New Here

[Guest guest]

My name is Rach. I have recently been diagnosed with Neurosarcoidosis after five

years of being told I had a rare or atypical form of multiple sclerois. After a

gallium scan they found a lymph node to biospy and the diagnosis was confirmed.

I have various neurological problems but uveitis which has taken a fair bit of

my vision. Right now I'm trying to find as much information on neurosarc as I

can and try and make sense of it all.

[Guest guest]

Hi Rach! I have neurosarc only, so far. I had hydrocephaleus in 1997 and they had to put a shunt in my brain to releave the pressure. I wasn't diagnosed with sarc for several years and several neurologist. I'm on prednisone 15 mg a day and Cytoxin IV therapy. After 4-5 years my sarc doc & my chemo doc told me it's not working and they want to get me on Remicade but Medicare won't pay for it. My doctor gave me paperwork to beg the drug company for a reduced rate but I am so bad at handling paperwork I still need to apply for Medicaid even though I know I'm not eligible.

in 'tucky

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Subject: New HereTo: Neurosarcoidosis Date: Monday, September 28, 2009, 12:08 AM

My name is Rach. I have recently been diagnosed with Neurosarcoidosis after five years of being told I had a rare or atypical form of multiple sclerois. After a gallium scan they found a lymph node to biospy and the diagnosis was confirmed. I have various neurological problems but uveitis which has taken a fair bit of my vision. Right now I'm trying to find as much information on neurosarc as I can and try and make sense of it all.