Re: Re: Should I open my big mouth or not?

[Guest guest]

ok, after reading the other posts I see my idea isn't the first

one. So I did it.

For now membership is open, I have not made any adjustements to this

group, just created it quickly. If y'all are interested I'll know

because you will subscribe.

Let me know if we should keep it open membership or moderated. And

if moderated, how should we determine eligibility?

thanks everyone, hope no one minds yet *another* list... use your

filters!! link to join below my sig.

Kori

Congratulations!

Your Group ParentsNS4CF has been created. You can access your group

using the link below or from the Yahoo! Groups " My Groups " page.

Group name: ParentsNS4CF

Group home

page:

<http://groups.yahoo.com//group/ParentsNS4CF>http://groups.yahoo.com/group/Paren\

tsNS4CF

Group

email: <mailto:ParentsNS4CF >ParentsNS4CF

At 10:21 AM 1/18/2006, you wrote:

>everyone, I agree. I do however think many moms need a little bit of

>mom talk sometimes and since many of us aren't on other mom's lists

>these kinds of posts do happen.

>

>I wonder if everyone here would consider another group dedicated to

>CF parents to talk *off topic*? If y'all are interested I would be

>happy to set it up.

>

>Another idea for those with full mailboxes is to use your email

>program's filtering and sorting features. This will take all posts

>from any particular person/group address or whatever (you decide how

>to filter) and will automatically put posts into a separate mailbox

>or folder so that you can choose to read a list/group at your

>leisure. For example, you filter all mail sent to

>*nosurgery4clubfoot * into the nosurgery mailbox or

>folder. Then when you open your email all your personal emails are

>in your inbox, and when you have time you can read the nosurgery

>list. Then, you can do a mass delete of that whole box when you want

>to. This has been a lifesaver for me with the many lists/groups I

>belong to and I would never be able to keep up with anything any

>other way. If anyone needs help with filtering, I do have a file

>with information about mail filters for various different software

>and online email services that I can send you. Filtering is

>easy... you won't go back once you try it!

>

>Kori

>

>

>

>At 04:44 AM 1/18/2006, you wrote:

> >

> >,

> > I just want to BACK up what you are saying. I actually joined

> >this group over 3 years ago to find help for my daughter. About 7

> >mos. ago I had to cancel my membership because the board very rarely

> >has any clubfoot related issues on it anymore and my box was

> >constantly full. It just takes sooooo long to go through each

> >message and find out who needs actual support or help. I think it

> >is awesome that the board has brought so many people together. Alot

> >of moms have met people and become friends.......I think that once

> >that happens people need to exchange email addresses or instant

> >message! For new members to come on the board and read through the

> >first pages of messages and find NOTHING related to clubfoot that

> >may make them look elsewhere. Just a thought from me too.....

> > & Grace

> > >

> > > Hi all my clubfoot mom (and dad) friends (she says with some

> > > trepidation)...I'm just gonna go ahead and say this and if you all

> > > want to tell me to put a sock in it, go on -- I noticed that we

> >have

> > > been having a lot of Off Topic chat lately, which PLEASE don't get

> >me

> > > wrong, I love chatting with you all about all the other parenting

> > > stuff besides the whole CF thing but I just thought I would point

> >out

> > > that poor Isabella has these awful awful sores and DeeDee posted

> >last

> > > night that her heels were not staying down in her Markells and we

> > > missed it.

> > > Now since I'm not a moderator here or anything I don't know if I

> > > should even be putting this out there, M you can shoot down

> > > this post for sure if you think I'm out of line, but I just wanted

> >to

> > > remind everyone of our ultimate goal here, um, helping clubfoot

> >babies

> > > and their parents so bad stuff doesn't happen to them.

> > > Gosh I don't want to be a big downer, and shoot, I know you all are

> > > going to not talk to me now but I just thought it should be said.

> >I

> > > think I'm going to go to bed now so I can wake up in the a.m. and

> >see

> > > how you all have responded to this. Have a great night!

> > >

> > > Love you guys!

> > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Ok,

got a couple of questions.. First do we have to join? And second, does this

mean we can no longer post off topic questions on the nonsurgery4clubfoot group?

thanks,

michelle

frogabog wrote:

ok, after reading the other posts I see my idea isn't the first

one. So I did it.

For now membership is open, I have not made any adjustements to this

group, just created it quickly. If y'all are interested I'll know

because you will subscribe.

Let me know if we should keep it open membership or moderated. And

if moderated, how should we determine eligibility?

thanks everyone, hope no one minds yet *another* list... use your

filters!! link to join below my sig.

Kori

Congratulations!

Your Group ParentsNS4CF has been created. You can access your group

using the link below or from the Yahoo! Groups " My Groups " page.

Group name: ParentsNS4CF

Group home

page:

<http://groups.yahoo.com//group/ParentsNS4CF>http://groups.yahoo.com/group/Paren\

tsNS4CF

Group

email: <mailto:ParentsNS4CF >ParentsNS4CF

At 10:21 AM 1/18/2006, you wrote:

>everyone, I agree. I do however think many moms need a little bit of

>mom talk sometimes and since many of us aren't on other mom's lists

>these kinds of posts do happen.

>

>I wonder if everyone here would consider another group dedicated to

>CF parents to talk *off topic*? If y'all are interested I would be

>happy to set it up.

>

>Another idea for those with full mailboxes is to use your email

>program's filtering and sorting features. This will take all posts

>from any particular person/group address or whatever (you decide how

>to filter) and will automatically put posts into a separate mailbox

>or folder so that you can choose to read a list/group at your

>leisure. For example, you filter all mail sent to

>*nosurgery4clubfoot * into the nosurgery mailbox or

>folder. Then when you open your email all your personal emails are

>in your inbox, and when you have time you can read the nosurgery

>list. Then, you can do a mass delete of that whole box when you want

>to. This has been a lifesaver for me with the many lists/groups I

>belong to and I would never be able to keep up with anything any

>other way. If anyone needs help with filtering, I do have a file

>with information about mail filters for various different software

>and online email services that I can send you. Filtering is

>easy... you won't go back once you try it!

>

>Kori

>

>

>

>At 04:44 AM 1/18/2006, you wrote:

> >

> >,

> > I just want to BACK up what you are saying. I actually joined

> >this group over 3 years ago to find help for my daughter. About 7

> >mos. ago I had to cancel my membership because the board very rarely

> >has any clubfoot related issues on it anymore and my box was

> >constantly full. It just takes sooooo long to go through each

> >message and find out who needs actual support or help. I think it

> >is awesome that the board has brought so many people together. Alot

> >of moms have met people and become friends.......I think that once

> >that happens people need to exchange email addresses or instant

> >message! For new members to come on the board and read through the

> >first pages of messages and find NOTHING related to clubfoot that

> >may make them look elsewhere. Just a thought from me too.....

> > & Grace

> > >

> > > Hi all my clubfoot mom (and dad) friends (she says with some

> > > trepidation)...I'm just gonna go ahead and say this and if you all

> > > want to tell me to put a sock in it, go on -- I noticed that we

> >have

> > > been having a lot of Off Topic chat lately, which PLEASE don't get

> >me

> > > wrong, I love chatting with you all about all the other parenting

> > > stuff besides the whole CF thing but I just thought I would point

> >out

> > > that poor Isabella has these awful awful sores and DeeDee posted

> >last

> > > night that her heels were not staying down in her Markells and we

> > > missed it.

> > > Now since I'm not a moderator here or anything I don't know if I

> > > should even be putting this out there, M you can shoot down

> > > this post for sure if you think I'm out of line, but I just wanted

> >to

> > > remind everyone of our ultimate goal here, um, helping clubfoot

> >babies

> > > and their parents so bad stuff doesn't happen to them.

> > > Gosh I don't want to be a big downer, and shoot, I know you all are

> > > going to not talk to me now but I just thought it should be said.

> >I

> > > think I'm going to go to bed now so I can wake up in the a.m. and

> >see

> > > how you all have responded to this. Have a great night!

