Re: Problems with Memory/Communication

[Guest guest]

Speaking of Memory Problems...I forgot a few birthdays.

Happy Birthday Val

Happy Birthday Val

You're a great gal

Happy Birthday Val

Happy Birthday

Happy Birthday

You're top banana

Happy Birthday

Subject: Re: Problems with Memory/CommunicationTo: Neurosarcoidosis Date: Saturday, April 3, 2010, 2:20 PM

,

Take the time to write a list of what you need your lawyer to know. Make sure that you emphasize what YOU CANNOT DO!

Tell him the changes that have happened, and the progression you see in yourself.

You can have a couple of friends or a family member write down the changes they see you going through-- (SSDI requires this).

If the leg weakness is getting worse, and you fear taking a fall, let him know that. If you've lost your sense of balance and are exhausted just taking a shower-- let him know. If your sense of direction is screwed up-- and you find yourself driving down the highway with no recollection of where you were going-- tell him. Emphasize that this is not like the "geez, I don't remember going thru the stoplight at xx intersection because you've got something on your mind" explain that it is more a disorientation to space and time-- and is worse if you've been doing more than you can do.

Explain that when you answer the phones at work, that you find yourself asking the caller who they are, what they need-- time and again. (Bad Bad scoobies when you have to work)

As for the sleep disruptions- we seem to have a disposition for sleep apnea. Between the weight gain of prednisone, and our compromised lung issues, and the fact that we don't breath as deeply anyway when we sleep (true even for totally healthy people) we end up waking up multiple times each night-- gasping for air. This too complicates our memory issues. No oxygen to brain equals lower brain function. Add sleeping meds, and it can make it much much worse!

Let me know if you need more info,

Blessings,

Tracie

NS Co-owner/moderator

From: <specialk2002ac@ yahoo.com>To: Neurosarcoidosis@ yahoogroups. comSent: Sat, April 3, 2010 11:39:08 AMSubject: Problems with Memory/Communicatio n

Hello All:Not too long ago someone posted info regarding neurosarcoidosis and the inability to relate over the phone because of delayed brain processing: For example, I can no longer answer phones in the office because words don't come readily or I tend to forget what I'm saying or to whom I'm speaking. The information that was posted was instrumental to me in that it explained what I am experiencing. I have Arnaud Chiari malformation of the brain in addition to neurosarcoidosis.Also, I need to know what to tell my lawyers about my problems when I meet with him; therefore, I am requesting input on what to mention so that I leave nothing of importance out of the discussion. When it comes to talking with anyone, I can't seem to find the words I want to use. I forget the third word before I have spoken the fourth word. Please ... someone help me obtain the information I need as soon as possible, as my scheduled appointment is coming up

this week!I am now back on Prednisone 5.0 mg because pain returned; but now with the Prednisone I am experiencing weakness and lightheadedness again. Also, my sleep habit is out of whack: I often awaken several times during the wee hours of the night!! Although I am going through all of this, I still know that my God is in charge and that I am in His capable hands! To all of you, have a blessed Resurrection Sunday!!Always, (pronounced Kah'ren) L. -Maye (Baltimore MD)

[Guest guest]

thanks so much for the birthday wishes! Problems with Memory/Communicatio n

Hello All:Not too long ago someone posted info regarding neurosarcoidosis and the inability to relate over the phone because of delayed brain processing: For example, I can no longer answer phones in the office because words don't come readily or I tend to forget what I'm saying or to whom I'm speaking. The information that was posted was instrumental to me in that it explained what I am experiencing. I have Arnaud Chiari malformation of the brain in addition to neurosarcoidosis.Also, I need to know what to tell my lawyers about my problems when I meet with him; therefore, I am requesting input on what to mention so that I leave nothing of importance out of the discussion. When it comes to talking with anyone, I can't seem to find the words I want to use. I forget the third word before I have spoken the fourth word. Please ... someone help me obtain the information I need as soon as possible, as my scheduled appointment is coming up

this week!I am now back on Prednisone 5.0 mg because pain returned; but now with the Prednisone I am experiencing weakness and lightheadedness again. Also, my sleep habit is out of whack: I often awaken several times during the wee hours of the night!! Although I am going through all of this, I still know that my God is in charge and that I am in His capable hands! To all of you, have a blessed Resurrection Sunday!!Always, (pronounced Kah'ren) L. -Maye (Baltimore MD)