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Hi a!

Good to hear from you!

Im not sure what to think about this surgeon in Brazil....what if its a

hoax? Do you have any way to verify this information? I think if I was

going out of the country I would go to a reputable surgeon such as Dr

Baltasar in Spain.....nobody knows anything about this one in

Brazil....arent you a bit scared to do that? I would even go to Mexico

first before Brazil!

Hugs, Judie

Re: Hi

> Hi Judie, thank you so much for asking! I am looking into the doctor that

is in Brazil that Liliane said her " total " cost for everything was under

$5,000! Liliane was on this group but not anymore she was surprised at the

amount of emails there was. Anyway what do you think about it? Hope to hear

from you soon! a, pre-op 220lbs.

>

>

>

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Hi Judie, thank you so much for asking! I am looking into the doctor that is in

Brazil that Liliane said her " total " cost for everything was under $5,000!

Liliane was on this group but not anymore she was surprised at the amount of

emails there was. Anyway what do you think about it? Hope to hear from you soon!

a, pre-op 220lbs.

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a,

I am so glad to hear from you again!!! Have you contacted the Surgeon down in

Brazil? Let me know what is going on. I always think about you and had been

wondering how you were doing!

Lisbeth

S Urban wrote: Hi Judie, thank you so much for asking! I

am looking into the doctor that is in Brazil that Liliane said her " total " cost

for everything was under $5,000! Liliane was on this group but not anymore she

was surprised at the amount of emails there was. Anyway what do you think about

it? Hope to hear from you soon! a, pre-op 220lbs.

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Hi Judie-

I checked his website and had it translated. He is a member of all of the

important organizations and appears to be highly qualified. Having lived in

Mexico, I would have no qualms about going to the right doctor at the right

hospital for just about any procedure. I believe that Brazil is equal to or

better than anything Mexico might have to offer. All that I found in Mexico

was the adjustable band and RNY, anyway. Like with any doctor, you have to

do your homework. I wouldn't be afraid, though, just because someone is in

Brazil.

The doctor actually charges $5,000, which is less than I originally said.

It's only a little more than the program fee that some doctors in the East

are charging.

Best-

Nick in Sage

Re: Hi

>

>

> > Hi Judie, thank you so much for asking! I am looking into the doctor

that

> is in Brazil that Liliane said her " total " cost for everything was under

> $5,000! Liliane was on this group but not anymore she was surprised at

the

> amount of emails there was. Anyway what do you think about it? Hope to

hear

> from you soon! a, pre-op 220lbs.

> >

> >

> >

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Hi Lisbeth! Thank you for the kind words! I plan to contact the doctor but I

first need to buy a pre-paid international calling card so I can call Brazil.

When I do call and talk with the doc I will let you all know! I hope it will

uplifting news! God bless, a, pre-op 220lbs. :)

From: L J

Sent: Wednesday, October 17, 2001 7:46 AM

To: duodenalswitch

Subject: Re: Hi

a,

I am so glad to hear from you again!!! Have you contacted the Surgeon down in

Brazil? Let me know what is going on. I always think about you and had been

wondering how you were doing!

Lisbeth

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sounds good Nick......I would hope though if anyone goes that far from home

that they take someone with them just in case...(same as with Spain except

Dr B is beloved by all who have gone there)

He does sound too good to be true!! (the fee) glad he is another option.

Judie

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Good luck a. I hope this is indeed a wonderful answer to the prayers

of many who can not afford the trip to Spain. Pls keep me posted on this.

Also, dont forget to take someone with you if you go for safety sake!

Hugs, Judie

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Judie,

My PCP said that right now Brazil is the Plastic Surgery Center of

the world. Because they have a high level of expertise, and because

their prices are so low, it is the most economical place to have any

plastic surgery done, and a number of her patients have gone with

excellent results.

I know it is a stretch, but I would think the standard of medical

care would also be extended to other specialties and this DR. is

American trained. It would be wonderful if this turns out to be

another option. Just think that there are only about 40 odd Doctors

world wide who offer the DS right now. The more there are, the more

options people will have, and the more likely the insurance companies

will come around to acknowledging that this is the Platinum standard

in obesity surgery!

