Guest guest Posted March 21, 2010 Report Share Posted March 21, 2010 I had one person answer a few questions. Has anyone else had similar situations? Also, my internal med Dr. says I can't have this disease. She says I just have hyperparathyroidism, because all my calcium levels are so high. The Dr. diagnosing me is at the Universtiy of Washington med. center. Would it be better to just be treated there entirely for this? The drive is 2 1/2 hours each way! > > I have a couple of questions. I am currently going through the diagnosis > process even though I have been sick over 25 years with this. I am now 54 > years old. > #1. At times, I can see so-so, and other times everything is too blurry to > see anything, except colors. With medication, can this get better? I can no > longer read and my eyes always hurt and are dry. > #2. Could someone tell me something about bone sarcoidosis. The bones in my > feet and lower legs are breaking without even falling or bumping them. Does > this ever get better? > #3. I am in extreme pain due to the swelling in my parotid glands. How > often does this affect people? For over 2 years, I have been looking like a > chipmunk. I've also had to have another tooth pulled, due to abcess. > #4. I get very sick being outside on a cloudy day for even 15 minutes. > When I go inside, it feels like the inisides of my eyes feel sunburnt and my > skin turns bright red. I also have a temperature regulation problem and I > am always hot, and then skin turns bright red. Is this common? > #5. I have been on disability for 20 years and in Dec., Social Security > decided I am not disabled and I have been committing fraud, because the Dr. > reports vary so much. The diagnosis should help in my case, I hope? Is > sarcoidosis considered a disabling condition? > > It seems that almost every organ is already affected! During this whole > time, all of the Drs. would say that there is something wrong with me, but > they didn't know what, so just told me that I had a lot of medical > problems. Its so nice to be able to hope for a diagnosis! > Thank you for your help! I just joined today and this all makes me very > worried! Judy > Quote Link to comment Share on other sites More sharing options...
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