Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Dear Group, I'm a caregiver (dpoa) for a woman named Handelman in Oakland, Ca. She's had neurosarc for at least 3 years, and prednisone is no longer effective. She's tried cytoxin, etc, a couple years ago,with no effect. Her neurologist is out of ideas and 24/7 home care has nearly broke. She and the Doc--who has become a personal friend--have decided to try Thalidomide. Except that we found out today that it'll cost about $3k a month, with an estimate of 6 months before any results. My questions for you all are: has anyone tried Thalomid? What kind of results have you gotten? And have you found anyone to pay for it? I'd appreciate any answers or opinions you might have. Thanks! Geoff Albertson Quote Link to comment Share on other sites More sharing options...
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