Re: Oklahoma

[Guest guest]

Larissa,

I'm in Oklahoma, I think we spoke on here recently didn't we?

According to Dr. Ponseti's secretary, your doctor is not on any " approved " lists

qualifying him in the Ponseti Method. And if you son is having so much trouble

with treatment that tells me your doctor is not really using the method. He

might be using a lose version of it, a modified version or just his idea of it

all - but there shouldn't be these kinds of issues if it's been done right.

It sounds like you're getting conflicting answers from everyone you talk to

there which of course is no help to you whatsoever!

Use of the FAB is really critical, so for them to say just take it off until

you come back in is wrong on many levels. Obviously they don't understand the

importance of it...or the importance of one that doesn't fit right causing

problems that need addressed immediately.

If the FAB hasn't been used right or the fit has been poor, the foot may have

relapsed to the point that the FAB is indeed doing more harm than good at this

point.

If is having trouble with the FAB, yes, it could be one of those cases

where he just cannot tolerate that style of shoe, it's been known to happen.

More often than not though, it's not the shoe's fault, it's the foot is not

corrected and thus the shoe hurts and causes sores, etc.

If the foot is not ready for the FAB, then NO fab is going to work on him. You

need to be sure the foot is ready before trying other shoes. Unfortunately, if

there is any question about the feet being corrected or not I don't know how

you'd find that out with out a 2nd opinion from someone who actually knows this

stuff... meaning, traveling to a well-qualified PONSETI doctor...not some

Oklahoma wanna-be. Sorry if that sounds harsh honey but my 1st son went through

the wringer with faulty treatments before I saw the Light. There just wasn't

help to be had here.

I think you were going to try to send photos through to us, is that possible?

Because with out seeing the feet our hands are kind of tied. We can't say if he

look atypical or other wise; if he is a case of atypical, then you definately

need to get him out of Oklahoma!!! Very few doctors can fix that problem. I'm

not even sure what you mean when you say the shoes are hurting him and stuff.

Could they be too small, too large? Put on incorrectly? Set incorrectly? Not

enough hours, too many hours? It's just so hard to say.

Um, I guess try to describe the problems you're having in a little more detail

to us cuz there are just so many variables to consider. And if you can send a

photo through that would be a huge help too.

shawnee

Oklahoma

Is there anyone on the website from OK? Like to what Dr they are

going to.

We go back to the orthotic on Wed. and then to ortho. after that to

check his feet. Any suggestion from anyone? We go to Children's in

OKC he sees Dr Herndon. We see trexler at orthotic. I was

told last week when I was having problems that Dr uses the ponseti

method. When I called ortho they wasn't much help then, so I called

the orthotic dept. he says he shouldn't be that fussy, were he

screams for hours and hours told me to take off to he sees him on

the 1st of Feb. Then the next day the ortho dept. called me told

them orthotic told me to take off for now he told me to come in

after we see them. That's when he told me they use the ponseti

method. Does anyone know Dr. Herndon from Children's, he also has a

office in Edmond Ok. Can anyone tell me about the new sandels

Ponseti help design, post to be more comfortable. Easier leather

not post to rub the heels, stay in better. Anysuggestion?

Thanks

Larissa and cb 7-15-05