Re: RE: Wont keep shoes on

January 28, 2006

Are you seeing Dr. Albright in Orlando, FL? Asking because we see Dr.

Herrera-Soto there too. I've seen a few babies recently who are in the Markells

and in my opinion, they are huge on them, so if that's the case it's no wonder

they won't stay on. If you send pics send one of him in the shoes too. That may

be the problem.

Marcia

RE: Wont keep shoes on

ok **phew** here's the questions and answers... hope it helps..

How old is your son? jacob is 6 months old.

Who is casting him? dr albright-trained (supposedly) by dr ponseti himself.

Did he have a tenotomy? yes

Can you tell us how they did that? snipped the heel cord (in office) then

recasted for three weeks

How many casts has he had so far? 7.. the 5th for 3 weeks, the last two after

the reoccurance.

At what age did he start treatment? he started around 3 months

Were the casts changed weekly? yes til the fifth.

Are the toes on the casts kicked out to 70 degrees? they were, yes.

Were the toes on his current shoes adjusted to kick out at 70 degrees? only

the affected foot. the other is at 45.

Was the bar on the FAB set at shoulder width? pretty much, yes.

im afraid to ask the doctor to restart the casting a third time. i dont want

him to call like, DCF on me and tell them im not taking care of my child

properly. as soon as i can get my digital camera working, i can send a pic of

his foot currently.

January 29, 2006

,

All in all it sounds like things have been done right - but that leaves the big

gaping question of why won't the shoe fit properly??? In my totally

non-professional opinion I'm still leaning towards a lack of dorsiflexion

because this seems to be a problem area for many less experienced doctors.

curious, why did you wait till 3 months old to start the treatment? Not that it

should matter, lots of babies have started later than that with excellent

progress.

Anyway - don't worry about things like DCF - easy for me to say, right? Those

people can be like Nazi's but I dont think this is an area you really need to

worry about. It's obvious you are TRYING to get your child treated. Used to

scare me pretty bad too though - my oldest who went through inferior cf

treatment used to fall and always had black eyes cuz he couldn't walk on his

crooked feet and would bang his head on tables and stuff.

Again, is getting a 2nd opinion an option? flying out to Iowa or St. Louis or

somewhere to see a more experienced Ponseti doctor? Depending on where you live

but there's doctors out there who can help.

Maybe the clubbed foot is leaning towards a complex/atypical case, and few

doctors really know how to handle that unless you go see one with major

experience.

Hey everyone else on here, help me out!

We'll keep trying to help you - but ya, pictures would be nice and could

also be sent to Iowa for reference. OH - have you found Kori's tip sheet for

using a FAB? It's full of advice for these things too and might help you start

to narrow down the issue. Look in the files/links.

s.