Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 I wish I heard of this survey last year when I could of added my two cents. Subject: Results from major sarcoidosis surveyTo: Neurosarcoidosis Date: Monday, February 8, 2010, 6:22 AM Hard evidence at last of what we have to put up with. No this is not spam - it is a link to the survey results from hundreds of sufferers who went through their medical histories last year to compile it.I have already had about 40 messages from fellow sufferers who have said they are now off to their doctors armed with the report as evidence. It is 7 pages long comprising of the press release, brief introduction to sarcoidosis and then 5 pages of survey results with narrative and conclusion.I hope you find it as useful as everyone else has. If you require a higher definition PDF copy of the survey report please email me as usual keith.b (AT) uksarcoid (DOT) org.Also dont forget to sign the current worldwide sarcoidosis petitionhttp://www.petition online.com/ SARCOID/The report link:https://docs. google.com/ fileview? id=0ByE-zTItYipm NzZkNGZkM2MtNmI3 Ni00ZGE0LW% 20FlYTAtOGNhNzI1 ZjZjOTY4 & hl=en_GB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Thanks for the info link.MattSubject: Results from major sarcoidosis surveyTo: Neurosarcoidosis Date: Monday, February 8, 2010, 6:22 AM Hard evidence at last of what we have to put up with. No this is not spam - it is a link to the survey results from hundreds of sufferers who went through their medical histories last year to compile it. I have already had about 40 messages from fellow sufferers who have said they are now off to their doctors armed with the report as evidence. It is 7 pages long comprising of the press release, brief introduction to sarcoidosis and then 5 pages of survey results with narrative and conclusion. I hope you find it as useful as everyone else has. If you require a higher definition PDF copy of the survey report please email me as usual keith.b (AT) uksarcoid (DOT) org. Also dont forget to sign the current worldwide sarcoidosis petition http://www.petition online.com/ SARCOID/ The report link: https://docs. google.com/ fileview? id=0ByE-zTItYipm NzZkNGZkM2MtNmI3 Ni00ZGE0LW% 20FlYTAtOGNhNzI1 ZjZjOTY4 & hl=en_GB Quote Link to comment Share on other sites More sharing options...
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