Need Advice new member

[Guest guest]

I was diagnosed with Sarcoid 12/09. My symptoms started back in September. It

started with severe neck and back pain, then numbness in my fingers which slowly

spread up my arm to my torso. It was the strangest thing. I then developed Bells

Palsy on the left side of my face. That is when I went to my 3rd doctor to try

and find out what was wrong with me. GP asked for complete family history and

my sister has sarcoid. Thank God she has been symtom free for over 9 years. The

doctor decided to order a ACE level. Well my results were very high 129. My

doctor didn't want to do much she treated my Bell's Palsy with steroids and

thankfully my Bell's Palsy went away. I asked for a chest x-ray and it showed

Hilar Adenopathy but just on the right lung. I then saw a pulmonoligist. At that

point I did not have any pulmonary symptoms. I live in Arizona and went to

Sedona for a few days and the elevation is very high and found that I was

getting short of breath. I told my pulmonoligist this and he really did not say

to much. Anyways recently I developed sarcoid in the right eye. My eye was red

it didn't hurt was a little sore. I was hoping it was pink eye. It wasn't so I

have been using prednisone eye drops for 3 weeks now. My opthamologist suggested

that I get a MRI of my brain to rule out cerebral vasculitis. I have my MRI in 2

1/2 weeks. I just feel like I can not find a doctor who will help me. My sister

has a great doctor in new york. He is a internal medicine doctor who has a

specialty in pulmonology. How can I find a Family Practice doctor who truly

understands sarcoid without having to go to see a opthamologist,

pulmonoligist.....etc

Thanks