Guest guest Posted August 19, 2001 Report Share Posted August 19, 2001 Look at the bottom of ANY POST at ANY Yahoo group and it tells you have to unsubscribe. Go to GFCFKids-unsubscribe . Done! HTH, Sue... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2001 Report Share Posted August 19, 2001 Please help, how do I unsubscribe from this list? Cheryl ( Mom to 11yr Aspergers and 6 yr apraxia,autism, and CAPD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi rachel, Yes there are several on the list from the UK. Some are in Ireland and Scotland as well as England. Some see a Dr. Stanhope at the Great Ormond Street Hospital in London. He is one of the few people in the world researching RSS. Perhaps you could contact him, if you haven't already. Hope this helps. Ken M > > Is there anyone in the uk who's child has rss? I am finding it hard > at the moment, the doctors can't decide if my daughter has rss or > not. I was told 6years ago she had it but now they are not sure. > is anyone else going through the same thing? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi I have an 8 1/2 year old boy called Christian with RSS.I live in Hertfordshire.If you have any questions,don't hesitate to ask[feel free to e-mail personally if you prefer] Look forward to hearing from you Joanne Please help > > > Is there anyone in the uk who's child has rss? I am finding it hard > at the moment, the doctors can't decide if my daughter has rss or > not. I was told 6years ago she had it but now they are not sure. > is anyone else going through the same thing? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi, I'm from Holland. When our second child was 6 weeks, it was discovered she has RSS. Already when I was pregnant, she did'nt grown. The first two/three years she didn't eat much. Since she's one she gets hormones (in Holland we say 'growing hormones). Since that, she has grown a lot. Still she is very small; as big as a two year old. But she is a sharp child, has started to eat much better (sometimes even vegetables) and we are very happy with her. To us, she is just a normal child. Dorien (mother of Sanne and Sterre (RSS)) -----Oorspronkelijk bericht----- Van: Rose Verzonden: vrijdag 17 december 2004 23:01 Aan: RSS-Support Onderwerp: Re: Please help Hi I have an 8 1/2 year old boy called Christian with RSS.I live in Hertfordshire.If you have any questions,don't hesitate to ask[feel free to e-mail personally if you prefer] Look forward to hearing from you Joanne Please help > > > Is there anyone in the uk who's child has rss? I am finding it hard > at the moment, the doctors can't decide if my daughter has rss or > not. I was told 6years ago she had it but now they are not sure. > is anyone else going through the same thing? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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