Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Keep in mind that you must be in charge of your own welfare. MTX is excellent but you must be tested every three months for liver problems while you are on it. Prednisone is also excellent medication but it will cause you to gain a lot of weight. I am not saying this to alarm you, and I wish you well but keep the downside in mind. Walt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 Your story sounds familiar..... I am on Enbrel injections after trying every medication out there for this disease. I am not a textbook case, so they can't for sure say I have this disease, as I have no Psoriasis. I also have a herniated disc as well as a disc bulge and Fibro. I was put on Prednisone about a year ago for the swelling, pain and breathing problems from PA. I have tried to wean off of Prednisone twice with no luck. The pain in my back gets unbearable. We were hoping Enbrel would maybe help this pain, but no luck. So I am still on Pred. and would do anything to get off of it. I am so bloated its sickening. My face is huge and I have gained 80 lbs. in one year from the prednisone. Now I find that since I started Enbrel, it has increased my appetite. All I want is off this prednisone, but it appears that it is what is keeping my body bearable. I see my Rheumy next week and will again try to wean off of it. Ontario Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 We are graduating Monday from Cranial Tech San Diego. Hooray, right? Well, I still have some concerns . I invite the more experienced moms for maybe some help or reassurance. We went in this with a mild to moderate diagnosis CT said to me you can go either way, but I went all in, paid out of pocket, wanting to do the best thing for my little boy. I feel good about the progress made in adding volume to right side. There is still a bit of flatness behind the ear, but it is much better. However the top, crown in the back is much larger on the left than the right side. I feel that it is more so now than it was when we started. Maybe I am seeing things. I seem to be the only one concerned every one else thinks he looks fine. CT has told me that A. He is not a candidate for another band and B. There is nothing they can do about the top because holding the top would put to much pressure on his skull. But doesn't the starband hold the top part except for the small opening on the top. He is already pretty much grown out of band one they said he can wear it until Monday but i took it off to day because the part on his forehead is " peaking " in the front, that is a term they gave me when I described that the cap part was sitting higher above his forehead leaving a space. Anyway here is my big issue that I implore your advice on: The cap part of the DOC band that holds the band in place is on the back right " corner " than is so much lower than the one on the left. Could that have made it worse? I do have photos in the E folder named eli1,eli2 ect. I will post more on Monday when we get our photo study done. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Hi markestein333 and welcome, Your up on what you need now to find a new Dr. go to the Database Section at the home page on the left. Open it and the open the Dr.'s file see if one is in this that some one here sees. All so read the File " Finding a New Male Hormone Dr. " Just make sure you don't go to Endo's or Uro's not much luck with them. A lot of guys dive out of state to see a good Dr. or even fly but them Dr.'s don't take health care palins. There is Dr. at www.allthingsmale.com and Overbeck his contack is hardasnails1973@... Co-Moderator Phil > From: markestein333 <markestein333@...> > Subject: Some Advice Please > > Date: Sunday, March 28, 2010, 2:13 PM > Based on my own personal experience, > I believe that finding a Doctor who is knowledgable about > Male Hormone Replacement Therapy and is committed to helping > the men he treats is EXTREMELY difficult. I had the good > fortune of having such a Doctor for about the past 5 years > but he recently moved out of state. He was committed to > keeping my testosterone and free tree testosterone in the > OPTIMAL range for optimal health (not just getting it above > 280 or 300) and when my symptoms returned about 7-8 weeks > after starting TRT, he knew to test my estrogen, found it at > 88 due to my body converting my testosterone to estrogen, > put me on 1mg Arimidex every 2 days, which immediately got > my estrogen below 20 again, and I've felt like a million > bucks since. When my red blood cell count got borderline > high, he knew what to do. Instead of lowering my > testosterone dose since I was in my optimal range, he had me > donate blood each 2 months, which again solved that problem. > Now, how difficult is it to find such a Doctor and how many > of them are out there? Well, just try to find one. They do > exist and they are out there, but they are incredibly hard > to find. Now that I've lost my Doctor, I'm now in the > position of having to replace him. So far I've seen two > providers. They both knew next to nothing about Male Hormone > Replacement Therapy and one was an endocrinologist! My > question for you all is this...Now that I'm back at square > one, I don't really even know where to start as far as > finding a Doctor comparable to the one I just lost. Any > ideas or advice would be very greatly appreciated. I live in > central Iowa. Thanks and God Bless-Mark > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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