Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Happy Birthday Helen with many more pain free healthy ones to come. Jackie good news hi everyone! went to cleveland clinic yesterday from ny about a 3 hour ride. not to bad!! they confirmed neurosarcoidosis yippee right (just what i really wanted to hear!) anyway the lungs are completely clear with stage 1 sarcoid . they want to set me up with remicade infusions and i am already aware insurance co do not like approving this drug. why? if it works! so now is the waiting game! does anyone know if you lose your hair from this? they also gave me a px for neurontin,fosomax,pulmicort,and an innebulizer.did anyone have sucess with walking thing from remicade? they also suggested i go to physical therapy with an ms therapist!! happy b-day helen!!! and many more!! mary congrats and your new grand baby she must be beautiful enjoy her while you can babies grow soooo fast!! hope everyone is feeling well. talk to you soon . barb Quote Link to comment Share on other sites More sharing options...
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