed to take anything apart or do

anything besides what the instructions say! " Before he understood

about instructions he used to build incredible things. So here he

was with all those rigidly assembled legos dissassembled and

scattered on the floor being reassembled " into a prison escape ship

that is going to go through a black hole to get off the prison

planet " It was no less than 3 feet long with atleast 20 guys lined on

it! I was speachless. I said Jay look what you did! He said " I

remember how to play this way! " Scince then we have had three

different cse chairperson, and two schools and no more hospitals. He

became intolerant to corn this year, and the behaviors resurfaced in

full force for a month this winter, I " tweeeked " the diet used this

sight daily to decompress, and then " tweeked " the school because

scince hes been on the diet and working with people who never knew

him before, they think his pdd/nos behavoirs are just him avoiding

things hes too lazy to work on, kinda ODD, they often miss the pdd

issues that set him off because they can't really see the pdd

regularly and arn't looking for classic autistic instigators-noises

large crowds, physical touch, transitions!!!!! Best of all the

school officials look at me like I am an overreactive looney and

can't even concieve of instituionalizeing a child like Jay! I just

smile inside, they have no idea how hard the road we have travelled

has been and how wonderful it is that they can't really be sure my

son is PDD when once there was no question, his old school wouldn't

even allow him back in the building after being released from the

hospital two years ago, he was home for two months when I started the

diet. The hospital also put him on a low dose of risperidal,

maitained the highest dose of ritilin, serzone, buspar and zyrtec. I

have added a rice based digestive enzyme.

One restraint this summer, and then due to eating cold cuts

inschool! He's not supposed to eat anything I havent provided. I

found out the hard way with corn that if behaviors resurface one of

two things is probably happening, either there is a hidden source or

he's become intolerant to a new food source. DEvelopmentally scince

the diet, I have gotten daily hugs and kisses(new), he's reading

(also new) at age 10 he just started playing dress up for the first

time, with my neice- one year younger but with a few delays herself

he's catiching up slowly but still I have been able to peg most of

his developmental delays almost exactly to the developmental age by

deviding his biological age in half. He's ten. At what age are

children playing dress up? Kindergarten or younger! He is just

beinging to identify basic emotions with in himself - again 4-5 year

old stuff. However, he can identify more advanced emotions in other,

he said he could tell the baby lion cub at the travelling zoo

was " depressed " . His favorite toys- matchbox cars and pokeman

cards. Neither of which can he entertain himself alone with. His

clinical and scientific language and comprehension are beyond his age

level and his artistic skills are incredible. He's a great and

natural river-dancer but for my eyes only. No public displays of

talent. I am not even allowed to write down his brilliant insights or

he's promsied me he'll stop talking and I believe him. He is almost

completely nonverbal and instantly aggitated if you ask him how he

feels or did you like summer school. But if you ask what was you

favorite thing at summer school, he can clinically analyze it,

catagorize it and answer you making eye contact(also new)! I know

lots of sight members know our story but for those who are new and

curious wheather the diet works or not well I am sure it does!

[Guest guest]

WOW, I always enjoy to read others stories and then thank God how

lucky I have it. At times I feel like I am the only mother with an

Autistic child. Our son is not bad at all most the time thanks to

the diet. I love this site also for the encouragement and help it

gives. THANK YOU ALL AND GOD BLESS US ALL!

Cindy a mother to Gavin 3 with Autism

> Just putting my two sense in. My son was diagnoised two years ago

> PDD/NOS(meets dsm4 criterea for autistic like symptoms), prior

> diagnosis were adhd, odd, and anxiety. He was hospitalzized three

> times, the last two times were 5 then six weeks at a childrens

> psychiatric hospital who agreed with the school and myself that his

> severe rage attacks were endangering himself and others and beyond

> control. I met with the school two years ago and gave the cse

> chairman permission to begin looking for and permanent " placement "

