Guest guest Posted October 28, 2009 Report Share Posted October 28, 2009 It is important that all of us get the "regular flu shot" for the "normal" seasonal flu. With the Swine Flu, we all need the INJECTION-- not the nasal dose. If you have any lung issues-- make sure you are well when you get your shots-- and give it a week between doses of the normal vaccine and H1N1. This was from my pulmonologist-- I did the regular one last week, and will do the H1N1 hopefully by next week. Take care, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2009 Report Share Posted November 1, 2009 Wish it was that easy here in Utah. My primary physician is not giving shots. My pulmonologist is not giving shots. The University is not giving shots. The Health Department will be giving shots sometime late November. The Community Nursing Services had 900 shots last Saturday (which I stood in line for 2 hours to get before someone came out to say they were all out). With Diabetes and the Pulmonary Fibrosis coupled with the cold weather and wind, I was lucky I didn't have complications from waiting in line to get the H1N1 vaccination. I was looking for volunteer opportunities to help with this whole process because it is SOOO POORLY ORGANIZED and did not find anything in the county!! Go figure. I am going to go down to the local health department next week and share my experience and see if we can't come up with a system that works better. There were people in line with small (freezing) children. There were some people in line that were not eligible at this time for the vaccination, there was no one counting the people in line, advising anyone how many vaccinations/mist applications were available. There was no one advising of needed documentation, there is absolutely nothing being done to make the process less 'painful' for the masses showing up for the shot (and all of the hoopla on TV and in the newspapers causing nothing short of anxiety and panic). Keep trying. Call everyone you know. Find out what you need to do to make the process work for you. On a brighter note, I finally got the National Jewish take on my biopsy. They said there were minor UIP indications and minimal honeycombing but that the overall indication was fibrotic NSIP (the local reading negated NSIP for the UIP). I also completed the out-processing on my pulmonary rehab. My blood gas readings improved, my tolerance for aerobic exercise improved and my pulmonary function tests also showed improvement. My overall tolerance level to my condition is better than 2 months ago. The proviso now is to maintain the program of exercise (with expanding tolerance levels) for the rest of my life.... in the event I opt for an eventual lung transplant. It only takes two weeks of inactivity to negate all of that improvement. I also lost 8 pounds in 6 weeks and my A1c was down to 5.7 from 6.3!! Stefani 61 year old Utahn ILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009 > > > > > > > > > From: Beth mbmurtha (AT) yahoo (DOT) com> > > > Subject: Checking in from Chattanooga TN > > > To: Breathe-Support@ yahoogroups. com > > > Date: Thursday, October 29, 2009, 8:45 PM > > > > > > > > > > > > > > > Hi all! > > > After a longish day in the car I'm happy to report the safe > > arrival in Chattanooga of myself, Peggy and , Teri Marietta and > > Jane. (well Jane just came down for a couple of hours to chat this > > evening but she'll be back tomorrow with Eddie. > > > Tomorrow we'll have lots more arrivals to report. I'm so > > happy to be here!! Off to bed shortly, I'm really tired but once > again, > > supremely happy! > > > > > > Beth > > > > > > Moderator > > > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 great news stafani yes we do decondition quickly if we miss rehab too many times then it gets harder to catch up to where we were before -- speaking for myself Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Flu shotsTo: Breathe-Support Date: Sunday, November 1, 2009, 3:12 AM Wish it was that easy here in Utah. My primary physician is not giving shots. My pulmonologist is not giving shots. The University is not giving shots. The Health Department will be giving shots sometime late November. The Community Nursing Services had 900 shots last Saturday (which I stood in line for 2 hours to get before someone came out to say they were all out). With Diabetes and the Pulmonary Fibrosis coupled with the cold weather and wind, I was lucky I didn't have complications from waiting in line to get the H1N1 vaccination. I was looking for volunteer opportunities to help with this whole process because it is SOOO POORLY ORGANIZED and did not find anything in the county!! Go figure. I am going to go down to the local health department next week and share my experience and see if we can't come up with a system that works better. There were people in line with small (freezing) children. There were some people in line that were not eligible at this time for the vaccination, there was no one counting the people in line, advising anyone how many vaccinations/ mist applications were available. There was no one advising of needed documentation, there is absolutely nothing being done to make the process less 'painful' for the masses showing up for the shot (and all of the hoopla on TV and in the newspapers causing nothing short of anxiety and panic).Keep trying. Call everyone you know. Find out what you need to do to make the process work for you.On a brighter note, I finally got the National Jewish take on my biopsy. They said there were minor UIP indications and minimal honeycombing but that the overall indication was fibrotic NSIP (the local reading negated NSIP for the UIP). I also completed the out-processing on my pulmonary rehab. My blood gas readings improved, my tolerance for aerobic exercise improved and my pulmonary function tests also showed improvement. My overall tolerance level to my condition is better than 2 months ago. The proviso now is to maintain the program of exercise (with expanding tolerance levels) for the rest of my life.... in the event I opt for an eventual lung transplant. It only takes two weeks of inactivity to negate all of that improvement. I also lost 8 pounds in 6 weeks and my A1c was down to 5.7 from 6.3!!Stefani 61 year old UtahnILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> > >> > >> > > From: Beth mbmurtha (AT) yahoo (DOT) com>> > > Subject: Checking in from Chattanooga TN> > > To: Breathe-Support@ yahoogroups. com> > > Date: Thursday, October 29, 2009, 8:45 PM> > >> > >> > >> > >> > > Hi all!> > > After a longish day in the car I'm happy to report the safe> > arrival in Chattanooga of myself, Peggy and , Teri Marietta and> > Jane. (well Jane just came down for a couple of hours to chat this> > evening but she'll be back tomorrow with Eddie.> > > Tomorrow we'll have lots more arrivals to report. I'm so> > happy to be here!! Off to bed shortly, I'm really tired but once> again,> > supremely happy!> > >> > > Beth> > >> > > Moderator> > >> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > >> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.