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Re: Crohn's or Colitis?

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I was first dx'd with crohn's colitis. After a Prometheus test which

is a hand drawn blood test, it came back positive for crohn's disease.

My insurance didn't cover that test btw.

If they can't determine it and SCD helps you, it seems like due to

pre-existing insurance problems, they could determine it or put

something else. Maybe you should ask someone who could know...I don't

know who. I'd do what I could to get out of the dx at all. Since you

are taking lialda, I don't know if that even matters. It's just so

hard to get insurance yourself with that pre-existing condition. Just

FYI.

It matters if you change doctors, they'll want to redo every test

already taken or that was my experience. Even with all that, the

latest Gastro doc switched me to Asacol for UC which *killed* me.

It's up to you but some things to consider. Clear as mud right? <g>

Debbie 40 cd

> Hi,

>

> I am new to the group. I started the diet about a month and a half ago. My

> question is whether it is normal for the doctors not to be able to tell you

> if it is crohn's or colitis? I have had a ct scan, colonoscopy, endoscopy

> and more blood and stool test than I can count. I told my doctor I was not

> going to take any more steroids or start remicaide unless they could tell me

> what the actual diagnosis was. I told them I was going to start scd

> instead. I have continued to take llialda. I have been getting

> progressively better on scd. I tend to have a few good days (healthwise)

> followed by a few bad days. The number of good days has steadily increased.

> I am not doubting that scd is working, but I am wondering if it is

> important to have a diagnosis or if it is normal for doctors not to be able

> to tell you which, crohn's or colitis?

>

>

> Stacey

> scd-almost 2 months

> crohn's or colitis for about 10 years but didn't have health insurance until

> recently so started seeking treatment this October.

> Llialda

>

>

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I don't remember the term they used but there is only one place to

have it analyzed and it was overnighted. He called within a few days

with the results.

I guess it's not hand drawn because that would mean you have it all

done in one place right?

Anyway, at the time 2003, that was the deciding factor.

Debbie

>

>

>> I was first dx'd with crohn's colitis. After a Prometheus test which

>> is a hand drawn blood test...

>

> What is a " hand-drawn blood test " ? Aren't all blood tests " hand-drawn " ?

> (Except the finger-prick kind, but I haven't had one of those in years.)

>

> n

>

>

>

>

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