highs and lows ....good news and bad news!!!

[Guest guest]

i saw dr. tavee on the 6th of august and she thinks along with the

neurosarcoidosis i also have hemidystonia. she video taped a few of my tremors .

if you do not know what it is its some mixed signal in the brain to the nerve

and muscles. not too sure yet. anyway she gave me a new medicine to try and i

had a severe side effect of it. i went by ambulance because i could not stop

having tremors. the good news is that my sarcoidosis is calming down. still have

lung involvement so i have to have remicade for another year in cleveland which

is not too bad.

guess that is what life is highs and lows! oh btwy my son does not have

sarcoidosis (thank god) but he does have confirmed crohns and granulomas

disease!

hope everyone is doing well!!!