Re: Re: Anyone Ever Have This Issue?

[Guest guest]

OIY!! has very atypical/complex feet as well. Although the worst one

when she was born is just fine now. It is just that left one dagnabbit!

What do you do? Just recast every 6 mos or ???

Re: Anyone Ever Have This Issue?

YES! Dr P and Dr Mosca are both baffled by Kai's foot, which

relapses with regularity every 6 months. Kai will be 3 next month.

He has been seen for genetic study, and he also does not have CP or

any other definite or obvious syndrome. He also has loose ligaments

and needs a slightly lower angle on his shoes.

To be honest, I have no help for you beyond a shoulder to lean on.

Dr P's last e-mail to me held no hope. Even with Kai having

complex/atypical clubfoot, there is no explanation.

Angel

>

> Our daughter was seen once again by Dr. P on Monday. We were in

for a two week 'recasting' since just two weeks ago we'd come for our

normal 3 mos check up and she was once again relapsing in her left

foot.

>

> This has been an ongoing thing. Our local ortho had her completely

corrected and we did the FAB mostly 24/7. We go back to him after 3

mos when I knew she was relapsing in the left and he says she'll need

AFO's during the day and the ATTT surgery but she's not relapsing.

We knew better and headed to Iowa. Dr. P did a series of casts last

December/Jan and we went back in to the shoes for 20 hours a day. In

March we went back for a check up and she was relapsing again and he

recast her for one three week period. In June we go back and all is

fine. By the end of the summer I knew she was relapsing again.

>

> Two weeks ago he confirmed it and recast her. While we were there

the visiting Drs and Dr M and Dr P had much discussion about her feet

and I didn't catch all of it but some of it sounded a bit ominous.

This week Dr. P says he just doesn't get it. Can't figure out why

this foot won't stay corrected. He is at a loss and says we need to

see a neuro. We've done that already twice. She doesn't have CP.

No physician, therapist or any other professional we interact with

regularly and some not so regularly say she has any chance of having

it so that's moot as well. Dr. P just shook his head and said he

just didn't know what to do now. We have the last cast on it and

will soak it off in a few weeks. Then we are to set her foot at 50

degrees - she has loose ligaments. But I'm sure it will relapse

quickly again. Has anyone ever dealt with anything like this? If

so, have you found something that helped?

> Chris

>

> A waist is a terrible thing to mind.

>

>