By the way...I am still not tangoing with this darn knee...back in

for somemore treatment in the hospital next week I think. Please keep

me in your prayers!

Hugs,

Theresa

> sounds good Nick......I would hope though if anyone goes that far

from home

> that they take someone with them just in case...(same as with Spain

except

> Dr B is beloved by all who have gone there)

> He does sound too good to be true!! (the fee) glad he is another

option.

>

> Judie

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We will all be here waiting to your news!

*hugs*

Lisbeth

S Urban wrote: Hi Lisbeth! Thank you for the kind words! I

plan to contact the doctor but I first need to buy a pre-paid international

calling card so I can call Brazil. When I do call and talk with the doc I will

let you all know! I hope it will uplifting news! God bless, a, pre-op

220lbs. :)

From: L J

Sent: Wednesday, October 17, 2001 7:46 AM

To: duodenalswitch

Subject: Re: Hi

a,

I am so glad to hear from you again!!! Have you contacted the Surgeon down in

Brazil? Let me know what is going on. I always think about you and had been

wondering how you were doing!

Lisbeth

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Theresa,

I am thrilled that this doc in Brazil might be the answer for many. I didnt

know about the plastic surgery part and thats good news!

What in the heck is wrong with your knee now?

Sure, I will keep you in my thoughts and prayers..you can count on that!

Hugs, Judie

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Ouch!!!!! Good thing they will knock you out for that!

I wonder if it had anything to do with your not excersizing that knee right

in the beginning and kept it up for those two weeks they did nothing for

you??

Judie

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Judie,

I have an interesting little thing called adhesions. I sure hope

that doesn't carry over to my DS surgery. the knee has locked up and

can't move beyond a certain point...so next step they put me under

and force the leg to break the scar tissue. Fun, eh?

Theresa

> Theresa,

> I am thrilled that this doc in Brazil might be the answer for

many. I didnt

> know about the plastic surgery part and thats good news!

> What in the heck is wrong with your knee now?

> Sure, I will keep you in my thoughts and prayers..you can count on

that!

>

> Hugs, Judie

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Tiger,

I'm sorry, I don't have any details. It just came up in passing with

my PCP because we were discussing the DS and how some of her patients

were going to Spain with Dr. Balthasar because they could not afford

Dr. Rabkin and the hospital costs. She then segued to overseas

medicine and where she felt it was and wasn't safe. Laughing...she

is from Ghana I believe, is the best doctor I have ever had, and the

most open minded. I taught her the DS and since then over 10 of her

patients are going for the surgery. 2 of them have already had the

surgery with Dr. Rabkin, and I was whining about being first to apply

and still not having a surgery date.

I will be seeing her next week and will see if she can give me any

referrals.

Theresa

> Dear Theresa:

>

> I am looking for a good PS to do my face, I look 70 with all this

sag and

> my hubby is a young man so I would at least like to look 40!

> Anyway if it wouldn't be to much trouble could you tell me the

name of the

> clinic in Brazil or how to find their website if they have one.

> I hope your knee gets better I am having trouble with my right

hip and

> probably need it replaced in the future.

> Thanks for any help.

>

> Huggles,

> Tiger Lake

> Female

> 160 lbs. BMI 21.7

> 224lbs gone

> 165 1/2 inches gone

> 6' -- 53yrs young

> Dr. Anthone@USC So. Calif.

> Open DS

> Surgery 1/13/99 384lbs BMI 51.21

> Last Visit 4/20/99 315.5 BMI 42.07

> 7/19/99 274.8 BMI 36.64

> 9/03/99 259.3 BMI 34.54

> 10/04/99 252.4 BMI 34.02

> 10/25/99 231 BMI 32

> 12/17/99 217.5 BMI 30.2

> 01/19/00 211 BMI 28

> 02/20/00 195 BMI 26

> 04/08/00 182.9 BMI 25

> Hernia repair on 06/07/00 Dr. Anthone

> Tummy Tuck & Breast Reduction Dr. Downey

> 06/07/00 160 BMI 21.7

> 01/08/01 164.3 BMI 21.7

> Total Weight Loss! 224.1lbs GONE!