> > >

> > > Love you guys!

> > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I love the community feeling as well, but I am a stay at home mom with four kids

who doesn't get out much. LOL I get much of my social needs met by phone and

internet.

Carol and

Re: Should I open my big mouth or not?

I agree that the threads can get lengthy but also makes a

point and since we are not just parents of clubfoot children, but also

just parents, it can be nice to have support in other areas,

particularly for those who work full time or have other commitments

that prevent them from networking with parents in their local area. I

have a suggestion for those of you who use Yahoo (some other mail

delivery systems have this feature as well): you can set up filters

to direct your mail into separate folders.

All I have done is set up a filter called Clubfoot OT and told the

system that anything with OT in the subject line (and you can tell it

to match the case as well) should be directed there. Now sometimes

when I do this other stuff filters in as well, but you just have to

watch for it. Perhaps newcomers should be told that this is the

system and it should be enforced among the rest of us that we must

always use OT in the subject line. Basically for myself, I tend to

read the original post and then if it isn't of interest to me, I

delete the rest. I find that even with the clubfoot conversations

that most people are pretty specific in their subject lines and if it

is not a topic that pertains to me at this point, I just go ahead and

delete those ones. As one of the other members pointed out, there's

no way of knowing how long a thread will go on, so I guess if it

reaches a certain limit then maybe the members could switch to private

emails. For myself, when I open my mailbox and see all of those

posts, I get a warm fuzzy feeling because I am part of a community

that shares a common bond.

Just my two bits!

> >

> > Hi all my clubfoot mom (and dad) friends (she says with some

> > trepidation)...I'm just gonna go ahead and say this and if you all

> > want to tell me to put a sock in it, go on -- I noticed that we

> have

> > been having a lot of Off Topic chat lately, which PLEASE don't get

> me

> > wrong, I love chatting with you all about all the other parenting

> > stuff besides the whole CF thing but I just thought I would point

> out

> > that poor Isabella has these awful awful sores and DeeDee posted

> last

> > night that her heels were not staying down in her Markells and we

> > missed it.

> > Now since I'm not a moderator here or anything I don't know if I

> > should even be putting this out there, M you can shoot down

> > this post for sure if you think I'm out of line, but I just wanted

> to

> > remind everyone of our ultimate goal here, um, helping clubfoot

> babies

> > and their parents so bad stuff doesn't happen to them.

> > Gosh I don't want to be a big downer, and shoot, I know you all are

> > going to not talk to me now but I just thought it should be said.

> I

> > think I'm going to go to bed now so I can wake up in the a.m. and

> see

> > how you all have responded to this. Have a great night!

> >

> > Love you guys!

> >

> >

>

[Guest guest]

yes , you have to join. rules are rules... lol...

of course not. I am fine seeing ot posts here personally. I think

another list however will allow the long term ot posts to go on (as

they should) if needed. if people want to join, they will and it'll

work. If not a lot of people join, it obviously isn't what we

need. But it's there if you want. Who knows, I may end up deleting

it. It was easier to do this with the time I had this morning than

to create a poll or watch this thread. It either works or it

doesn't. I don't care either way actually.

If most of us don't join though, it wouldn't necessarily be the same

as being able to post here about OT stuff and get the entire world's

opinion's/advice. So i have mixed optimism about it being entirely

successful. If enough members are there however, and there wasn't a

moratorium on OT posts here (as there is not yet as far as I know) an

OT thread could theoretically be moved over there and continued

without clogging up this list.

hummm...

Kori

At 11:41 AM 1/18/2006, you wrote:

>Ok,

> got a couple of questions.. First do we have to join? And second,

> does this mean we can no longer post off topic questions on the

> nonsurgery4clubfoot group?

> thanks,

> michelle

>

>frogabog wrote:

> ok, after reading the other posts I see my idea isn't the first

>one. So I did it.

>

>For now membership is open, I have not made any adjustements to this

>group, just created it quickly. If y'all are interested I'll know

>because you will subscribe.