> away from home. DSS said if he hurt his older sister one more time

> they would remove her- he used to screach in her ear temporarily

> damaging it or impulsively throw things at her. I insisted dss stay

> in the picture scince he was four to protect our family from

> misconceptions reguarding his behaviors. When I read about this

diet

> in parents magazine, like that mom I really had nothing left to

lose

> and everything to gain, though skeptical, we started with replacing

> milk with rice dream, and cereal with rice crispies! (We've come a

> long way on the diet scince then, neither of those products are

gfcf,

> but significantly reduced the gfcf in his diet) On day three I woke

> up terrified because I didnt hear the ritual hoots and howls during

> the pre-ritilin wee-hours of the morning! My goal for my son the

last

> 7 years of his eight year life have been to keep him alive- not

> crawling out 2nd story window, not diving over snow banks into

> trafic, not wandering away at our local state lake, not operating

the

> fork lift at the local grocery store, not cracking open the

batteries

> to get the energy out, not tasting the plugged in ac adapter to see

> what energy taste like(appparently it brings tears to ones eyes!!)

Not

> diving out of his crib or high chair or over two baby gates on top

of

> each other or tap dancing on top of a five draw dresser in the

first

> year of his life. Okay, so you get a sense of the terror I might

> feel when waking up at almost 9 to silence instead of 5! I flew out

> of my room and found him quietly playing with legos he had

previously

> banished to shelves after assembling them just ONCE as/per

> INSTRUCTIONS 'cause " your not supposed to take anything apart or

do

> anything besides what the instructions say! " Before he understood

> about instructions he used to build incredible things. So here he

> was with all those rigidly assembled legos dissassembled and

> scattered on the floor being reassembled " into a prison escape ship

> that is going to go through a black hole to get off the prison

> planet " It was no less than 3 feet long with atleast 20 guys lined

on

> it! I was speachless. I said Jay look what you did! He said " I

> remember how to play this way! " Scince then we have had three

> different cse chairperson, and two schools and no more hospitals.

He

> became intolerant to corn this year, and the behaviors resurfaced

in

> full force for a month this winter, I " tweeeked " the diet used

this

> sight daily to decompress, and then " tweeked " the school because

> scince hes been on the diet and working with people who never knew

> him before, they think his pdd/nos behavoirs are just him avoiding

> things hes too lazy to work on, kinda ODD, they often miss the pdd

> issues that set him off because they can't really see the pdd

> regularly and arn't looking for classic autistic instigators-noises

> large crowds, physical touch, transitions!!!!! Best of all the

> school officials look at me like I am an overreactive looney and

> can't even concieve of instituionalizeing a child like Jay! I just

> smile inside, they have no idea how hard the road we have travelled

> has been and how wonderful it is that they can't really be sure my

> son is PDD when once there was no question, his old school wouldn't

> even allow him back in the building after being released from the

> hospital two years ago, he was home for two months when I started

the

> diet. The hospital also put him on a low dose of risperidal,

> maitained the highest dose of ritilin, serzone, buspar and zyrtec.

I

> have added a rice based digestive enzyme.

> One restraint this summer, and then due to eating cold cuts

> inschool! He's not supposed to eat anything I havent provided. I

> found out the hard way with corn that if behaviors resurface one of

> two things is probably happening, either there is a hidden source

or

> he's become intolerant to a new food source. DEvelopmentally

scince

> the diet, I have gotten daily hugs and kisses(new), he's reading

> (also new) at age 10 he just started playing dress up for the first

> time, with my neice- one year younger but with a few delays herself

> he's catiching up slowly but still I have been able to peg most of

> his developmental delays almost exactly to the developmental age

by

> deviding his biological age in half. He's ten. At what age are

> children playing dress up? Kindergarten or younger! He is just

> beinging to identify basic emotions with in himself - again 4-5

year

> old stuff. However, he can identify more advanced emotions in

other,

> he said he could tell the baby lion cub at the travelling zoo

> was " depressed " . His favorite toys- matchbox cars and pokeman

> cards. Neither of which can he entertain himself alone with. His

> clinical and scientific language and comprehension are beyond his

age

> level and his artistic skills are incredible. He's a great and

> natural river-dancer but for my eyes only. No public displays of

> talent. I am not even allowed to write down his brilliant insights

or

> he's promsied me he'll stop talking and I believe him. He is

almost

> completely nonverbal and instantly aggitated if you ask him how he

> feels or did you like summer school. But if you ask what was you

> favorite thing at summer school, he can clinically analyze it,

> catagorize it and answer you making eye contact(also new)! I know

> lots of sight members know our story but for those who are new and

> curious wheather the diet works or not well I am sure it does!