I need help!!!

[Guest guest]

Hello!! I have had my son on the gfcf diet for a while and he has

been doing great. I don't get much help or information from my sons

doctors. He has epilepsy but the doctors can't explain why. They have

told me his seizures stem from something they just don't know what. I

put my son on the gfcf diet and his seizures pretty much came to a

halt. He developed at a pretty normal rate until his well check when

he was 17 months old. He had his shots DTaP, HIB,IPV, AND MMR. For

days after his shots he was very irritable. Seven days after his shots

he had his first seizure. After that he completely changed. He stopped

talking(he is now three and still doesn't talk), He became fascinated

with ceiling fans and lights, became very distant, would no longer let

you cuddle him or play with him, it was like he was in his own world.

A friend of mine gave me an artical out of a magazine about the gfcf

diet and I tried it. I noticed immediate results. He is now much more

loving, and more aware. He has made alot of improvements. I get no

help from his doctors they always act like I'm doing something wrong

by doing this diet with him ,like I'm depriving him of food. I tell

them that he gets everything he needs. I get really aggrivated, I

never get any answers. It's just like these doctors want to medicate

my son and send us on our way. His neurologist just put him on a new

medication that he is having a hard time with. Lamictal (lamotrigine)

plus he is still on Depakote as well. He has become very irritable,

wants to lay around and cry all day. It is driving me crazy.I call his

doctors and they act like it's ok for him to be going through this. I

am very frustrated. I don't know exactly what happened to my son to

begin with .I'm told it was not his shots that caused this. But he had

normal development until he was 17 monts old. I'm trying to make a

very long story short so I hope this is all comming across clearly.

Has anyone experienced something like this? Does any one have a child

with seizures? Does anyone have a child who has has fewer seizures

since starting the diet? Anyone have a child on Lamictal? Any advice

comments or suggestions would be greatly appriciated. I'm very

confused. I feel helpless not being able to get any answers from his

doctors. I don't know if I'm not asking the doctors the proper

questions or what. I thought people went to the doctor to get answers,

but I get none. I need whatever help I can get. I hope there is

someone out there with some advice Please. Rebekah (Kienan's mom)