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hello, hazel here.

got ollie's appointment through for wednesday to see his doctor and

hopefully to have his boots and bar put to be wore at nights only.

is there any questions i need to ask and is there anythink i should

make sure the doc does to check his feet??

being new to all this is making me a little nervous to whether ollie

is getting the ponsetti method of treating as i don't know anyone

else who has used him before. and i can't definately remember him

using the term ponsetti method, apart from only once when he was

showing his registra what he was doing and why. and he said something

about it coming from america. since i've read from cover to cover the

ponsetti management leaflet and book, and definatly looks like the

treatment ollie has reseived so far.

i feel really stupid asking these questions. i feel like i should

know whats happening to my son but everything seems like a blurr.

especially as it was a shock he had talipes. but i'm so glad i've

found sites like this one. i've learnt so much from you guys, it's

unbeliverable.

thanks for any replies in advance.

haz of lincoln, england.

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Hi Hazel,

Forgive me for not remembering Ollie's story, but are you just about

done with the 23/7 phase? If so, don't hope for (or accept)

reduction to nights only. While it may sound great, it has proven to

be a major hassle for parents because it seems that babies who have

been previously at complete happiness in the FAB stop tolerating the

brace almost completely. Meaning you'll likely have problem keeping

him asleep because he's then used to being free and suddenly he's got

to sleep with the darn things on... babies aren't stupid lol! Plus,

this drastic of a reduction is not according to the Ponseti Method,

the bracing should continue long hours only reducing gradually over

the next year or so. This not only greatly reduces the chances of

relapse, but it is essential if you are going to brace the 3-5y as

per the Method without fighting it every night. Those of us with

older children see how this is so true as we put our shoes on

children every night and get no complaints other than the usual

(occasional for us actually) 2yo *i don't want to!* that they give us

for everything lol. My daughter is nearly 3yo and I can't even put

her to bed at night without the brace, if I ever do we have issues

and mama then asks if she wants her shoes and she says yes. She's

out like a light when they're on, and seriously can't fall asleep in

her own bed without them lol. Nights only should only happen at or

around 1yo or whenever the child starts walking (on average,

12-16mo). Till then, you should keep him in his shoes long hours.

The standard reduction schedule goes something like this:

First 3mo - 23/7

after that, 18-20hr/d

then, 16-18

then 14-16

and then finally 12-14 at or around walking and for long term

bracing, Iowa has told me 10-12hr/d (till 5). Not sure when to go

down to the 10-12 but I'm starting to feel a little more comfortable

with that now that Darbi is nearly 3. I might try it someday

lol... but the 12-14 is still very easy for us so I guess I'm at

10-14 technically.

It seems to work out that each reduction will happen every 3-4mo's if

casting is done as a newborn making the 12-14 fall into place at or

around walking. The schedule isn't set in stone and some older

babies may slide through it much faster than every 3-4mo's because of

their age but for general purposes, it's best to consider this as a

slightly loose guide to brace hours reduction.

Other than that, if you're seeing good stuff and everything matches

up you've probably got a good doc there for Ollie. You know what to

look for, and if anything is amiss you'll catch it because you're a

great mama! I think it's fantastic that you've read the whole Global

Help booklet... I honestly don't remember if I've ever sat down and

read it all myself (just bits and pieces lol).

Let us know how it goes at his appointment, and if you do get reduced

I would suggest that you politely say " no thank you, we will be

reducing gradually as per the Ponseti Method " . If they balk, it's

not like there's brace police out there hehe... You can do whatever

you wish in your own home you know :~} In the end, Ollie will show

them that babies CAN wear this brace long hours and his feet will be

great because of it. Hopefully those of us who do this with our docs

who modify the bracing like this will see how good it is for the

little ones and their feet... and stop thinking that nights only is

easier/better than what is necessary. They're not doing us any

favors by reducing like this and I really hope this trend stops

soon. It's tiring just reading about all the parents who suddenly

have issues with tolerance as a result of this... would be even

worse having to live it! And hey, you'll probably get some sleep so

who can argue with that?

Kori

At 11:51 AM 1/28/2006, you wrote:

>hello, hazel here.

>

>got ollie's appointment through for wednesday to see his doctor and

>hopefully to have his boots and bar put to be wore at nights only.

>

>is there any questions i need to ask and is there anythink i should

>make sure the doc does to check his feet??

