Re: AMBER Question/Introduction

[Guest guest]

Oh poor ! As for political correctness, my mother isn't even sixty and

still says " negro " - my sister and I just want to die in public a lot of the

time!

number23 wrote: Well he was an old man and I

guess political correctness just wasn't his cup of tea. I don't remember

saying anything because at that point was coming off the field in tears

for getting " out " .

s.

Question/Introduction

Hello all, my name is Amber. I'm 19 years of age, and my son Keegan

is only 1 month old. I'm here obviously because of his club foot. I

was surprised to see so many others in a situation much like mine.

I've never heard of the condidition before giving birth to him, and

I was happy to hear that it isn't terribly serious. (In a sense it

is, but if that's the only problem he has, then I'm happy with that.

It could be a lot worse.)

Anyway, he's currently on his third cast so far, we went on

wednesday to get that one put on him.. this one is slightly turned

the other way, so he was quite uncomfortable when we got home that

day. He must have done a lot fo squirming underneath that cast,

because last night I noticed that his foot had gone up into the cast

a bit.. this didn't alarm me, as it did the last time as well, and

they told me I could just call in if it happened again. Since it was

very late at night, I was going to call first thing in the morning.

When I went into his room to feed him at 6am ish this morning, I

noticed that the entire leg cast had come off.

I can't help but giggle at him. 1 month old and he's strong enough

to wiggle out of an entire leg cast! I've never heard of anyone

being able to do that.

My question is: Has this happened to any of you? And how did the

doctors treat the situation? Did they have you come right in as soon

as it happened? It's friday so the office closes as of 4 today. and

they can't get me in, they think it'll be monday. This seems odd to

me, because I figured they'd have me come in as soon as possible. As

long as it doesn't mess up the progress he;s made already, I don't

mind waiting that long. It's already been so nice being able to bath

him properly, and let him sleep comfortably on his tummy right

beside me. I know he loves it too, you can tell he's very relieved

to have his leg exposed again. It's very swollen, so that warm bath

must have felt wonderful.

Okay, I'll stop babbling. Just curious to see if this has happened

to any of you before.

- Amber

[Guest guest]

ee,

First of all, I love it when you all fired up like this!!

I've only been part of this group for 7 weeks, and haven't really

shared because I'm still pregnant with my bcf baby boy, but believe

me, I'm reading all posts...and I HEAR YOU LOUD AND CLEAR. Just

from reading this and some of your prior posts, my husband and I

have come to realize how much wisdom you have. You've been on both

sides of the clubfoot track and for that reason, my husband and I

have decided that regardless of how much $$$ this is going to cost

us now, we would only want the best for our bcf baby boy, once he

arrives. We've decided to fly to Northern Calif to see Dr.

Colburn. I've already talked to a few Moms who had him as their

doctor and they just can't say enough about him. I'm actually more

excited about making that first visit to Dr. Colburn than I am about

my Tea Party/Baby Shower that someone is throwing for me!! LOL!! I

spend more time looking at flight schedules than I do on my baby

registery. I just can't wait to get this show on the road.

But seriously, thank you (and everyone else here, for that matter)

for sharing your stories/experiences and letting us " newbies " inside

your heads.

Janice

BCF boy edd 03.11.06

>

> Hi Amber, congratulations on your new baby! I'm glad you found

your way to our group here, most people are surprised to find out

club foot happens so often even though we almost never hear about it

until it hits in our own families. It's a fairly common birth

defect though, and very correctible if it is treated by the right

doctor.

>

> Right off the bat I'm concerned it sounds like your doctor has

such a relaxed attitude about the cast(s) slipping off. Like

someone else said, ANY slippage is bad and can do more damage than

good if the foot is allowed to stay in a slipped cast. By the same

token, going with out a cast is not good either - as the child will

lose correction. However it's better to lose correction than

gain " bad " correction inside a slipped cast. (Was that clear as

mud?)

>

> Long story short, a slipped cast should be replaced immediately;

if it can't be replaced immediately, it should be removed at home

and then replaced absolutely as soon as possible....which is what

your little boy did! haha

>

> Casts shouldn't slip though, only in rare instances do they slip

IF they had been put on properly. That your son is having slippage

issues is a big red flag to me.

>

> We don't know where you are or what doctor you are seeing. Does

this doctor cliam to be using the Ponseti Method? If not I really

urge you to find one who does, even if that means to travel a long

distance. (Wait, hear me out!) The difference in treatment and the

over all long term success is worth it when you figure this baby

will spend the rest of his life on these feet you end up giving

him. A life time on sore feet isn't much of a future, kwim?

Imagine your's hurting every day, or being unable to do a lot of the

every-day activities you take for granted...even running and jumping

or wearing a cool pair of shoes for a special occasion.

