Re: Atypical club feet????

December 4, 2005

I am so releived that you wern't offended by my mentioning it!! I

thought about it after I posted that and really am glad that you took

it the right way =)!

I would think that if Kai did have it, it would be quite a mild case

as it hasn't been detected by any of his doctors thus far. It

probably would be good for you to know though as it would give you an

idea of some of the things that may need to be looked at.

Totally hear ya btw about dh not wanting to discuss syndrome's! When

I try talking to Gilles about Grace's kidney issues (which are

starting to look more serious), he just says 'she'll be fine'...so

frustrating! Must say that it has made me a stronger advocate for her

though!

tc

& Grace

>

> , thanks for the link. I have heard of it and briefly

checked into it. It is a possibility, especially since my husband

has the specific heart defect it lists. Kai DOES have developmental

delays. It is still too early to tell if it is just speech delay or

more, but it is there; and my step-daughter has very mild

retardation ... so you see, we already suspected a syndrome, but the

Geneticist we saw did not try very hard to narrow it down ... perhaps

he just did not have enough specific information, I guess. We were

supposed to go back in October (one year) but I didn't bother because

it really doesn't matter too much ... it would be more of an