Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 Thank you for the feedback- this whole illness is so scary because it seems that there are so many unknowns involved. I have my first appointment with the neuro team scheduled for next Thursday and I'm a little (ok- maybe a LOT) nervous. It makes me feel a little better to know that others have been through this before and are doing okay. I will keep you all in my prayers. Thanks again! Dawn > > > I am new to the group and have found way more information here than I > > have anywhere else...so THANK YOU ALL for all of your posts and info! I > > was diagnosed with sarcoidosis in December- at that point they thought > > only my lungs and joints. I had an MRI of my brain on Monday which > > shows that I have neurosarcoid as well. I have been on Prednisone since > > I was diagnosed- 80 mg a day for a month then tried to taper. Got down > > to 40 mg when the neuro symptoms kicked in so they put me back up to 60 > > for now til I can see a neurologist. My doc also just told me I am now > > a steroid induced diabetic so now I am on meds for that. I feel very > > overwhelmed with all of this- I was healthy prior to this illness and > > working as an RN full time. I am not able to work now due to all the > > symptoms and am wondering how you all deal with all the lifestyle > > changes and emotions related to this disease. Thank you again for all > > the info- I appreciate it so much! > > Dawn > > > > > > > Quote Link to comment Share on other sites More sharing options...
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