Re: Anyone tried Jini Patel-'s Protocols or Absorb Plus

[Guest guest]

Thanks to all of you who have answered here, I am very grateful.

The reason I asked my question here is because I have learned to trust the

opinions of people here and I also know that a number of you will have at least

some dealings with Jini Patel-.

At the same time, like all of you, I am desperate to get better and this board

is surely mostly about people who want to get better.

Jini charges $855 dollars for an email consultation and that is indeed a lot of

money and that is also a reason for me wanting to get other people's opinions.

It is fair to say that Jini Patel- is a supporter of SCD I believe. I

have seen at least one post from her on the SCD boards. She did try SCD and it

helped her but not enough.

It is certainly not my intention to hijack this SCD board on behalf of Jini

Patel-Thomson, far from it in fact. However I would suggest that it is only

right that we discuss other protocols here; after all if someone really did find

a cure for all of our problems so that we could all eat what we want then we

would want to know about it.

Ultimately I have to make my own decision. I have been on SCD for 3.5mths but as

yet no improvement but I don't have UC or Chron's.

Thank you all for your input and I would welcome input from others.

I will close by copying part of a reply from the UK SCD which is a testimonial

about Jini Patel- herself.

http://jptwellnesscircle.s3.amazonaws.com/l2yg/interviewjini.mp3 - this tells

the remarkable story of how Jini came to become a researcher & a pioneering

fount of knowledge on all issues related to intestinal ill-health and damage. It

takes the form of a conversation explaining how she healed herself after

literally beign brought to the suicidal brink aged 17 with one of the most

severe cases of Crohn's Disease where for the first three years after being

diagnosed, because of her family’s medical connections, she had accesss into

the top gastroenterologist in Canada †" including one GI in charge of a national

research team on Crohn’s and colitis but despite the crème de la crème

orthodox care she describes herself as sick as a dog, getting worse and worse

with every passing month. After three years and on 13 pills a day, she was told

her widespread Crohn’s, was affecting her small intestine and large intestine,

possibly spread to the stomach and she was told she’d probably have to spend

the rest of her life in and out of the hospital, wldn’t be able to have

children, or hold down a job. At her nadir she was hemorrhaging and filling

about four toilet bowls full of blood a day, with mouth ulcers covering her

mouth, down her esophagus, unable to eat, and in continual pain. After a big

mental shift towards embracing health and healing, she first began with the SCD

diet which but helped but only to a degree and from then on she has contined to

refine and improve and research, research, research first healing hersel

entirely and helping legion clients in the intervening 2 decades…

Steve

SCD - 3.5mths

Constant stomach discomfort and nausea 18mths

Mirtazapine 23.5mg

[Guest guest]

That bio could almost be mine except I was taking 21 pills per day without family connections or money.  I have had eight blood transfusions and in 2005 decided it's either try an alternative or die with the added meds they had put me on.

 

I also remember in the midst of that, I got upset because Jordan Rubin's supplements were so expensive I couldn't buy them.  I had been fired three times and had to move in with my mother.  A 'friend' kept asking how I kept my weight off.  She wanted all the info I had on JR and his diet for her very ill neice.  Due to a trip to Louisiana during Hurricane Rita, I met the non-existant niece (her little sister) who lost over 100lbs. and had the entire JR line of supplements on her kitchen counter.

 

I wouldn't/couldn't pay $855 for one email consultation.  It's insane.

 

Debbie 40 cd houston dx'd 3/02

scd 12/05 with many lapses

[Guest guest]

Since we are on the discussion, despite Marilyn not wanting to go there, I will

say this about SCD and JP.

I have read JP's book.

She stated in her book that she came up with her program as an alternative to

SCD, but she liked SCD and wanted similar results. However, hers requires her

supplements and I can not vouch that her program has a similar success rate even

though she claims it worked for her. I suspect SCD would have given her good

results if she had chosen to stick with it.

Everyone here is free to make their own choices, and I sincerely hope everyone

recovers. But as Marilyn says, this is an SCD board, and anyone wanting more

info on JP's program should look at her board

PJ

>

> That bio could almost be mine except I was taking 21 pills per day without

> family connections or money. I have had eight blood transfusions and in

> 2005 decided it's either try an alternative or die with the added meds they

> had put me on.

>

> I also remember in the midst of that, I got upset because Jordan Rubin's

> supplements were so expensive I couldn't buy them. I had been fired three

> times and had to move in with my mother. A 'friend' kept asking how I kept

> my weight off. She wanted all the info I had on JR and his diet for her

> very ill neice. Due to a trip to Louisiana during Hurricane Rita, I met the

> non-existant niece (her little sister) who lost over 100lbs. and had the

> entire JR line of supplements on her kitchen counter.

>

> I wouldn't/couldn't pay $855 for one email consultation. It's insane.

>

> Debbie 40 cd houston dx'd 3/02

> scd 12/05 with many lapses

>

[Guest guest]

At 04:41 AM 3/29/2010, you wrote:

I'm so grateful for your time. I

can understand someone feeling the need to pay for the chance to discuss

alternatives and possibilities about diets and supplements. My own doctor

spent very little time with me and dismissed diet from the get-go. I do

recall feeling completely out on a limb and isolated until I found this

board.

