well more bad news todays from rhuemy

[Guest guest]

I had a wonderful visit with the rheumy but not so good news .. my wbc is ever lower than 1.0 since 1 and half weeks ago.

she stoped the Imuran right away and is starting to wean the steriods already. she gave me a script for Cellcept. She said she wants a wash of the Imuran for one week than start the Cellcept. She said wear the mask when i go out .. she said if i start to feel sick to call asap. and i will have to go on iv antibodics.

She said the progression of the NS is no longer stable with the Imuran so she said now onto more powerful drugs. As i heard with cellcept is very risky.

but agreed to the drug.

i have to have xrays of my arms and hands and feet and legs. she is very smart when it comes to NS. she has been treating it for 4 years in this office with my neuro. so made me feel so comfortable and took all my concerns to heart and said when NS progresses to the point you get it in your muscles it can be rough hard road upward. she said so many of her NS patients complain of the arm and leg pain and weakness at this point. she is also concerned about kidney problmes . she is running some kind of blood test that has to do with the mucles. i had the blood work done there so she said she will call me with all the results soon as they come in.

other than my Neuro i'v not seen a dr who new so much about NS.

I will keep intouch with all the results as they come in and when i start the cellcept. and if anyone out there who had cellcept please give me some input. or if you tracie know about cellcept.

I hope this letter finds everyone a pain free day and love to you all

Many Blessings A.

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