> Total inches lost 154.5

>

>

>

>

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At 2:31 AM +0000 10/18/01, marym@... wrote:

>I thought this was the BPD not the DS??? I can't read the language

>to figure it out.. but recalling (dimly) what a precious poster wrote.

>

>, Seattle

My recollection was the same: DS in Spain, and Scopinaro (BPD) in

Brasil. --Steve

--

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Actually, the Brazilian doctor emailed back and said that he does the DS, in

addition to the Scopinaro. He also has the best of credentials and training

(USA % Britain!

Best,

Nick in Sage

Re: Hi

> At 2:31 AM +0000 10/18/01, marym@... wrote:

> >I thought this was the BPD not the DS??? I can't read the language

> >to figure it out.. but recalling (dimly) what a precious poster wrote.

> >

> >, Seattle

>

> My recollection was the same: DS in Spain, and Scopinaro (BPD) in

> Brasil. --Steve

> --

>

> ----------------------------------------------------------------------

>

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Did you get any other information from him such as how many DS he has

done, the length of the common channel, size of stomach, etc?

, curious in Seattle

> Actually, the Brazilian doctor emailed back and said that he does

the DS, in

> addition to the Scopinaro. He also has the best of credentials and

training

> (USA % Britain!

>

> Best,

>

> Nick in Sage

>

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  • 3 years later...

Hi nice to meet you! i am from Grand Valley a small town close to

Orangeville, Guelph, Shelburne about an hour from you.....Chantal

> Hi Chantal

>

> I am from Toronto. Where exactly are you?

> My 12 year son, Adam, has RSS. But it was wonderful to meet new

people from

> up here in the great white north!!

>

> Welcome and I know we all look forward to hearing about your

experiences.

>

> Take care

> Debby

>

> Re: Hi

>

>

> >

> >

> > Thanks for the welcome and from everyone else.... nice to meet

you I

> > am from Ontario,canada. I read some messages on here and noticed

it

> > was mostly parents but still its a great way to learn

> >

> >

> >

> >

> >

> >

> >

> >

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Hi Chantal

Gee I have never heard of that place! Ha, how sad is that?

Have you joined Magic yet? There's a lady in Guelph with a 13 or 14 year old

son with growth hormone deficiency. She can be found on the Magic web site.

Take care

Debby

Re: Hi

>>

>>

>> >

>> >

>> > Thanks for the welcome and from everyone else.... nice to meet

> you I

>> > am from Ontario,canada. I read some messages on here and noticed

> it

>> > was mostly parents but still its a great way to learn

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >

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  • 2 months later...

Bon Jour !

Bien venue! je suis tres contente de faire votre connaissance.

Thanks so much for writing!! I know you'll get some wonderful

responses from this listserve...Also:

1st: There is a listserve devoted to adults living with RSS! Go

here to join: http://health.groups.yahoo.com/group/RSS-People/

2nd: consider coming to the MAGIC Foundation's annual convention,

held in Chicago in July! I think it would a great opportunity for

you to meet other RSS adults as well as offer inspiration to other

families. I know that the adults who have attended in the past have

all enjoyed the experience.

3rd: Would you like to write a little story about how you have dealt

with RSS? We would love to include it in our next newsletter!!!!!!!!

Good luck.!

Katy Frissora

MAGIC Foundation RSS Division Co-Consultant

Mom to ,age 8, RSS

>

> Hi everyone

> my name is melissa and i'm 20 years old. I live in

Québec

> (Canada) and i would like to talk with other person like me, with

> the siLver syndrome. I speak french but i try to speak

> english.

>

> Bonjour tous le monde,

> Je m'apelle Mélissa et j'ai 20 ans je vis au

> Canada et je parle Français mais j'essaie de me débrouiller en

> anglais. Je suis très contente de voir qu'il y a d'autre gens comme

> moi avec le syndrome de silver russell. J'aimerais beaucoup parler

> avec des gens qui ont la même chose que moi. Merci

>

>

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Mélissa wrote:

Hi everyone

my name is melissa and i'm 20 years old. I live in Québec

(Canada) and i would like to talk with other person like me, with

the siLver syndrome. I speak french but i try to speak

english.