The best way I can thank you and everyone else here is to " pay it

forward " and help others along the way as well.

Well, you know, it's funny. In some cases, advice is worth what you pay

for it. But it so many instances, like this Specific Carbohydrate Diet,

the value is not in what you pay for it, but in what you gain from

it.

I can -- and do -- get paid here and there, since I do telephone

counseling. I've had a few gifts -- like the lady who insisted on

sending me a check when we were evacuated for Katrina. (I had asked for

donations to the SPCA and Red Cross because (a) Harry and I were OK, and

we knew our house hadn't flooded, and ( our fur kids were safe, and

with us, and © a good on-line friend had given us a free place to stay

which included a fenced yard for the furkids -- I repaid him by cooking

dinner the whole month we were there!) I was somewhat uncomfortable, but

she insisted. I nearly fell over when I saw the amount of the check --

but she said that was what the value of the recipes I'd posted were to

her and her family.)

But for the most part, there were many, many people, including Elaine,

who put in countless hours on the list when I was but an Egg, teaching me

how to implement this wonderful, healing diet. The thing I

appreciated most was that I bought the book. And that was all I needed to

implement the diet. I did not need this seminar and that supplement.

Well, I admit, I have an awful not more kitchen-gear than I ever had

before, even with being a good cook. So I pay forward, by helping others.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

At 02:00 PM 3/29/2010, you wrote:

It is certainly not my intention

to hijack this SCD board on behalf of Jini Patel-Thomson, far from it in

fact. However I would suggest that it is only right that we discuss other

protocols here; after all if someone really did find a cure for all of

our problems so that we could all eat what we want then we would want to

know about it.

Ultimately I have to make my own decision. I have been on SCD for 3.5mths

but as yet no improvement but I don't have UC or Chron's. Thank you all

for your input and I would welcome input from others.

I don't have an issue with the occasional mention of other protocols.

However, this is an SCD board, not a general gut-health board. We

appreciate that you respect our opinions.

In 25 years of being sick, I explored a lot of stuff, and SCD is the only

one that made sense, and which worked. I'm sure if there was a CURE, we'd

hear about it, but I'm not sure there will be. After all, patients who

are CURED only buy one set of medication. But patients who are in

REMISSION continue to buy the " cure. " The second way is much

more profitable for whoever is marketing the Cure.

I don't have UC or Crohn's, either. I have what I call IBS, but that

hasn't been diagnosed. It was soft, mushy stool, urgency, humiliation,

nausea, frustration, no energy -- and every time I mentioned it to my

doctors I was told to stop stuffing my face, lose some weight, and it

would all clear up. So if I become unduly emphatic on the subject of this

being an SCD board, not a general gut-issues board, that's why. SCD

works. Nothing else has proved to me that it does.

Let me see... 3.5 months. I hadn't even gotten STARTED doing SCD

correctly at that point!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Meli - thanks for your reply. I have just re-read chapter one of BTVC and you are right about the Elemental Diet. I may try Absorb Plus at some point in the future if my weight continues to drop and eating continues to be so difficult.

Marilyn - bless you when you said "Let me see... 3.5 months. I hadn't even gotten STARTED doing SCD correctly at that point!" As I only have to feed myself SCD is not difficult at all, foods are either legal or they're not. I read the book and it certainly didn't take me more than a few hours to work out what to eat and what not to eat. I appreciate it must be a lot more difficult if people have a family to feed. Are your fur kids on SCD.

Anyway, I promise not to mention any more about Jini Patel- or any other protocol or any other gut related product. I consider that my knuckles have been wrapped.

SteveSCD strict - 3.5mthsConstant stomach discomfort and nausea - 18mthsMirtazapine 23.5mg

[Guest guest]

Meli - thanks for your reply. I have just re-read chapter one of BTVC and you are right about the Elemental Diet. I may try Absorb Plus at some point in the future if my weight continues to drop and eating continues to be so difficult.Marilyn - bless you when you said "Let me see... 3.5 months. I hadn't even gotten STARTED doing SCD correctly at that point!" As I only have to feed myself SCD is not difficult at all, foods are either legal or they're not. I read the book and it certainly didn't take me more than a few hours to work out what to eat and what not to eat. I appreciate it must be a lot more difficult if people have a family to feed. Are your fur kids on SCD.Anyway, I promise not to mention any more about Jini Patel- or any other protocol or any other gut related product. I consider that my knuckles have been wrapped.I read some of her stuff online. the one bit of advice that I put into practice was to tryL-Glutamine. I remember she said she liked the idea of SCD, but it didn't work for her, but as soon as she tried L-Glutamine, it helped her tremendously. So I gave it a try.Took me several days to work out what was going on, but it started intensifyinggut pains. And that was the last advice I took from Jini Patel. Though, OTOH, I know L-Glutamine has helped others on the list, Eileen for example. As always, what helps and what hurts remains idiosyncratic. Mara

[Guest guest]

Yes, L-glutamine gives me gut pain, too. So much for the $15 I paid for it :>)--