Re: KORI Fw: Kori...

[Guest guest]

Funny you mention this because that's basically what we have now. I'll send a

picture. At the moment we have a pavlik harness, but the straps are lengthened

on the foot/leg to allow for the shoe and then tightened in a way as to

dorsiflex her foot, when she has the markells on, at least on her one leg. Then

the straps for the other leg and the ones that would go over the shoulder were

cut off. I'll send a picture of the contraption and what a normal one looks like

to the CFPics list. My dad used to be an engineer and he had come up with a

contraption that was basically a metal plate the shoe screwed into that extended

out on either side of the shoe and there were metal bars with threads that were

attached and the bars extended up the side of the cast and we held them in place

on the cast with medical sports wrap stuff, I just had to be careful to make

sure the shoe was at the right angle. When I took it in to the ortho to see what

he thought he actually was going to cast the metal bars to her current cast, but

the way the thing was fashioned there was no way I could unscrew the bottom so

that the shoe could come off, you had to take the whole thing off.

On another note, I didn't realize the pm's flexed at the ankle. That might

actually make a difference. You don't think they'd come up too high on her leg

do you? I know one of the other docs in the office has ordered pm's for other

kids so they are familiar with them. Is there a website about them? I'm going to

look into it. I figure if we make it to the 10 week mark (when she has her first

cast change) with no relapse then we've figured out something that works and

I'll stick with it...Otherwise, I have no choice but to have them cast the foot.

And you're right, muscle atrophy is very typical in her situation. Just part of

the deal though. No way around it...

Thanks so much for your help!!

Marcia

Kori...

>

>

>Hi, got your phone call and haven't had a chance

>to call you back. I looked at the PM shoes and

>am not sure if they would work. I think it's

>more a bar issue than a shoe issue. I'll send a

>picture of her in her cast to the CFPics site

>and see if you can see the angle her feet are at

>and see what I mean. Maybe tomorrow I can get a

>picture of her in the makeshift brace we've got

>now and you can tell me what you think. I'm

>still not too sure about it, but it seems to be working, I guess....

>

>Thanks so much for your time though! I'm sure

>I'll figure something out. I may just have to

>e-mail Dr. Ponseti and get his take on the

>situation. My guess is he'll suggest just

>casting the foot with the rest of her at her

>next cast change. Oh well, I tried....

>

>Marcia

>

>