Re: when i thought it couldnt get worse,, attention tracie

[Guest guest]

Hi,

One of my doctors said N.S. is hereditary (most don't) but I have so many symptoms that my mother had and they never could figure out she really had. My mom's right side of her face would droop as well. I wish I could remember what her doctors called it. It's interesting you should mention that. We all have slightly different symptoms because the N.S. effects our nervous system in different locations. Mine is in my lymph nodes in my chest, while my mother had something going on in her brain. My grandfather (her dad) died of something mysterious (at the time) as well and I remember him having the same pains I do. Odd.

Hope all goes well for you.

Rick

Subject: when i thought it couldnt get worse,, attention tracieTo: neurosarcoidosis Date: Monday, April 13, 2009, 12:17 PM

Well back from the ER all morning, .. i was never taken so fast. i had such head pain, my eye was buldging he said and my heart rate was way to high.

I am still waiting for the Rheumy to call back to say start the Cellcept. I have it in hand waiting.

There er was concerned about the eye and heart rate.. but as they gave me the pain meds my heart rate slowed.

I know in the past my right side of my face would droop . but not buldge.. hummm any ideas Tracie??

So now on my way to my family dr appt .

hope all is well with the group and rest and hope you have a pain free day.

Many Blessings A.

Save money by eating out! Find great dining coupons in your area.

[Guest guest]

Rick, Your right most doctors say Sarcoid is not hereditary, I beg to differ for sure.  I have it, then My Mother was diagnosed with it, she found out she has 2 cousins (they live in Norway) that have it, and then my Aunt, My

Mothers sister was also diagnosed with it.  So this family says it is hereditary.    As far a NS, My Mother has not had problems, my Aunt is lung, and my Mom's cousin I'm not sure, but one is in a wheelchair would make me think possible NS?? 

We are a bunch of Norwegian's.  hope this is helpful, Marla 

Hi,

  One of my doctors said N.S. is hereditary (most don't) but I have so many symptoms that my mother had and they never could figure out she really had. My mom's right side of her face would droop as well. I wish I could remember what her doctors called it. It's interesting you should mention that. We all have slightly different symptoms because the N.S. effects our nervous system in different locations. Mine is in my lymph nodes in my chest, while my mother had something going on in her brain. My grandfather (her dad) died of something mysterious (at the time) as well and I remember him having the same pains I do. Odd.

 Hope all goes well for you.

Rick

Subject: when i thought it couldnt get worse,, attention tracieTo: neurosarcoidosis Date: Monday, April 13, 2009, 12:17 PM

Well back from the ER all morning, .. i was never taken so fast. i had such head pain, my eye was buldging he said and my heart rate was way to high.

I am still waiting for the Rheumy to call back to say start the Cellcept. I have it in hand waiting.

There er was concerned about the eye and heart rate.. but as they gave me the pain meds my heart rate slowed.

I know in the past my right side of my face would droop . but not buldge.. hummm any ideas Tracie??

So now on my way to my family dr appt .

 hope all is well with the group and rest and hope you have a pain free day.

 

Many Blessings A.

Save money by eating out! Find great dining coupons in your area.

[Guest guest]

Rick,

Your right most doctors say Sarcoid is not hereditary, I beg to differ for

sure. I have it, then My Mother was

diagnosed with it, she found out she has 2 cousins (they live in Norway) that

have it, and then my Aunt, My

Mothers sister was also diagnosed with it.

So this family says it is hereditary.

As far a NS, My Mother has not had problems, my Aunt is lung, and my Mom's

cousin I'm not sure, but

one is in a wheelchair would make me think possible NS??

We are a bunch of Norwegian's.

hope this is helpful,

Marla

On Mon, Apr 13, 2009 at 7:49 PM, Rick Jack <jack11973 (AT) yahoo (DOT) com> wrote:

Hi,

One of my doctors said N.S. is hereditary (most

don't) but I have so many symptoms that my mother had and they never could

figure out she really had. My mom's right side of her face would droop as

well. I wish I could remember what her doctors called it. It's interesting

you should mention that. We all have slightly different symptoms because the

N.S. effects our nervous system in different locations. Mine is in my lymph

nodes in my chest, while my mother had something going on in her brain. My

grandfather (her dad) died of something mysterious (at the time) as well and

I remember him having the same pains I do. Odd.

Hope all goes well for you.

Rick

From: jessicabouhamama <JessicAbouhamama (AT) aol (DOT) com>

Subject: when i thought it couldnt get worse,, attention

tracie

To: neurosarcoidosis

Date: Monday, April 13, 2009, 12:17 PM

Well back from the ER all morning, .. i was never taken

so fast. i had such head pain, my eye was buldging he said and my heart rate

was way to high.

I am still waiting for the Rheumy to call back to say

start the Cellcept. I have it in hand waiting.

There er was concerned about the eye and heart rate..

but as they gave me the pain meds my heart rate slowed.

I know in the past my right side of my face would

droop . but not buldge.. hummm any ideas Tracie??

So now on my way to my family dr appt .

hope all is well with the group and rest and hope

you have a pain free day.

Many Blessings A.

Save money by eating

out! Find great dining coupons in your area.