>

>Let me know if we should keep it open membership or moderated. And

>if moderated, how should we determine eligibility?

>

>thanks everyone, hope no one minds yet *another* list... use your

>filters!! link to join below my sig.

>

>Kori

>

>

>Congratulations!

>

>Your Group ParentsNS4CF has been created. You can access your group

>using the link below or from the Yahoo! Groups " My Groups " page.

>Group name: ParentsNS4CF

>Group home

>page:

><http://groups.yahoo.com//group/ParentsNS4CF>http://groups.yahoo.com/group/Pare\

ntsNS4CF

>

>

>Group

>email: <mailto:ParentsNS4CF >ParentsNS4CF

>

>

>

>At 10:21 AM 1/18/2006, you wrote:

> >everyone, I agree. I do however think many moms need a little bit of

> >mom talk sometimes and since many of us aren't on other mom's lists

> >these kinds of posts do happen.

> >

> >I wonder if everyone here would consider another group dedicated to

> >CF parents to talk *off topic*? If y'all are interested I would be

> >happy to set it up.

> >

> >Another idea for those with full mailboxes is to use your email

> >program's filtering and sorting features. This will take all posts

> >from any particular person/group address or whatever (you decide how

> >to filter) and will automatically put posts into a separate mailbox

> >or folder so that you can choose to read a list/group at your

> >leisure. For example, you filter all mail sent to

> >*nosurgery4clubfoot * into the nosurgery mailbox or

> >folder. Then when you open your email all your personal emails are

> >in your inbox, and when you have time you can read the nosurgery

> >list. Then, you can do a mass delete of that whole box when you want

> >to. This has been a lifesaver for me with the many lists/groups I

> >belong to and I would never be able to keep up with anything any

> >other way. If anyone needs help with filtering, I do have a file

> >with information about mail filters for various different software

> >and online email services that I can send you. Filtering is

> >easy... you won't go back once you try it!

> >

> >Kori

> >

> >

> >

> >At 04:44 AM 1/18/2006, you wrote:

> > >

> > >,

> > > I just want to BACK up what you are saying. I actually joined

> > >this group over 3 years ago to find help for my daughter. About 7

> > >mos. ago I had to cancel my membership because the board very rarely

> > >has any clubfoot related issues on it anymore and my box was

> > >constantly full. It just takes sooooo long to go through each

> > >message and find out who needs actual support or help. I think it

> > >is awesome that the board has brought so many people together. Alot

> > >of moms have met people and become friends.......I think that once

> > >that happens people need to exchange email addresses or instant

> > >message! For new members to come on the board and read through the

> > >first pages of messages and find NOTHING related to clubfoot that

> > >may make them look elsewhere. Just a thought from me too.....

> > > & Grace

> > > >

> > > > Hi all my clubfoot mom (and dad) friends (she says with some

> > > > trepidation)...I'm just gonna go ahead and say this and if you all

> > > > want to tell me to put a sock in it, go on -- I noticed that we

> > >have

> > > > been having a lot of Off Topic chat lately, which PLEASE don't get

> > >me

> > > > wrong, I love chatting with you all about all the other parenting

> > > > stuff besides the whole CF thing but I just thought I would point

> > >out

> > > > that poor Isabella has these awful awful sores and DeeDee posted

> > >last

> > > > night that her heels were not staying down in her Markells and we

> > > > missed it.

> > > > Now since I'm not a moderator here or anything I don't know if I

> > > > should even be putting this out there, M you can shoot down

> > > > this post for sure if you think I'm out of line, but I just wanted

> > >to

> > > > remind everyone of our ultimate goal here, um, helping clubfoot

> > >babies

> > > > and their parents so bad stuff doesn't happen to them.

> > > > Gosh I don't want to be a big downer, and shoot, I know you all are

> > > > going to not talk to me now but I just thought it should be said.

> > >I

> > > > think I'm going to go to bed now so I can wake up in the a.m. and

> > >see

> > > > how you all have responded to this. Have a great night!

> > > >

> > > > Love you guys!

> > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >