Re: what do you think?

[Guest guest]

Hi Barbara,

I know it is so frustrating to have to wait for help, or even a

diagnosis,

but just be patient and hang in there. While you are waiting for the Doctor

appointment, you can check through the old archived messages and the LINKS

files and maybe you will find some info there. We have a lot of

knowledgeable

people here and with over 600 plus members, we have lots of info on the

various

ways that sarcoidosis and neurosarcoidosis attacks a person's body. The

waiting

is difficult, I know. Please know that we are here for you and we DO care

about

each and every one of our members.

Hugs,

Darlene

NS Co-Owner/Moderator

what do you think?

> the other day i went to my family doctor and i said i have a puzzle for

> you... watch what happens when i poke my neck, or put all my fingers to my

> thumb (one at a time) real fast back and forth . well my left hand the

> face does nothing. the right hand is a different story ! my face will

> spasm, droop, pull and it will travel down my arm , my speech slows right

> down !! my right hand will club with poking my neck. " you are a zebra ! "

> my doctor said !!! he said you " CAN'T MAKE THAT STUFF UP !!! " THANK YOU

> JESUS SOMEONE BELIEVES ME !!! he said that he thinks , if he had to guess

> the signal is goofed up in my spinal cord and neck ! DUH !!! so i told him

> i fired all my doctors at dent neurology ,and i am starting fresh with

> jacobs neurology in buffalo. he told me GREAT CHOICE ALONG WITH 3 OTHER

> MEDICAL PROFESSIONALS !!!! my appointment is not untill march 10th unless

> i have a serious problem (the one that mimicks stroke ! ) so what do i do

> just sit and wait? does anyone else have this? i hope you all are doing

> ok? marla where are you girl ? they took my remicade away and i am getting

> symptoms again ! traci i hope you are doing ok !

>

>

>

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