>

>being new to all this is making me a little nervous to whether ollie

>is getting the ponsetti method of treating as i don't know anyone

>else who has used him before. and i can't definately remember him

>using the term ponsetti method, apart from only once when he was

>showing his registra what he was doing and why. and he said something

>about it coming from america. since i've read from cover to cover the

>ponsetti management leaflet and book, and definatly looks like the

>treatment ollie has reseived so far.

>

>i feel really stupid asking these questions. i feel like i should

>know whats happening to my son but everything seems like a blurr.

>especially as it was a shock he had talipes. but i'm so glad i've

>found sites like this one. i've learnt so much from you guys, it's

>unbeliverable.

>

>thanks for any replies in advance.

>

>haz of lincoln, england.

>

>

>

>

>

>

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Hi Kori

I just want to thank you for this email. My son's 3 months full time

schedule with the brace will be ending soon and I have been told that

to put it on for night and naps. Now that I have read this, I will be

following the schedule recommended by Ponseti. My son is happy enough

in his brace so I don't want to ruin it.

Thanks again for the info.

Melbourne, Australia

> >hello, hazel here.

> >

> >got ollie's appointment through for wednesday to see his doctor and

> >hopefully to have his boots and bar put to be wore at nights only.

> >

> >is there any questions i need to ask and is there anythink i should

> >make sure the doc does to check his feet??

> >

> >being new to all this is making me a little nervous to whether ollie

> >is getting the ponsetti method of treating as i don't know anyone

> >else who has used him before. and i can't definately remember him

> >using the term ponsetti method, apart from only once when he was

> >showing his registra what he was doing and why. and he said something

> >about it coming from america. since i've read from cover to cover the

> >ponsetti management leaflet and book, and definatly looks like the

> >treatment ollie has reseived so far.

> >

> >i feel really stupid asking these questions. i feel like i should

> >know whats happening to my son but everything seems like a blurr.

> >especially as it was a shock he had talipes. but i'm so glad i've

> >found sites like this one. i've learnt so much from you guys, it's

> >unbeliverable.

> >

> >thanks for any replies in advance.

> >

> >haz of lincoln, england.

> >

> >

> >

> >

> >

> >

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thanks kori,

will keep this in mind when i go on wednesday. it makes sense what

you've said. he's such a good baby, smiles if you just look at him. so

i don't want to lose that. hehe. you've given me some more questions

for the doc now (that makes the count up to over 1000's) :-D

i've also been given the name dr naomi davies so if i get no luck i

may just have to drop her a line.

thanks alex for your replie, just proves EVERY question asked is valid

and may be usefull to other's. the thing is i have

hundreds/thousands/millions. once one is answered several more come to

me. :-)

will report back.

haz of lincoln, uk.

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I just wanted to add to all that Kori said here. I think part of the

big confusion is when doctors say nights and naps for a six month old,

there is a big difference between than and what nights and naps is for

a 2 1/2 year old. A six month old might still be getting 16-18 hours

of sleep a day, thus the doc recommending this schedule may feel he is

being Ponseti compliant. I think though that the majority of people

end up having their children do all the hours recommended in one

stint, that is, if they've been told specifically 16-18 hours then

they might do 7 p.m. to noon. I just wish there was a way that we

could get this through to these doctors that would make it so much

easier on the parents if they would give a number of hours with some

sort of reduction schedule - we follow directions very well, but when

just given some arbitrary " nights and naps " generalization nobody

really knows what that means.

Okay, off my soapbox now...

P.S. Kori, do you have something about this in the tips document, I

can't remember?

> > >hello, hazel here.

> > >

> > >got ollie's appointment through for wednesday to see his doctor and

> > >hopefully to have his boots and bar put to be wore at nights only.

> > >

> > >is there any questions i need to ask and is there anythink i should

> > >make sure the doc does to check his feet??

> > >

> > >being new to all this is making me a little nervous to whether ollie

> > >is getting the ponsetti method of treating as i don't know anyone

> > >else who has used him before. and i can't definately remember him

> > >using the term ponsetti method, apart from only once when he was

> > >showing his registra what he was doing and why. and he said something

> > >about it coming from america. since i've read from cover to cover the

> > >ponsetti management leaflet and book, and definatly looks like the

> > >treatment ollie has reseived so far.

> > >

> > >i feel really stupid asking these questions. i feel like i should

> > >know whats happening to my son but everything seems like a blurr.

> > >especially as it was a shock he had talipes. but i'm so glad i've

> > >found sites like this one. i've learnt so much from you guys, it's

> > >unbeliverable.

> > >

> > >thanks for any replies in advance.

> > >

> > >haz of lincoln, england.

> > >

> > >

> > >

> > >

> > >

> > >

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