Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Dawn, Hang in there, it will get better, once you meet with the team, they should come up with something to do, to make life better. Remember the glass is half full " God Bless, Marla Thank you for the feedback- this whole illness is so scary because it seems that there are so many unknowns involved. I have my first appointment with the neuro team scheduled for next Thursday and I'm a little (ok- maybe a LOT) nervous. It makes me feel a little better to know that others have been through this before and are doing okay. I will keep you all in my prayers. Thanks again! Dawn > > > I am new to the group and have found way more information here than I > > have anywhere else...so THANK YOU ALL for all of your posts and info! I > > was diagnosed with sarcoidosis in December- at that point they thought > > only my lungs and joints. I had an MRI of my brain on Monday which > > shows that I have neurosarcoid as well. I have been on Prednisone since > > I was diagnosed- 80 mg a day for a month then tried to taper. Got down > > to 40 mg when the neuro symptoms kicked in so they put me back up to 60 > > for now til I can see a neurologist. My doc also just told me I am now > > a steroid induced diabetic so now I am on meds for that. I feel very > > overwhelmed with all of this- I was healthy prior to this illness and > > working as an RN full time. I am not able to work now due to all the > > symptoms and am wondering how you all deal with all the lifestyle > > changes and emotions related to this disease. Thank you again for all > > the info- I appreciate it so much! > > Dawn > > > > > > > Quote Link to comment Share on other sites More sharing options...
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