Re: I need help!!!

July 30, 2001

check out the website - www.option.org

and read the book sonrise + get more information through the site.

there is hope out there. its about parents of an exremely severe

autistic and they developed their own program as the world didnot

offer hopea and their child has no signs anylonger after they worked

with him intensively + diet changes for 4 years. todya they are

spreading hope amongst parents of all special and unique children

worldwide and there is a lot of results that are coming out of the

same.

> Hello!! I have had my son on the gfcf diet for a while and he has

> been doing great. I don't get much help or information from my sons

> doctors. He has epilepsy but the doctors can't explain why. They

have

> told me his seizures stem from something they just don't know what.

I

> put my son on the gfcf diet and his seizures pretty much came to a

> halt. He developed at a pretty normal rate until his well check

when

> he was 17 months old. He had his shots DTaP, HIB,IPV, AND MMR. For

> days after his shots he was very irritable. Seven days after his

shots

> he had his first seizure. After that he completely changed. He

stopped

> talking(he is now three and still doesn't talk), He became

fascinated

> with ceiling fans and lights, became very distant, would no longer

let

> you cuddle him or play with him, it was like he was in his own

world.

> A friend of mine gave me an artical out of a magazine about the

gfcf

> diet and I tried it. I noticed immediate results. He is now much

more

> loving, and more aware. He has made alot of improvements. I get no

> help from his doctors they always act like I'm doing something

wrong

> by doing this diet with him ,like I'm depriving him of food. I tell

> them that he gets everything he needs. I get really aggrivated, I

> never get any answers. It's just like these doctors want to

medicate

> my son and send us on our way. His neurologist just put him on a

new

> medication that he is having a hard time with. Lamictal

(lamotrigine)

> plus he is still on Depakote as well. He has become very

irritable,

> wants to lay around and cry all day. It is driving me crazy.I call

his

> doctors and they act like it's ok for him to be going through this.

I

> am very frustrated. I don't know exactly what happened to my son to

> begin with .I'm told it was not his shots that caused this. But he

had

> normal development until he was 17 monts old. I'm trying to make a

> very long story short so I hope this is all comming across clearly.

> Has anyone experienced something like this? Does any one have a

child

> with seizures? Does anyone have a child who has has fewer seizures

> since starting the diet? Anyone have a child on Lamictal? Any

advice

> comments or suggestions would be greatly appriciated. I'm very

> confused. I feel helpless not being able to get any answers from

his

> doctors. I don't know if I'm not asking the doctors the proper

> questions or what. I thought people went to the doctor to get

answers,

> but I get none. I need whatever help I can get. I hope there is

> someone out there with some advice Please. Rebekah (Kienan's mom)

July 30, 2001

I am assuming you know of the yahoo group for support of vaccine

injured people?

http://groups.yahoo.com/group/vaccineinjuries (110 members)

This group is for people questioning/partially/no longer vaccinating:

http://groups.yahoo.com/group/Vaccinations (701 members)

I am very sorry for what your family has gone through and continues

to go through. The number of people who are being told that their

claims of vaccine injuries are in their imagination is uncountable.