Guest guest Posted February 9, 2009 Report Share Posted February 9, 2009 Welcome home Barb, I know what it feels like to be home after a week in the hospital... it feels good!! You did not mention if you had a spinal tap? for me that was the one good thing that got me a dxd of NS. well I had 3 of them and each one I had got worse. It is a lot better at showing inflamation in the body than the normal blood work they run for markers. The last spinal tap I had in Nov when I was in the hospital was spinal tap number 4. and it showed my Neuro dr he has to be more aggressive with the chemo drugs. Many blessings and hugs and a pain free day HELLO TO ALL, HAPPY BELATED BIRTHDAYS TOTHOSE I HAVE MISSED!!! WELL I JUST HAD MY FIRST BOUGHT OF THE SARCMONSTER THAT REALLY KNOCKED ME DOWN HARD!!! I HAD SYMPTOMS OF A STROKEENDED UP IN THE HOSPITAL FOR A WEEK . THEY DID EVERYTHING BUT ANALPROBED ME LOL!! I HAD ABOUT 6 MRIS 4 CAT SCANS , EKG, ECOCARDIOGRAM WITH BUBBLE STUDY, CRANIAL ANGIOGRAM,SPINAL TAP, TEE (WHICH IS REALLYFUN SWALLOWING A CAMERA,) CAROTID SONOGRAM, EEG AND THEN A 24 HOUR EEGWHICH AS MY HUSBAND SAID LOOKED LIKE A DISPLACED PERSON WITH AN UPSIDEDOWN EASTER BASKET!!! IF I EVER FIGURE OUT HOW TO PUT THE PICTURE ON THEWEB SITE I WILL. NOT MUCH PRIVACY WITH THE WHOLE EEG I AM SURE I WILL BEON U-TUBE FOR MY POTTY PORN LOL!! ANYWAY ON A SERIOUS NOTE THAT SUCKEDAND THEY NEVER FOUND ANY THING WRONG EXCEPT THEY GET THIS THEY THINK ITIS THE NS IN THE BRAIN. WELL MY HUBBY HAD ,HAD ENOUGH OF ME GETTINGPOKED AND PRODED THAT HE AGAINST MEDICAL ADVICE TOOK ME OUT OF THERE.(BESIDES I COULD NOT STAND BEING AWAY FROM MY KIDS AGES 11,12,AND16.ANY MORE!!! MY HUSBAND DAVID CALLED CLEVELAND CLINIC AND THE DOCTHERE SAID GOOD THAT HE GOT ME OUT OF THERE WHEN HE DID!! SHOULD HEARABOUT THE REMICADE INFUSIONS BY THE END OF THIS WEEK!! ANY THING I MIGHTNEED TO KNOW BEFORE I GO THIS ROUTE? I KNOW THIS IS A SLOW MOVINGDISEASE BUT I WAS JUST DIAGNOSED IN AUG 08 AND AM 38 YEARS OLD ANDHAVING ALOT OF TROUBLE RATHER QUICKLY!! HOPE EVERYONE IS FEELING BETTER.I KNOW I AM SINCE I AM HOME THERE IS KNOW PLACE LIKE HOME!! BLESSING TOALL ,BARB--- End forwarded message --- Get instant access to the latest most popular FREE games while you browse with the Games Toolbar - Download Now! Quote Link to comment Share on other sites More sharing options...
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