Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Hi Dan and , I don't have any knowledge in this area but just wanted to say that I am sorry that you guy's and Emma are having to deal with this! Hope you get it all figured out and fixed. Hugs, & Grace > > Hi Kassia, > > Thanks for the info. I do have a couple of questions. Was jake able to bring > his foot up to neutral and did the lump disappear when he did pull up? Emma > had both feet worked on but the right has a more prominent lumpy area. > However, it only appears when her feet are dangling. If she pulls up the > area tightens up and there is no sign of a lump. She is also able to bring > her foot to neutral just like the left one. > > Was it easier on Jake the second time around? > > Thanks again, > Dan > Re: ATTT/detached tendon > > > Hi Dan > > As far as I know, my son, Jake, is the only child on these boards who's > had the ATTT done twice. Dr Dietz could tell at Jake's first follow-up appt > after his first surgery, that he would probably need the surgery re- done. > The tendon had pulled out a bit from the bone and wasn't working well at > pulling his foot upwards. There was a little lump on the top of his foot > where the tendon was placed. Dr Dietz said this was because of the tendon > pulling out. > > Jake's main symptom was that he didn't lift his foot well while walking. > It looked kind of like foot-drop, if you've ever seen that. His foot didn't > curve inwards, it was still pretty straight. Let me be perfectly clear > though, this didn't slow Jake down in the least. He could walk & run just > like the other kids, never complained of any pain, and never seemed to get > tired easily or anything. Our concern, and why we went ahead with another > ATTT so soon, was because Jake's foot was still very flexible. If we waited > too long and his foot started to stiffen up, then he would have required > surgery involving the joint spaces (which can cause kids foot pain as > adults). > > Let me know if you need more info or have more questions! > > Kassia > 3/22/01 (Lt clubfoot, ATTT #2 Oct 2005) > and 1/22/02 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 & Grace, Thanks for your kind thoughts. Right now we're not sure that this is the case. I'm a paranoid worrier so am always thinking that something is wrong. This may be just another case of that. We'll be sending another video to Drs Ponseti and Morcuende to determine if anything is wrong. So far there are no other signs apart from the lumpiness. We'll hopefully know more next week.. Dan Re: ATTT/detached tendon > > > Hi Dan > > As far as I know, my son, Jake, is the only child on these boards who's > had the ATTT done twice. Dr Dietz could tell at Jake's first follow-up appt > after his first surgery, that he would probably need the surgery re- done. > The tendon had pulled out a bit from the bone and wasn't working well at > pulling his foot upwards. There was a little lump on the top of his foot > where the tendon was placed. Dr Dietz said this was because of the tendon > pulling out. > > Jake's main symptom was that he didn't lift his foot well while walking. > It looked kind of like foot-drop, if you've ever seen that. His foot didn't > curve inwards, it was still pretty straight. Let me be perfectly clear > though, this didn't slow Jake down in the least. He could walk & run just > like the other kids, never complained of any pain, and never seemed to get > tired easily or anything. Our concern, and why we went ahead with another > ATTT so soon, was because Jake's foot was still very flexible. If we waited > too long and his foot started to stiffen up, then he would have required > surgery involving the joint spaces (which can cause kids foot pain as > adults). > > Let me know if you need more info or have more questions! > > Kassia > 3/22/01 (Lt clubfoot, ATTT #2 Oct 2005) > and 1/22/02 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Well Dan, you sound just like this worry wart over here. Hope it turnes out to be absolutely nothing! Please let us know when you hear back, thinkin of you guys! & Grace > > > > Hi Kassia, > > > > Thanks for the info. I do have a couple of questions. Was jake able > to bring > > his foot up to neutral and did the lump disappear when he did pull > up? Emma > > had both feet worked on but the right has a more prominent lumpy > area. > > However, it only appears when her feet are dangling. If she pulls > up the > > area tightens up and there is no sign of a lump. She is also able > to bring > > her foot to neutral just like the left one. > > > > Was it easier on Jake the second time around? > > > > Thanks again, > > Dan > > Re: ATTT/detached tendon > > > > > > Hi Dan > > > > As far as I know, my son, Jake, is the only child on these boards > who's > > had the ATTT done twice. Dr Dietz could tell at Jake's first > follow-up appt > > after his first surgery, that he would probably need the surgery re- > done. > > The tendon had pulled out a bit from the bone and wasn't working > well at > > pulling his foot upwards. There was a little lump on the top of > his foot > > where the tendon was placed. Dr Dietz said this was because of the > tendon > > pulling out. > > > > Jake's main symptom was that he didn't lift his foot well while > walking. > > It looked kind of like foot-drop, if you've ever seen that. His > foot didn't > > curve inwards, it was still pretty straight. Let me be perfectly > clear > > though, this didn't slow Jake down in the least. He could walk & > run just > > like the other kids, never complained of any pain, and never seemed > to get > > tired easily or anything. Our concern, and why we went ahead with > another > > ATTT so soon, was because Jake's foot was still very flexible. If > we waited > > too long and his foot started to stiffen up, then he would have > required > > surgery involving the joint spaces (which can cause kids foot pain > as > > adults). > > > > Let me know if you need more info or have more questions! > > > > Kassia > > 3/22/01 (Lt clubfoot, ATTT #2 Oct 2005) > > and 1/22/02 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 Hi Dan > Was jake able to bring > his foot up to neutral and did the lump disappear when he did pull up? Jake was only able to lift his foot a little. He could flex his toes up, but not his entire foot. I don't remember about the lump as to whether it disappeared or stayed, although I would assume it stayed. > Was it easier on Jake the second time around? That is kind of hard to say. He definitely understood more about what was going on. He had different anesthesia this time; the first time they tried to give him a caudal anesthetic (basically like an epidural women get in labor, but lower on the spine) but they were unable to place it. He spent the first day & overnight that time kind of gorked on a morphine drip and was pukey from the morphine, but was fine the next day when they switched him over to oral pain medication. The second time, we had a different anesthesiologist and he put a nerve block directly into his leg, which worked great until about 2am when it wore off and Jake was in agony. Of course the morphine drip didn't work so he got switched to oral pain meds overnight, which worked fairly well. Jake " behaved " better after surgery too; he definitely does NOT want to have surgery again so he followed instructions as far as being non-weightbearing to a T. From what you've said about your daughter, it sounds like she is doing very well, able to lift her feet etc. Is the lump on top of her foot your only concern? That could just be the way she's built...my husband has a lump on top of both of his feet and he has normal feet (well, as normal as size 13s can be lol!). Kassia 3/22/01 (Lt clubfoot, ATTT #2 October 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Kassia, Just curious, now that Jake has had the ATTT the 2nd time and all is well, how much can he dorsiflex his foot, i.e. pull it up on his own from flat on the floor? Thanks, > > Dan, > > One thing I meant to add...the *function* of Jake's foot was more our concern, not just that there was a lump on his foot. Jake really could hardly lift his left foot up which would have interfered with walking & running eventually. > > Hope that makes more sense... > > Kassia > 3/22/01 (Lt clubfoot, ATTT #2 October 2005) > and 11/22/02 > Quote Link to comment Share on other sites More sharing options...
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