Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Vicki, Try a front hook bra and leave a couple of the bottom hooks unhooked. A. B. Lap 3/22/03 Dr. Steve Weinstein Mobile Infirmary Medical 386-245-141lb BMI 65/40 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 , GH is completely optional. It is a decision that each individual family must make, based on their child. There are a lot of pros and there are some cons also. However, my son is around LeeAnne's age and we have decided that it is the best thing for Datreon, but there are also families on here who have opted against it. I hope this helps, and I hope you get her home very soon! le, mom to Datreon, RSS 18months, 16lb 2oz, 27in Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 Hi , This isn't a silly question at all! When it comes right down to it, it's a personal decision that each family makes for thier child. There are so many more benefits for taking GHT other than just gain in height. There is increased muscle mass making muscle tone better, it also increases the amounts of sugars that the kids can store so there is less hypo-g issues... this is just the start of the benefits as I understand them. As for not being GH deficient, that's just the way RSS kids are. Ther are NOT GH deficient but their bodies use Growth Hormone inificiently so they need a GH " boost " in order for them to grow. Someone correct me if I've got it a bit wrong please!!! For our personal choice we are not using GHT. Olivia has other special needs that closes the door on GHT altogether. If not for this I'm pretty sure that she'd be on it. We never gave it a whole lot of thought. Hope this helps some! Leah, mom to 10 and Olivia 5, 19.5lbs, 34.5 " , RSS, OI > > HI everyone, > > We are still waiting, and waiting and, waiting..to get the call to get > our LeeAnn home. > > I am hoping for a non-flaming opinion on growth hormones. Are they > necessary sometimes and not others? Is it completely optional? What > are the cons? The pros? > > I am completely confused about this. It seems like most kids are on > them but I have met a family who didn't. The mommy said that her son > was not hormone deficient. > > Thank you for your clarification. > > > Mom to Patty, 5 (autism) > Reagan almost 4 > 3 > , almost two > And LeeAnn JeongYeon, still in Korea, 16 months RSS (13.6 lbs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2005 Report Share Posted March 19, 2005 Hi Jaimie, To use or not to use growth hormone is a personal and sometimes a medically driven decision. I was really on the fence about giving Jillie GH. She has always been well nourished (courtesy of a nasogastric tube from birth to 3 months old and then a GT) and looked bigger than a lot of the other RSS kids I have had the pleasure of meeting. She has an extra edge with both myself and my husband being ultra tall. And despite being a NICU nurse in one of the best state of the art high tech units in the country - I'm affectionately referred to by my colleagues as a " crunchy granola " , being drawn to nature and nutrition as a cure before traditional medecine. When I went to see Dr " H " officially (vs at convention) for the first time she was 23 months old. Dr " H " duly noted she was very well nourished but strongly suggested she start GH that day. She told me she had a severe form of RSS and was one of the weakest, most hypotonic kids she had met. Jillie at that time could not crawl or pull herself to standing. She couldn't even lift her head off the floor from being prone. And it wasn't because she wasn't getting PT and OT. She also had a such upper body weakness that she couldn't pick her head up when she'd gotten herself into a weird position and she would kink off her airway. GH, as well as helping with height, contributes significantly to muscle development and strength. She started it 10 months ago. She now crawls around the house with her backpack on, pulls to standing and cruises furniture, takes a few independant steps and can get up the stairs. It has made a tremendous difference to her mobility and endurance. She even generally has better lung volumes therefore doesn't need oxygen around the clock. She is still SO hypotonic but it's all relative. It's very personal. If Jillie wasn't so weak and medically challenging, I may have not started her on the GH. There is no right or wrong answer. Of note, most RSS kids are NOT GH deficient, they are GH INSUFFICIENT. This basically means they have a normal level of GH but it is insufficient to stimulate normal growth and development in them. Hope you get that phone call about picking up LeeAnn soon! Let me know if you didn't get my private email with my phone #. > > HI everyone, > > We are still waiting, and waiting and, waiting..to get the call to get > our LeeAnn home. > > I am hoping for a non-flaming opinion on growth hormones. Are they > necessary sometimes and not others? Is it completely optional? What > are the cons? The pros? > > I am completely confused about this. It seems like most kids are on > them but I have met a family who didn't. The mommy said that her son > was not hormone deficient. > > Thank you for your clarification. > > > Mom to Patty, 5 (autism) > Reagan almost 4 > 3 > , almost two > And LeeAnn JeongYeon, still in Korea, 16 months RSS (13.6 lbs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2005 Report Share Posted March 21, 2005 - Not a silly question. I just realized that it is past 11pm so I need to go to bed. Will you write me privately and remind me of your question? I can send you the data from the various studies. Hopefully after 10 days of vacation in Hawaii, I will also have the rest of the Guidebook's first draft finished! Then I can send you that on GH! Jenn > > HI everyone, > > We are still waiting, and waiting and, waiting..to get the call to get > our LeeAnn home. > > I am hoping for a non-flaming opinion on growth hormones. Are they > necessary sometimes and not others? Is it completely optional? What > are the cons? The pros? > > I am completely confused about this. It seems like most kids are on > them but I have met a family who didn't. The mommy said that her son > was not hormone deficient. > > Thank you for your clarification. > > > Mom to Patty, 5 (autism) > Reagan almost 4 > 3 > , almost two > And LeeAnn JeongYeon, still in Korea, 16 months RSS (13.6 lbs) > > > Quote Link to comment Share on other sites More sharing options...
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