Bonjour tous le monde,

Je m'apelle Mélissa et j'ai 20 ans je vis au

Canada et je parle Français mais j'essaie de me débrouiller en

anglais. Je suis très contente de voir qu'il y a d'autre gens comme

moi avec le syndrome de silver russell. J'aimerais beaucoup parler

avec des gens qui ont la même chose que moi. Merci

allo moi aussi j habite au canada mon garcon de 20mois a le sindrome de silver

russell

---------------------------------

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Hi !!

welcome to the group, there are couple of other rss adults on here,

plus there is a list just for you guys (i am not sure the address

but i am sure one of them will respond!!!) it will be nice to here

from you about your experiences growing up with rss!!

jodie c.

(nicholas-6 1/2 nonrss, christopher-4 rss 27lbs 6oz 36 1/4 "

periactin 4.5, ght genotropin .5, assmentry(left side 1cm), ADHD and

OCD possible, johnathon-20m nonrss)

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Mélissa wrote:

Hi everyone

my name is melissa and i'm 20 years old. I live in Québec

(Canada) and i would like to talk with other person like me, with

the siLver syndrome. I speak french but i try to speak

english.

Bonjour tous le monde,

Je m'apelle Mélissa et j'ai 20 ans je vis au

Canada et je parle Français mais j'essaie de me débrouiller en

anglais. Je suis très contente de voir qu'il y a d'autre gens comme

moi avec le syndrome de silver russell. J'aimerais beaucoup parler

avec des gens qui ont la même chose que moi. Merci

allo melissa je suis papa d un garcon qui a le sindrome comme toi merci

---------------------------------

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Ah oui je suis très contente que vous aillez répondu à mon message.

Est ce que votre garçon se porte bien? Vous vivez où au Canada ?

> Hi everyone

> my name is melissa and i'm 20 years old. I live in

Québec

> (Canada) and i would like to talk with other person like me, with

> the siLver syndrome. I speak french but i try to speak

> english.

>

> Bonjour tous le monde,

> Je m'apelle Mélissa et j'ai 20 ans je vis au

> Canada et je parle Français mais j'essaie de me débrouiller en

> anglais. Je suis très contente de voir qu'il y a d'autre gens

comme

> moi avec le syndrome de silver russell. J'aimerais beaucoup parler

> avec des gens qui ont la même chose que moi. Merci

>

>

>

> allo moi aussi j habite au canada mon garcon de 20mois a le

sindrome de silver russell

>

>

>

> ---------------------------------

>

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Welcome !

I have a 3 year old daughter with RSS. Several adults with RSS often post

at this site and I am sure some will respond. I’m also glad a fellow

Canadian responded as well! There is another group just for RSS adults, but

I have forgotten it’s exact name right now. I’m sure they will speak up if

they haven’t already.

Again, WELCOME!

Dayna

_____

From: Mélissa

Sent: Friday, February 18, 2005 4:06 PM

To: RSS-Support

Subject: Re: Hi

Ah oui je suis très contente que vous aillez répondu à mon message.

Est ce que votre garçon se porte bien? Vous vivez où au Canada ?

> Hi everyone

> my name is melissa and i'm 20 years old. I live in

Québec

> (Canada) and i would like to talk with other person like me, with

> the siLver syndrome. I speak french but i try to speak

> english.

>

> Bonjour tous le monde,

> Je m'apelle Mélissa et j'ai 20 ans je vis au

> Canada et je parle Français mais j'essaie de me débrouiller en

> anglais. Je suis très contente de voir qu'il y a d'autre gens

comme

> moi avec le syndrome de silver russell. J'aimerais beaucoup parler

> avec des gens qui ont la même chose que moi. Merci

>

>

>

> allo moi aussi j habite au canada mon garcon de 20mois a le

sindrome de silver russell

>

>

>

> ---------------------------------

>

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