Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 hello, hazel here. got ollie's appointment through for wednesday to see his doctor and hopefully to have his boots and bar put to be wore at nights only. is there any questions i need to ask and is there anythink i should make sure the doc does to check his feet?? being new to all this is making me a little nervous to whether ollie is getting the ponsetti method of treating as i don't know anyone else who has used him before. and i can't definately remember him using the term ponsetti method, apart from only once when he was showing his registra what he was doing and why. and he said something about it coming from america. since i've read from cover to cover the ponsetti management leaflet and book, and definatly looks like the treatment ollie has reseived so far. i feel really stupid asking these questions. i feel like i should know whats happening to my son but everything seems like a blurr. especially as it was a shock he had talipes. but i'm so glad i've found sites like this one. i've learnt so much from you guys, it's unbeliverable. thanks for any replies in advance. haz of lincoln, england. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Hi Hazel, Forgive me for not remembering Ollie's story, but are you just about done with the 23/7 phase? If so, don't hope for (or accept) reduction to nights only. While it may sound great, it has proven to be a major hassle for parents because it seems that babies who have been previously at complete happiness in the FAB stop tolerating the brace almost completely. Meaning you'll likely have problem keeping him asleep because he's then used to being free and suddenly he's got to sleep with the darn things on... babies aren't stupid lol! Plus, this drastic of a reduction is not according to the Ponseti Method, the bracing should continue long hours only reducing gradually over the next year or so. This not only greatly reduces the chances of relapse, but it is essential if you are going to brace the 3-5y as per the Method without fighting it every night. Those of us with older children see how this is so true as we put our shoes on children every night and get no complaints other than the usual (occasional for us actually) 2yo *i don't want to!* that they give us for everything lol. My daughter is nearly 3yo and I can't even put her to bed at night without the brace, if I ever do we have issues and mama then asks if she wants her shoes and she says yes. She's out like a light when they're on, and seriously can't fall asleep in her own bed without them lol. Nights only should only happen at or around 1yo or whenever the child starts walking (on average, 12-16mo). Till then, you should keep him in his shoes long hours. The standard reduction schedule goes something like this: First 3mo - 23/7 after that, 18-20hr/d then, 16-18 then 14-16 and then finally 12-14 at or around walking and for long term bracing, Iowa has told me 10-12hr/d (till 5). Not sure when to go down to the 10-12 but I'm starting to feel a little more comfortable with that now that Darbi is nearly 3. I might try it someday lol... but the 12-14 is still very easy for us so I guess I'm at 10-14 technically. It seems to work out that each reduction will happen every 3-4mo's if casting is done as a newborn making the 12-14 fall into place at or around walking. The schedule isn't set in stone and some older babies may slide through it much faster than every 3-4mo's because of their age but for general purposes, it's best to consider this as a slightly loose guide to brace hours reduction. Other than that, if you're seeing good stuff and everything matches up you've probably got a good doc there for Ollie. You know what to look for, and if anything is amiss you'll catch it because you're a great mama! I think it's fantastic that you've read the whole Global Help booklet... I honestly don't remember if I've ever sat down and read it all myself (just bits and pieces lol). Let us know how it goes at his appointment, and if you do get reduced I would suggest that you politely say " no thank you, we will be reducing gradually as per the Ponseti Method " . If they balk, it's not like there's brace police out there hehe... You can do whatever you wish in your own home you know :~} In the end, Ollie will show them that babies CAN wear this brace long hours and his feet will be great because of it. Hopefully those of us who do this with our docs who modify the bracing like this will see how good it is for the little ones and their feet... and stop thinking that nights only is easier/better than what is necessary. They're not doing us any favors by reducing like this and I really hope this trend stops soon. It's tiring just reading about all the parents who suddenly have issues with tolerance as a result of this... would be even worse having to live it! And hey, you'll probably get some sleep so who can argue with that? Kori At 11:51 AM 1/28/2006, you wrote: >hello, hazel here. > >got ollie's appointment through for wednesday to see his doctor and >hopefully to have his boots and bar put to be wore at nights only. > >is there any questions i need to ask and is there anythink i should >make sure the doc does to check his feet?? > >being new to all this is making me a little nervous to whether ollie >is getting the ponsetti method of treating as i don't know anyone >else who has used him before. and i can't definately remember him >using the term ponsetti method, apart from only once when he was >showing his registra what he was doing and why. and he said something >about it coming from america. since i've read from cover to cover the >ponsetti management leaflet and book, and definatly looks like the >treatment ollie has reseived so far. > >i feel really stupid asking these questions. i feel like i should >know whats happening to my son but everything seems like a blurr. >especially as it was a shock he had talipes. but i'm so glad i've >found sites like this one. i've learnt so much from you guys, it's >unbeliverable. > >thanks for any replies in advance. > >haz of lincoln, england. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 Hi Kori I just want to thank you for this email. My son's 3 months full time schedule with the brace will be ending soon and I have been told that to put it on for night and naps. Now that I have read this, I will be following the schedule recommended by Ponseti. My son is happy enough in his brace so I don't want to ruin it. Thanks again for the info. Melbourne, Australia > >hello, hazel here. > > > >got ollie's appointment through for wednesday to see his doctor and > >hopefully to have his boots and bar put to be wore at nights only. > > > >is there any questions i need to ask and is there anythink i should > >make sure the doc does to check his feet?? > > > >being new to all this is making me a little nervous to whether ollie > >is getting the ponsetti method of treating as i don't know anyone > >else who has used him before. and i can't definately remember him > >using the term ponsetti method, apart from only once when he was > >showing his registra what he was doing and why. and he said something > >about it coming from america. since i've read from cover to cover the > >ponsetti management leaflet and book, and definatly looks like the > >treatment ollie has reseived so far. > > > >i feel really stupid asking these questions. i feel like i should > >know whats happening to my son but everything seems like a blurr. > >especially as it was a shock he had talipes. but i'm so glad i've > >found sites like this one. i've learnt so much from you guys, it's > >unbeliverable. > > > >thanks for any replies in advance. > > > >haz of lincoln, england. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 thanks kori, will keep this in mind when i go on wednesday. it makes sense what you've said. he's such a good baby, smiles if you just look at him. so i don't want to lose that. hehe. you've given me some more questions for the doc now (that makes the count up to over 1000's) :-D i've also been given the name dr naomi davies so if i get no luck i may just have to drop her a line. thanks alex for your replie, just proves EVERY question asked is valid and may be usefull to other's. the thing is i have hundreds/thousands/millions. once one is answered several more come to me. :-) will report back. haz of lincoln, uk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 I just wanted to add to all that Kori said here. I think part of the big confusion is when doctors say nights and naps for a six month old, there is a big difference between than and what nights and naps is for a 2 1/2 year old. A six month old might still be getting 16-18 hours of sleep a day, thus the doc recommending this schedule may feel he is being Ponseti compliant. I think though that the majority of people end up having their children do all the hours recommended in one stint, that is, if they've been told specifically 16-18 hours then they might do 7 p.m. to noon. I just wish there was a way that we could get this through to these doctors that would make it so much easier on the parents if they would give a number of hours with some sort of reduction schedule - we follow directions very well, but when just given some arbitrary " nights and naps " generalization nobody really knows what that means. Okay, off my soapbox now... P.S. Kori, do you have something about this in the tips document, I can't remember? > > >hello, hazel here. > > > > > >got ollie's appointment through for wednesday to see his doctor and > > >hopefully to have his boots and bar put to be wore at nights only. > > > > > >is there any questions i need to ask and is there anythink i should > > >make sure the doc does to check his feet?? > > > > > >being new to all this is making me a little nervous to whether ollie > > >is getting the ponsetti method of treating as i don't know anyone > > >else who has used him before. and i can't definately remember him > > >using the term ponsetti method, apart from only once when he was > > >showing his registra what he was doing and why. and he said something > > >about it coming from america. since i've read from cover to cover the > > >ponsetti management leaflet and book, and definatly looks like the > > >treatment ollie has reseived so far. > > > > > >i feel really stupid asking these questions. i feel like i should > > >know whats happening to my son but everything seems like a blurr. > > >especially as it was a shock he had talipes. but i'm so glad i've > > >found sites like this one. i've learnt so much from you guys, it's > > >unbeliverable. > > > > > >thanks for any replies in advance. > > > > > >haz of lincoln, england. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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