Re: Re: Choosing Life

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Marla,I will say 'Amen' to that!AmeliaTo: BTVC-SCD Sent: Sun, January 31, 2010 7:48:34 PMSubject: Re: Re: Choosing Life

I just had to respond to these 2 notes. It brought tears to my eyes just now reading them. Especially the sentence that says "That God will bless our efforts and bless him with healing." My 15 year old daughter who has celiac is on this diet. She is writing a report for school regarding her dreams. as a take off of Luther King, Jr's I Have a Dream speech. One of her dreams is for her to be healthy as an adult. - that includes the anxiety she experiences also. Lately I have been praying with my ladies prayer group for a miracle to take place in my daughter's body. God is still a God of miracles. I think I need to add everyone who is on this diet to my list of people I pray for. and "that God will bless our efforts and bless us with

healing".

Marla P.

From: dontlikemeds <s.kurtz (AT) sbcglobal (DOT) net>To: BTVC-SCD@yahoogroup s.comSent: Sat, January 30, 2010 12:14:36 AMSubject: Re: Choosing Life

>> I just a read a post about a 17 year old who has been recently been diagnosed with IBD. I can advocate for choosing diet and taking care of the cause rather than masking symptoms. I have first-hand knowledge of both approaches. If i had followed my parents would have just followed what doctors said taking medications, eating anything and live as if there were no hope of addressing the cause. I've had Crohn's Disease since I was 15 and that is why I admire the courage that Alyssa has because I knew the courage it took for me. > > I was pressured to follow the drug path, all I heard was I am a little boy and doctors know this and know that. The truth is that doctors know drugs;how to manage symptoms that's all. Drugs

have

their place but is I more than misguided to think that a bowel disease is not related to diet. Six years after I'm glad I followed this way, before SCD I saw no hope and didn't really expect to wake up the next day. I was dying and nearly did on more than one occasion. I prefer to do something that makes sense to being hopped on steroids, weigh 89lbs and have no sense of my surroundings with life just flying by. I have a long way to go but I'm committed. I have a friend from Sri Lanka that seems to believe that drugs are the way. He has been sick only two years but has had 5 surgeries. He wants to hang out with his friends Everyone wants to be normal but live throws us curveballs sometimes (what do I know about baseball) but we have to adjust so we can still make> contact. Every day I am able to go study what I love I give God thanks.> > Llemar> 21 years old> CD 6 years SCD restarted 18 months>

Jamaica>HI Llemar,Thank you for your story. I'm the mom who has the 17 year old with Crohn's. It encourages me to read your thoughts on the drugs. I feel the same. I don't want these in his system-they are so potent and I feel like the doctors themselves don't even know what the long term consequences will be. I feel that they are taking chances with people's lives here. Sort of the approach of, maybe it will work but we can't guarantee that you won't develop something worse. I don't like those odds.I pray that this is going to be the right approach for my son-that God will bless our efforts and bless him with healing.You are right to care for yourself in this way. Keep going and let us know how things are with you.May God Bless You with health.Sherry