Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Tomorrow, well actually today, is my treatment. I am curious how long it takes Medicare to turn you down and if they've heard anything yet. I got the call back from my neuro's nurse and he recommended another doc in the practice to take over my case. I am happy with his choice. My new doc, Dr. Melanson, is a woman, I love that, and she is the clinical director of the MS clinic that all of the neurologists are associated with as my former neuro was too. I still see Dr. Baughman and Dr. Lower for my sarc treatments. They've been making those decisions since I was diagnosed. I'll be back tonight typing with one hand and cramming my face with the other! LOLJoin our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... From: gregorykrumme <krumdawg (AT) tx (DOT) rr.com>Subject: Re: House diagnosisTo: Neurosarcoidosis@ yahoogroups. comDate: Tuesday, April 28, 2009, 9:32 PM They also talked about the use of nicotine could have effect the sarcoidosis. ......... ... I have to claim BSSSSSSS there. Of course I used copenhagen for almost 30 years. I am now at 4 weeks no nicotine/copenhagen . And there is no change in my sarc. Of course on Prednisone and quitting nicotine I praise the lord that there are not dead bodies laying around me at this time.Greg> > > > > > > > > > > > > > > Well, someone finally got a diagnosis of Sarcoidosis on House last night. i was really surprised! It's mentioned as a possibility about every other episode over the whole course of the show's history but has never been the final outcome. Of course, it was mixed with other health concerns but at least it was finally mentioned. I sure hope some of my family and friends were watching...lol.> 29:11, For I know the plans I have for you," declares the > Lord, "plans to prosper you and not to harm you, plans to give you hope > and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV)."No one whose hope is in You will ever be put to shame….Show me Your> ways, O LORD, teach me Your paths; guide me in Your truth and teach> me, for You are God my Savior, and My hope is in You all day long."> Psalm 25:3,4,5 NIV> > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> Windows Live™ SkyDrive™: Get 25 GB of free online storage. > http://windowslive. com/online/ skydrive? ocid=TXT_ TAGLM_WL_ skydrive_ 042009> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Thanks Debbie, I am trying, I am awaiting one more letter from a doctor, then will be able to submit to insurance company, then all I can do is pray. Marla Marla, So sorry for the extra stress in renewing the Remicade. I know how it can affect your. body. I know it's easier said than done, but try and stay strong and fight.... Hugs, Debbie From: gregorykrumme <krumdawg (AT) tx (DOT) rr.com>Subject: Re: House diagnosis To: Neurosarcoidosis@ yahoogroups. comDate: Tuesday, April 28, 2009, 9:32 PM They also talked about the use of nicotine could have effect the sarcoidosis. ......... ... I have to claim BSSSSSSS there. Of course I used copenhagen for almost 30 years. I am now at 4 weeks no nicotine/copenhagen . And there is no change in my sarc. Of course on Prednisone and quitting nicotine I praise the lord that there are not dead bodies laying around me at this time. Greg> > > > > > > > > > > > > > > Well, someone finally got a diagnosis of Sarcoidosis on House last night. i was really surprised! It's mentioned as a possibility about every other episode over the whole course of the show's history but has never been the final outcome. Of course, it was mixed with other health concerns but at least it was finally mentioned. I sure hope some of my family and friends were watching...lol. > 29:11, For I know the plans I have for you, " declares the > Lord, " plans to prosper you and not to harm you, plans to give you hope > and a future. " If anyone would come after Me, he must deny himself " ( 16:24 NIV). " No one whose hope is in You will ever be put to shame….Show me Your > ways, O LORD, teach me Your paths; guide me in Your truth and teach> me, for You are God my Savior, and My hope is in You all day long. " > Psalm 25:3,4,5 NIV> > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> Windows Live™ SkyDrive™: Get 25 GB of free online storage. > http://windowslive. com/online/ skydrive? ocid=TXT_ TAGLM_WL_ skydrive_ 042009 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Girls, I think I may be able to give you ammo for fighting your Ins. Cos. on the Remicade issue. My Ex-Wife (who is my best friend) just happens to be a charge Nurse at Major Cancer clinis in Fort Worth , Texas. She has gotten with the Remicade Rep. and has gotten me lots Print outs of New testing of Remicade on all types of Sarcoid. When she can get them to me I would be happy to copy/scan them and either e-mail or snail mail them to you if you wish. I am just starting my testing to see if Remicade is the best alternative to Pred. Both my Neuro and Rhemy wants me off Pred. OOO and my Rhemy is the Director of Int, Med, and Rhem at UNT in Ft Worth, Texas. Wishing luck in y'alls fight and of course wishing loving pain free days. Greg aka Krumdawg > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Well, someone finally got a diagnosis of Sarcoidosis on House last > >> night. i was really surprised! It's mentioned as a possibility about every > >> other episode over the whole course of the show's history but has never been > >> the final outcome. Of course, it was mixed with other health concerns but at > >> least it was finally mentioned. I sure hope some of my family and friends > >> were watching...lol. > >> > 29:11, For I know the plans I have for you, " declares the > >> > Lord, " plans to prosper you and not to harm you, plans to give you hope > >> > and a future. " If anyone would come after Me, he must deny himself " > >> ( 16:24 NIV). " No one whose hope is in You will ever be put to > >> shame….Show me Your > >> > ways, O LORD, teach me Your paths; guide me in Your truth and teach > >> > me, for You are God my Savior, and My hope is in You all day long. " > >> > Psalm 25:3,4,5 NIV > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > ____________ _________ _________ _________ _________ _________ _ > >> > Windows Live™ SkyDrive™: Get 25 GB of free online storage. > >> > http://windowslive. com/online/ skydrive? ocid=TXT_ TAGLM_WL_ skydrive_ > >> 042009<http://windowslive.com/online/skydrive?ocid=TXT_TAGLM_WL_skydrive_042009> > >> > > >> > >> > >> > >> > >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Greg, I would love to get a copy of those letters, it would also be a good idea to put those in our archives, then they would be available to any one fighting the good fight. Thank you. Marla Girls, I think I may be able to give you ammo for fighting your Ins. Cos. on the Remicade issue. My Ex-Wife (who is my best friend) just happens to be a charge Nurse at Major Cancer clinis in Fort Worth , Texas. She has gotten with the Remicade Rep. and has gotten me lots Print outs of New testing of Remicade on all types of Sarcoid. When she can get them to me I would be happy to copy/scan them and either e-mail or snail mail them to you if you wish. I am just starting my testing to see if Remicade is the best alternative to Pred. Both my Neuro and Rhemy wants me off Pred. OOO and my Rhemy is the Director of Int, Med, and Rhem at UNT in Ft Worth, Texas. Wishing luck in y'alls fight and of course wishing loving pain free days. Greg aka Krumdawg > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > Well, someone finally got a diagnosis of Sarcoidosis on House last > >> night. i was really surprised! It's mentioned as a possibility about every > >> other episode over the whole course of the show's history but has never been > >> the final outcome. Of course, it was mixed with other health concerns but at > >> least it was finally mentioned. I sure hope some of my family and friends > >> were watching...lol. > >> > 29:11, For I know the plans I have for you, " declares the > >> > Lord, " plans to prosper you and not to harm you, plans to give you hope > >> > and a future. " If anyone would come after Me, he must deny himself " > >> ( 16:24 NIV). " No one whose hope is in You will ever be put to > >> shame….Show me Your > >> > ways, O LORD, teach me Your paths; guide me in Your truth and teach > >> > me, for You are God my Savior, and My hope is in You all day long. " > >> > Psalm 25:3,4,5 NIV > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > > >> > ____________ _________ _________ _________ _________ _________ _ > >> > Windows Live™ SkyDrive™: Get 25 GB of free online storage. > >> > http://windowslive. com/online/ skydrive? ocid=TXT_ TAGLM_WL_ skydrive_ > >> 042009<http://windowslive.com/online/skydrive?ocid=TXT_TAGLM_WL_skydrive_042009> > >> > > >> > >> > >> > >> > >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
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