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Re: experience from people with IBD

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At 09:43 AM 1/30/2010, you wrote:

I know the diet doesn't work for

everyone. I don't know if it will work for me. I wonder if I'm just

trying to follow it so that I feel like I have some control over my

disease. Can I get some feedback from people with IBD? Do you think that

SCD only works for those people with mild IBD?

Amber,

The lady who was my mentor in the diet was told, when she was diagnosed

with Crohn's, that her gut looked like bloody lace. 14 months of

fanatical adherence to SCD later, her doctor said that if he had not

diagnosed her himself, he would not have believed she was the same

patient. Because her gut was healed.

As you're aware, the objective of SCD is to starve out the bad bacteria.

You began starving the bad bacteria out. The weakest sisters among them

died. The stronger ones survived.

Then you fell off the wagon -- and fed those stronger bacteria so that

they reproduced. Now you have to try to starve them out, and it will be

even more difficult.

Everyone makes mistakes and goes back to square zero. Healing is not

accomplished in a linear fashion -- it's two steps forward and one step

back, or three steps forward and two steps back. It may feel as if you

are getting nowhere. Healing is never easy. But not healing is worse by

far.

That you need medication does not mean SCD does not work. Many people

need medication for some time. It's no crime to use medication when you

need it. Your healing has just begun.

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

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