>

> Most of us here do have to travel a great deal to get our child's

club foot/feet corrected but we also know a lot of ways to make that

possible on a tight budget and would be thrilled to help you work

that out. Myself, I have been going from Oklahoma to Iowa City,

Iowa to see Dr. Ponseti. Other's travel a great deal further, but

then again, lately there are more doctors to choose from so maybe

you are in the same city as one and just don't realize it.

>

> Keep in mind though that a lot of doc's seem to claim to use the

Ponseti Method but actually do not. All cf treatment involves

serial casting such as you are getting - but " serial casting " only

means a Series Of Casts. What makes one treatment method better

than another is how the foot and bones are manipulated inside of

that cast. Done right the foot will be corrected in matter of a few

weeks (average of 5 weeks) of serial casting.

>

> I get tired of saying this but I don't know how else to drive home

my point - I currently have 2 sons, both were born with Bilateral

Club Feet (both feet affected). My oldest son was not treated with

the Ponseti Method, although his doctor came " highly recommended " .

I did not know such a thing existed. He is 7 years old now and his

feet continue to have issues. My 2nd son was treated by Dr. Ponseti

and at age 2 years, his feet are actually perfect with hardly any

visual appearance of CF. The older he gets, the less you can see

any sign of cf.

>

> It's a hassell to travel out of state to get treatment, but the

difference is so black & white that I do not regrett one minute I

spent away from home getting the right treatment. This spring I am

expecting my 3rd baby. Ultrasound shows he too is a boy who will be

born with bilateral club feet. Again we will travel out of state to

get our treatment rather than settle for less than perfect results

at home.

>

> When a birth defect is as 99% fixable as clubfoot is, I just see

no reason to settle for 2nd best. These boys will live all their

lives on the feet they have, so why would I want them to have 2nd

rate feet if they don't have to? A couple years ago wanted

to play T-ball and I enrolled him on a team. One day at a game

was running between two bases and got tagged " Out " . A man

said to me, " Why do they tag the little crippled kids out? They

should let him run the bases. " That little crippled kid he was

talking about was my oldest son out there looking like a pity-case

on the ball field trying to run bases on his crooked up feet that

the " Highly Recommended Specialist " had fixed.

>

> That is NOT what club foot is about!!! Club Foot should NOT

cripple a kid!!! (or earn that child hurtful remarks)

>

> My 2nd son has perfect feet, I can't stress that enough - there is

no sign of cf in this boy aside from the little bit of extra skin at

his ankle that goes away in time.

>

> If you are interested in finding out more, PLEASE take some time

to look at the Links and Files of this group for more information

regarding the Ponseti Method vs. other methods, for doctors, for

tips, for research, testimonials, photos, etc. and keep coming here

too for support. We can help you find the best doctor who can give

your son the best feet possible, and if you have to travel for it,

we can help you travel and get treatment for as little $$ as

possible.

>

> Best of luck to you!

> ee

> Question/Introduction

>

>

> Hello all, my name is Amber. I'm 19 years of age, and my son

Keegan

> is only 1 month old. I'm here obviously because of his club

foot. I

> was surprised to see so many others in a situation much like

mine.

> I've never heard of the condidition before giving birth to him,

and

> I was happy to hear that it isn't terribly serious. (In a sense

it

> is, but if that's the only problem he has, then I'm happy with

that.

> It could be a lot worse.)

>

> Anyway, he's currently on his third cast so far, we went on

> wednesday to get that one put on him.. this one is slightly

turned

> the other way, so he was quite uncomfortable when we got home

that

> day. He must have done a lot fo squirming underneath that cast,

> because last night I noticed that his foot had gone up into the

cast

> a bit.. this didn't alarm me, as it did the last time as well,

and

> they told me I could just call in if it happened again. Since it

was

> very late at night, I was going to call first thing in the

morning.

> When I went into his room to feed him at 6am ish this morning, I

> noticed that the entire leg cast had come off.

>

> I can't help but giggle at him. 1 month old and he's strong

enough

> to wiggle out of an entire leg cast! I've never heard of anyone

> being able to do that.

>

> My question is: Has this happened to any of you? And how did the

> doctors treat the situation? Did they have you come right in as

soon

> as it happened? It's friday so the office closes as of 4 today.

and

> they can't get me in, they think it'll be monday. This seems odd

to

> me, because I figured they'd have me come in as soon as

possible. As

> long as it doesn't mess up the progress he;s made already, I

don't

> mind waiting that long. It's already been so nice being able to

bath

> him properly, and let him sleep comfortably on his tummy right

> beside me. I know he loves it too, you can tell he's very

relieved

> to have his leg exposed again. It's very swollen, so that warm

bath

> must have felt wonderful.

>

> Okay, I'll stop babbling. Just curious to see if this has

happened

> to any of you before.

>

> - Amber

>

>

>

>

>

>

>

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