Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 Wow, it sounds like you're having a very rough time, I'm sorry to hear that. You seem to have made a lot of improvement already though, so hang on to that, and hopefully you'll keep feeling a little bit better every day! Keep us all posted though! I can definitely relate to the breathing thing, I felt the exact same way for the first little while. I got to work with q-tips and decongestant spray, and nasal strips on my nose, becaues I felt it was really hard to breathe through my mouth; I was less worried about breathing when I could breathe easily through my nose. Also I drink a ton of water after Ensure's because I used to find the Ensure made all the phlegm in my throat worse, and I was more worried I would choke on it. I don't know if any of that would help you worry less about your breathing? My doctor also suggested I take gravol as a suppository if I felt nauseous (unpleasant, but if I'd felt sick it would have been a good option) since I wouldn't have to worry about keeping it down. Not feeling nauseous also has the added benefit of making food a little more attractive I don't know if any of those suggestions will help, but definitely let us all know how things go. Keep your chin up, I'm sure things will start to get better soon!! - > > Hi all. I am almost a week post op. I feel not so great. My > surgery was 1pm on the 17th. I couldn't stop crying at the hospital > and almost chickened out. The hospital staff was nice and seemed > surprised that I was so upset. When I woke up I had trouble > breathing and don't remember being in recovery much. When in my > room I was told by my surgeon that I was wired shut. I had upper > and lower and wasn't supposed to be wired or splinted but he said he > has never seen an upper jaw so thin. He said when he cut it it was > like an eggshell and he could see through it and it started > crumbling (just what I wanted to hear) so now I have larger plates, > more screws and am not wired shut with a splint (I think I'll be > wired for 2 weeks, god I hope not longer). I had a nasogastric tube > which didnt' help with the vomiting b/c I vomited for hours and they > had to call the dr. to come see me and they had to remove the tube. > The vomiting was a nightmare, my husband I was told had to walk down > the hall away from me b/c he couldn't handle it. Once I finally > stopped I was so dizzy, couldn't keep my eyes open till the next > afternoon. Had to go down for xrays the next morning in the > wheelchair and that was horrible, felt so sick, and could barely > stand up for the xrays. Started trying to use the syringe and drink > Tues. afternoon and then felt a little better. It was very hard to > breathe and I kept pressing the nurse call button. By Wed. I was a > little better and they sent me home. Of course we had snow in D.C. > this day and a 30 minute ride home took 4 hours so I was not happy > about sitting in the car this long. So have been mainly resting, > watching tv. Can't really sleep at all and I'm exhausted. I have > been trying to eat but it is so hard and tiring. Was taking me 2 > days to finish one can of Ensure or Boost. I am getting a little > better now as I am hungry and I can see my ribs sticking out now so > this scares me that I am losing too much weight. I now like a > package of the instant breakfast, 1 cup of milk, scoop of ice cream > and half a banana blended up. The swelling has gone down some, I > was sooooooooo swollen. I am now a greenish yellowish color on most > of my face and neck. I can't talk at all with being wired. I am > trying to keep my teeth/mouth clean but not sure if I am doing it > right. I can kind of lift up my lips a little to brush some of the > front teeth and then use the syringe to squirt in saltwater and the > rinse the dr. gave me. Can't see anything else. I now have a chin > which is nice, he slided my bone forward, no implant. It is swollen > but I can see the chin. My nose looks different, my hump seems to > be gone and my nose looks smaller (had a jewish nose). My nose is > crooked though which I assume is from the swelling (I can most of > the time breathe out of the right nostril but not the left). My > face seems to not be as long too. I am numb but I think I am > getting alot of feeling back. The pain medicine (tyleonol codeine) > doesn't help much). Didn't want anything stronger since I was so > sick in the hospital. I feel alot of tingles, twinges, can feel > when I touch my face, thought I felt some tooth pain yesterday, can > feel my tongue which feels beat up. I go to see my surgeon > tomorrow. I am looking forward to it (guess to make sure things are > ok and to ask him some more questions). I worry alot. > God I can't wait to be normal again, it is hard to relax. I freak > out about breathing and swallowing, sometimes start coughing b/c > guess didn't swallow right then find it hard to stop and breathe and > it scares me alot. I hate being wired shut. I keep thinking why > did I do this to myself I must be nuts to have done this surgery. > Guess someday it will seem worth it but definitely not right now. > My kids who are 6 and 7 asked my mom if I will ever look like their > mom again. How sad. Quote Link to comment Share on other sites More sharing options...
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